About Us

Families for HoPE, Inc. is a 501(c)(3) nonprofit organization formed to address the needs of families and children diagnosed with holoprosencephaly (HPE) and related brain malformations.

Families for HoPE seeks to provide support for all stages in the HPE journey:

  • Families of unborn infants receiving a diagnosis of HPE
  • Families of children with a diagnosis of HPE
  • Families grieving the death of a child with a diagnosis of HPE