Category: Inspiration


Pearl Joy Brown

Last week, Pearl Joy Brown’s dad, Eric Brown, was asked to speak at a conference in Washington, DC.¬† Thank you, Eric, for sharing your humble spirit, your sincere and heartfelt words, and your beautiful photos.

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I run 4 Michael/Hannah

Lynton Dawson is a triathlete from the UK. Hannah Smith is a child with HPE from the US. They have never met; however, they have a very special bond.

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Living with a special kid

Hello, I’m Virginia, I have a little girl, Violeta, (3 years) with HPE semilobar and we live in Buenos Aires. She’s a cutie and she doesn’t have health issues (touch wood). Of course she has delays. I write a blog about…

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HPE and other wacky goodness

HPE Awareness Week 2016

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Deepest Sympathy 

Chance Urschel obituary “On behalf of all HPE families past and present, Families for HoPE extends its deepest condolences, love and admiration to the family of Chance Urschel. Chance is the child who brought HoPE to the hopeless, and his…

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Reflections

One more year loaded with sweet recollections and cheerful times have passed. Wonderful people have made our year exceptionally uncommon, and I wish this continues forever. With each sweet person around, each minute is a unique event for us. I…

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HoPE 4 Kate

     Hope is a word I never thought too much about, just a word without much meaning. But since 2013 it is a word with a whole lot of meaning, but then written as HoPE. On July 7th 2013…

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