The National Organization for Rare Disorders (NORD) just announced two new educational sessions in their Living Rare, Living Stronger patient and family forum programming webinar series:
Thursday, July 30, at 3pm ET and Thursday, August 27, at 3pm ET
On July 30, a discussion of insurance barriers will be held. If you are spending hours navigating health insurance, you may benefit from this discussion of common insurance barriers faced by patients and caregivers living with a rare disorder and tips to overcome these barriers.
On August 27, a panel will discuss the scientific and technological advances shaping and changing rare disorder care. The discussion will share and explore different approaches to navigating and improving rare disorder care every step of the way.
With live Q & A opportunities, both webinars are free and both will be recorded.
Register at:
https://rarediseases.org
https://livingrare.org/ Living Rare, Living Stronger Summer Webinar Series
Share the HoPE in Holoprosecephaly
New NORD Series – Living Rare, Living Stronger
Posted: July 16, 2026 by lyndot71
The National Organization for Rare Disorders (NORD) just announced two new educational sessions in their Living Rare, Living Stronger patient and family forum programming webinar series:
Thursday, July 30, at 3pm ET and Thursday, August 27, at 3pm ET
On July 30, a discussion of insurance barriers will be held. If you are spending hours navigating health insurance, you may benefit from this discussion of common insurance barriers faced by patients and caregivers living with a rare disorder and tips to overcome these barriers.
On August 27, a panel will discuss the scientific and technological advances shaping and changing rare disorder care. The discussion will share and explore different approaches to navigating and improving rare disorder care every step of the way.
With live Q & A opportunities, both webinars are free and both will be recorded.
Register at:
https://rarediseases.org
https://livingrare.org/ Living Rare, Living Stronger Summer Webinar Series
Share the HoPE in Holoprosecephaly
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