Jaxsen Grinter loves football, and this all-inclusive flag football program at an elementary school in Kansas City is a perfect way for Jaxsen to play the sport that he loves
Joshua Howard, age 16, was selected by St. Petersburg College to receive the Dr. Vilma Fernandez-Zalupski Latino Academic Excellence Award for 2019-2020. This prestigious award recognizes students in grades 10 through 12 with a grade point average of 3.0 or above.
I was a baby when Rhonda came onto my life, so I don’t remember when I met her, but she was my first BFF. Growing up with Rhonda had a profound effect on my life, my personality, and my heart.
Written by Leslie Harley In all of the years we have been doing the Family Conference on Holoprosencephaly, I don’t think there has been anyone in attendance who radiates such pure joy when she enters the room as Brianna Bixenman. Accompanied by her parents, Bill and Janet, then 19 year-old Brianna traveled from New Jersey …
Hi! I’m Sarah from Leicester, England. I was diagnosed as an adult, in 2016, with Lobar HPE an Rhombencephalosynapsis. I love to sing and was honoured to be contacted by Leslie from Families for HoPE and asked if I would like to record a song for all of our HoPE children and their loved ones. …
Written by Roxanne Steele Growing up in Indiana in the 1970’s and 80’s, I have to admit I never encountered many people who were different. Yes different races and economic factors but not anyone with any real disability.
For the exhausted mom who hides a few minutes to cry in the bathroom… For the mom hidden in the bathroom, because she needs a few minutes of tranquility while slipping tears from her eyes.
Posted: November 6, 2022 by Leslie, Sammy's mom
Jaxsen Plays Football
Jaxsen Grinter loves football, and this all-inclusive flag football program at an elementary school in Kansas City is a perfect way for Jaxsen to play the sport that he loves
Posted: October 17, 2020 by Leslie, Sammy's mom
Florida Teen with HPE Receives Award
Joshua Howard, age 16, was selected by St. Petersburg College to receive the Dr. Vilma Fernandez-Zalupski Latino Academic Excellence Award for 2019-2020. This prestigious award recognizes students in grades 10 through 12 with a grade point average of 3.0 or above.
Posted: November 30, 2019 by Leslie, Sammy's mom
My friend, Rhonda
I was a baby when Rhonda came onto my life, so I don’t remember when I met her, but she was my first BFF. Growing up with Rhonda had a profound effect on my life, my personality, and my heart.
Posted: December 22, 2019 by Leslie, Sammy's mom
Honoring Brianna
Written by Leslie Harley In all of the years we have been doing the Family Conference on Holoprosencephaly, I don’t think there has been anyone in attendance who radiates such pure joy when she enters the room as Brianna Bixenman. Accompanied by her parents, Bill and Janet, then 19 year-old Brianna traveled from New Jersey …
Posted: October 24, 2019 by CharlieDawns momma
Colors of HoPE
Hi! I’m Sarah from Leicester, England. I was diagnosed as an adult, in 2016, with Lobar HPE an Rhombencephalosynapsis. I love to sing and was honoured to be contacted by Leslie from Families for HoPE and asked if I would like to record a song for all of our HoPE children and their loved ones. …
Posted: July 22, 2019 by CharlieDawns momma
Roxanne Steele
Written by Roxanne Steele Growing up in Indiana in the 1970’s and 80’s, I have to admit I never encountered many people who were different. Yes different races and economic factors but not anyone with any real disability.
Posted: July 3, 2019 by CharlieDawns momma
Not Broken
She is not broken She does not need fixing
Posted: April 15, 2019 by CharlieDawns momma
Exhausted
For the exhausted mom who hides a few minutes to cry in the bathroom… For the mom hidden in the bathroom, because she needs a few minutes of tranquility while slipping tears from her eyes.
Posted: March 28, 2019 by CharlieDawns momma
A Wish With Wings
By: Kelli Aardal Goin The news that no parent wants to hear,
Posted: March 27, 2019 by CharlieDawns momma
If there were a cure
If there were a cure.