We have all found HoPE due to the efforts of the many individuals who willingly support and encourage others throughout this journey with HPE. When you think of the word Support, is there someone who immediately comes to mind? Nominate a parent, caregiver or individual who exemplifies what it means to support others.
Posted: July 27, 2023 by Leslie, Sammy's mom
HoPE Nominations
Is there someone you know who radiates hope? Someone who makes hope contagious? Nominate a parent, caregiver or individual who exemplifies what it means to hope
Posted: July 26, 2023 by Leslie, Sammy's mom
Support Nominations
We have all found HoPE due to the efforts of the many individuals who willingly support and encourage others throughout this journey with HPE. When you think of the word Support, is there someone who immediately comes to mind? Nominate a parent, caregiver or individual who exemplifies what it means to support others.
Posted: July 25, 2023 by Leslie, Sammy's mom
Advocate Nominations
Nominate a parent, caregiver or individual who exemplifies what it means to advocate for their child, their family or the HPE community, in general.
Posted: November 6, 2022 by Leslie, Sammy's mom
Jaxsen Plays Football
Jaxsen Grinter loves football, and this all-inclusive flag football program at an elementary school in Kansas City is a perfect way for Jaxsen to play the sport that he loves
Posted: October 17, 2020 by Leslie, Sammy's mom
Florida Teen with HPE Receives Award
Joshua Howard, age 16, was selected by St. Petersburg College to receive the Dr. Vilma Fernandez-Zalupski Latino Academic Excellence Award for 2019-2020. This prestigious award recognizes students in grades 10 through 12 with a grade point average of 3.0 or above.
Posted: November 30, 2019 by Leslie, Sammy's mom
My friend, Rhonda
I was a baby when Rhonda came onto my life, so I don’t remember when I met her, but she was my first BFF. Growing up with Rhonda had a profound effect on my life, my personality, and my heart.
Posted: December 22, 2019 by Leslie, Sammy's mom
Honoring Brianna
Written by Leslie Harley In all of the years we have been doing the Family Conference on Holoprosencephaly, I don’t think there has been anyone in attendance who radiates such pure joy when she enters the room as Brianna Bixenman. Accompanied by her parents, Bill and Janet, then 19 year-old Brianna traveled from New Jersey …
Posted: October 24, 2019 by Leslie, Sammy's mom
Colors of HoPE
Hi! I’m Sarah from Leicester, England. I was diagnosed as an adult, in 2016, with Lobar HPE an Rhombencephalosynapsis. I love to sing and was honoured to be contacted by Leslie from Families for HoPE and asked if I would like to record a song for all of our HoPE children and their loved ones. …
Posted: July 22, 2019 by Leslie, Sammy's mom
Roxanne Steele
Written by Roxanne Steele Growing up in Indiana in the 1970’s and 80’s, I have to admit I never encountered many people who were different. Yes different races and economic factors but not anyone with any real disability.
Posted: July 3, 2019 by Leslie, Sammy's mom
Not Broken
She is not broken She does not need fixing