The National Organization for Rare Disorders (NORD) just announced two new educational sessions in their Living Rare, Living Stronger patient and family forum programming webinar series: Thursday, July 30, at 3pm ET and Thursday, August 27, at 3pm ET On July 30, a discussion of insurance barriers will be held. If you are spending hours …
Looking for a chance to connect and share? We’re hosting an informal HoPE Huddle via Zoom, and we’d love to see you there! This is a relaxed space for our community to get together, catch up, and talk about the various resources available our HPE kids. If you’re new to our community, we welcome you …
Looking for a chance to connect and share? We’re hosting an informal HoPE Huddle via Zoom, and we’d love to see you there. This is a relaxed space for our community to get together, catch up, and talk about the various resources available our HPE kids. If you’re new to our community, we welcome you …
Join the fun and give hope and support to a family when they need it most! Visit gogophotocontest.com/familiesforhope to cast your vote today. Whether you vote for a spooky ghost or a dazzling fairy princess your support will bring a family miles of smiles and joy. You will also receive a dazzling, hope-filled DIY Bead …
We at Families for HoPE are sincerely thankful for the donations received last week during “Send the Love,” the micro-giving campaign by Scott Swan and WTHR Channel 13 (NBC) in Indianapolis. We were honored to be spotlighted as the designated charity for the campaign January 27th through 31st, during which 80 Central Indiana donors gave …
Do you remember a time when everything changed? You had just heard the word “holoprosencephaly” or the phrase “incompatible with life,” and you were given no hope for your beloved child. At that moment and, perhaps, for some time afterward, you were confused, afraid, and alone. Until… You found Families for HoPE. You were welcomed …
A dad has special dreams of enjoying good times with their son – from pitching a baseball or football or walking the dog together to hitting the local skateboard park. No dad envisions their son receiving a life-changing diagnosis or almost losing that beloved child twice.
Our daughter Grace Inez was a blue-eyed beauty with long eyelashes, perfect eyebrows, and the cutest dimple in her chin. Her captivating smile lit up every room she was in. Her laugh was contagious, and her sweet voice was music to our ears.
A Life Well Lived, A Legacy of Love Written By Lauren Edwards The Beginning Collins Monroe Brown changed the world more in her few short years on earth than many of us can even hope to in an entire lifetime. Collins was our first child and was born January 27, 2019. At the 20-week anatomy …
Posted: July 16, 2026 by lyndot71
New NORD Series – Living Rare, Living Stronger
The National Organization for Rare Disorders (NORD) just announced two new educational sessions in their Living Rare, Living Stronger patient and family forum programming webinar series: Thursday, July 30, at 3pm ET and Thursday, August 27, at 3pm ET On July 30, a discussion of insurance barriers will be held. If you are spending hours …
Posted: July 8, 2026 by lyndot71
Join Us on July 28th for the HoPE Huddle
Looking for a chance to connect and share? We’re hosting an informal HoPE Huddle via Zoom, and we’d love to see you there! This is a relaxed space for our community to get together, catch up, and talk about the various resources available our HPE kids. If you’re new to our community, we welcome you …
Posted: June 9, 2026 by lyndot71
Join Us for the HoPE Huddle
Looking for a chance to connect and share? We’re hosting an informal HoPE Huddle via Zoom, and we’d love to see you there. This is a relaxed space for our community to get together, catch up, and talk about the various resources available our HPE kids. If you’re new to our community, we welcome you …
Posted: November 4, 2025 by lyndot71
Vote for Your Favorite Halloween Costume Contest Cutie!
Join the fun and give hope and support to a family when they need it most! Visit gogophotocontest.com/familiesforhope to cast your vote today. Whether you vote for a spooky ghost or a dazzling fairy princess your support will bring a family miles of smiles and joy. You will also receive a dazzling, hope-filled DIY Bead …
Posted: June 7, 2025 by lyndot71
Meet Autumn Brandt – Dedicated Mom and FFH Volunteer
Posted: February 6, 2025 by lyndot71
Thank you, Donors, For Sharing the Hope in Holoprosencephaly
We at Families for HoPE are sincerely thankful for the donations received last week during “Send the Love,” the micro-giving campaign by Scott Swan and WTHR Channel 13 (NBC) in Indianapolis. We were honored to be spotlighted as the designated charity for the campaign January 27th through 31st, during which 80 Central Indiana donors gave …
Posted: November 8, 2024 by lyndot71
We’re Better Together – Giving Tuesday, December 3rd
Do you remember a time when everything changed? You had just heard the word “holoprosencephaly” or the phrase “incompatible with life,” and you were given no hope for your beloved child. At that moment and, perhaps, for some time afterward, you were confused, afraid, and alone. Until… You found Families for HoPE. You were welcomed …
Posted: March 28, 2024 by lyndot71
Celebrating HPE Awareness Week, Sharing Our Families’ Stories
A dad has special dreams of enjoying good times with their son – from pitching a baseball or football or walking the dog together to hitting the local skateboard park. No dad envisions their son receiving a life-changing diagnosis or almost losing that beloved child twice.
Posted: March 27, 2024 by lyndot71
Celebrating HPE Awareness Week, Sharing Our Families’ Stories
Our daughter Grace Inez was a blue-eyed beauty with long eyelashes, perfect eyebrows, and the cutest dimple in her chin. Her captivating smile lit up every room she was in. Her laugh was contagious, and her sweet voice was music to our ears.
Posted: March 26, 2024 by lyndot71
Celebrating HPE Awareness Week, Sharing Our Families’ Stories
A Life Well Lived, A Legacy of Love Written By Lauren Edwards The Beginning Collins Monroe Brown changed the world more in her few short years on earth than many of us can even hope to in an entire lifetime. Collins was our first child and was born January 27, 2019. At the 20-week anatomy …