Category: Guest Authors


Having HoPE will give you courage

A mother and her son’s journey with Treacher Collins Syndrome and HPE

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Pearl Joy Brown

Last week, Pearl Joy Brown’s dad, Eric Brown, was asked to speak at a conference in Washington, DC.  Thank you, Eric, for sharing your humble spirit, your sincere and heartfelt words, and your beautiful photos.

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There is always HoPE

By Amy L. Springer, Guest Author I learned that I was pregnant February 24, 1994. I had a sonogram like normal and all was good. I later started to have problems with bleeding, so we did another sonogram, which showed…

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The beauty 

Embrace the beauty of the journey

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Family 

Embrace the Journey with Harley’s family

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Sisterhood of the Traveling Dress

Embracing the journey when you’ve been asked to give someone the shirt off your back

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Journey Reminder 

Thumbprints on our hearts

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Hercules’ Journey 

Embrace the Journey with Hercules

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Embrace the Journey with Carol-Lynn

An HPE mom shares how she has embraced the journey with HPE

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I run 4 Michael/Hannah

Lynton Dawson is a triathlete from the UK. Hannah Smith is a child with HPE from the US. They have never met; however, they have a very special bond.

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How Families for HoPE has saved my family

Written by James Pruitt, HPE Dad

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Living with a special kid

Hello, I’m Virginia, I have a little girl, Violeta, (3 years) with HPE semilobar and we live in Buenos Aires. She’s a cutie and she doesn’t have health issues (touch wood). Of course she has delays. I write a blog about…

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HPE and other wacky goodness

HPE Awareness Week 2016

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HoPE 4 Kate

     Hope is a word I never thought too much about, just a word without much meaning. But since 2013 it is a word with a whole lot of meaning, but then written as HoPE. On July 7th 2013…

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God won’t give you…..

I know we have all heard the saying, “God won’t give you more than you can handle.” I have been told this many times by people over the last 12 years.  Twelve years ago, at the age of 24, I…

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