Category: Inspiration


2018 Conference Update

Author, Christopher de Vinck to deliver keynote address

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Pearl Joy Brown

Last week, Pearl Joy Brown’s dad, Eric Brown, was asked to speak at a conference in Washington, DC.  Thank you, Eric, for sharing your humble spirit, your sincere and heartfelt words, and your beautiful photos.

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I run 4 Michael/Hannah

Lynton Dawson is a triathlete from the UK. Hannah Smith is a child with HPE from the US. They have never met; however, they have a very special bond.

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Living with a special kid

Hello, I’m Virginia, I have a little girl, Violeta, (3 years) with HPE semilobar and we live in Buenos Aires. She’s a cutie and she doesn’t have health issues (touch wood). Of course she has delays. I write a blog about…

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HPE and other wacky goodness

HPE Awareness Week 2016

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Deepest Sympathy 

Chance Urschel obituary “On behalf of all HPE families past and present, Families for HoPE extends its deepest condolences, love and admiration to the family of Chance Urschel. Chance is the child who brought HoPE to the hopeless, and his…

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Toughest Marathon

I Run 4 Michael organization  Hi. My name is Sarah Smith. Many of you know me as Hannalise Rose’s Momma. Hanna has Semi-lobar Holoprosencephaly, Microcephaly, Cerebral Palsy, and Diabetes Insipidus. We found out at 27 weeks gestation about her condition. …

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Reflections

One more year loaded with sweet recollections and cheerful times have passed. Wonderful people have made our year exceptionally uncommon, and I wish this continues forever. With each sweet person around, each minute is a unique event for us. I…

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HoPE 4 Kate

     Hope is a word I never thought too much about, just a word without much meaning. But since 2013 it is a word with a whole lot of meaning, but then written as HoPE. On July 7th 2013…

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Can you define normal for me?

Can You Define Normal for Me? There’s More to His Life Than a Wheelchair September 2015 BY A.J. ZENDER On my first day home from college this past spring, bracing myself to live again with my parents as a 22-year-old…

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Our mascot needs a name . . .

Before Families for HoPE was formed in 2006, there’s a character/animal that has served as our unofficial mascot in the HPE community, and that mascot is the frog.  It all started following the passing of Harrison Stauft, forever known as…

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Spread the word

To order, click here:  http://www.booster.com/together-in-hope Buy a shirt to spread the word

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Quality of Life

By: Eric Brown Quality of life… What a phrase! Seems like we hear it a lot in the HoPE community. Sometimes it’s from doctors during that 20-week ultrasound, as they unpack what the future may likely hold. Or maybe it’s…

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What does HoPE look like?

What does HoPE look like? By: Kelli Aardal Goin Have you ever sat and thought about how important HoPE is in our lives? While it is possible to live without a lot of things, it is impossible to live without…

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On mothers’ day . . .

No matter where you might be in your journey . . . 

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