Alone No More
As I walked into the conference center that Sunday night in 2018, seeing all those kiddos–some I recognized, many I didn’t–but, it felt like I was home with “my people”.
Tag: HoPE
Not Broken
She is not broken She does not need fixing
Never Lose HoPE
Guest Author: Melissa, Isaiah’s mom Our journey started on January 11, 2016 when we found out we we were pregnant with Isaiah. When I was 18 weeks, my primary OBGYN noticed something wrong with Isaiah’s head. He wasn’t sure what was going on, so he sent us to a maternal fetal medicine specialist. This doctor …
HPE Awareness Week
Holo. . . what?
Having HoPE will give you courage
A mother and her son’s journey with Treacher Collins Syndrome and HPE
Pearl Joy Brown
Last week, Pearl Joy Brown’s dad, Eric Brown, was asked to speak at a conference in Washington, DC. Thank you, Eric, for sharing your humble spirit, your sincere and heartfelt words, and your beautiful photos.
There is always HoPE
By Amy L. Springer, Guest Author I learned that I was pregnant February 24, 1994. I had a sonogram like normal and all was good. I later started to have problems with bleeding, so we did another sonogram, which showed the baby to have a “lemon-shaped head” and I had placenta previa so a follow …
Coloring
Coloring is a hot trend for adults, and gathering a group of individuals together to color is a unique way to raise awareness of HPE! If you are interested in using coloring as a way to raise awareness of HPE and raise funds for Families for HoPE, we can help you do so. If you …
The beauty
Embrace the beauty of the journey
Sisterhood of the Traveling Dress
Embracing the journey when you’ve been asked to give someone the shirt off your back