HoPE Archives - Page 3 of 7 - Families for HoPE, Inc.

Roxanne Steele

Posted: July 22, 2019 by Leslie, Sammy's mom

Written by Roxanne Steele Growing up in Indiana in the 1970’s and 80’s, I have to admit I never encountered many people who were different. Yes different races and economic factors but not anyone with any real disability.

Category: Guest Authors, Inspiration Tags: #holoprosencephaly #hope, #sharingHoPE, awareness, disability, holoprosencephaly, HoPE, HPE, life, special needs

Alone No More

Posted: July 19, 2019 by Leslie, Sammy's mom

As I walked into the conference center that Sunday night in 2018, seeing all those kiddos–some I recognized, many I didn’t–but, it felt like I was home with “my people”.

Category: Guest Authors, HPE Conference Tags: canada, conference, HoPE, zoe

Not Broken

Posted: July 3, 2019 by Leslie, Sammy's mom

She is not broken She does not need fixing

Category: Inspiration Tags: #familiesforhope, #sharingHoPE, diagnosis, disability, Embrace the Journey, family, holoprosencephaly, HoPE, HPE

Never Lose HoPE

Posted: July 30, 2018 by Leslie, Sammy's mom

Guest Author: Melissa, Isaiah’s mom Our journey started on January 11, 2016 when we found out we we were pregnant with Isaiah. When I was 18 weeks, my primary OBGYN noticed something wrong with Isaiah’s head. He wasn’t sure what was going on, so he sent us to a maternal fetal medicine specialist. This doctor …

Category: Embrace the Journey, Guest Authors Tags: #familiesforhope, #holoprosencephaly #hope, #sharingHoPE, awareness, Carter Centers, diagnosis, disability, Embrace the Journey, family, holoprosencephaly, HoPE, HPE, prenatal, special needs

HPE Awareness Week

Posted: March 25, 2018 by Leslie, Sammy's mom

Holo. . . what?

Category: Holoprosencephaly Awareness Week Tags: awareness, holoprosencephaly awareness week, HoPE, HPE

Having HoPE will give you courage

Posted: March 7, 2018 by Leslie, Sammy's mom

A mother and her son’s journey with Treacher Collins Syndrome and HPE

Category: Embrace the Journey, Guest Authors Tags: #familiesforhope, #gotHoPE, #sharingHoPE, awareness, conference, diagnosis, happy, holoprosencephaly, HoPE, prenatal, treacher collins

Pearl Joy Brown

Posted: January 23, 2018 by Leslie, Sammy's mom

Last week, Pearl Joy Brown’s dad, Eric Brown, was asked to speak at a conference in Washington, DC. Thank you, Eric, for sharing your humble spirit, your sincere and heartfelt words, and your beautiful photos.

Category: Child of HoPE, Guest Authors, Inspiration, Perspectives Tags: eric brown, eric brown photography, holoprosencephaly, HoPE, life, pearl joy brown, ruth

There is always HoPE

Posted: January 13, 2018 by Leslie, Sammy's mom

By Amy L. Springer, Guest Author I learned that I was pregnant February 24, 1994. I had a sonogram like normal and all was good. I later started to have problems with bleeding, so we did another sonogram, which showed the baby to have a “lemon-shaped head” and I had placenta previa so a follow …

Category: Guest Authors Tags: #holoprosencephaly #hope, diagnosis, disability, Embrace the Journey, happy, holoprosencephaly, HoPE, HPE, journey, laughter, special needs

Coloring

Posted: March 26, 2017 by Leslie, Sammy's mom

Coloring is a hot trend for adults, and gathering a group of individuals together to color is a unique way to raise awareness of HPE! If you are interested in using coloring as a way to raise awareness of HPE and raise funds for Families for HoPE, we can help you do so. If you …

Category: Fundraising, Holoprosencephaly Awareness Week Tags: awareness, balloons, coloring, community, event, fundraising, HoPE, HPE, pencils, wristbands