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Guest Authors

Blog posts written by members of our HPE family

My friend, Rhonda

I was a baby when Rhonda came onto my life, so I don’t remember when I met her, but she was my first BFF.  Growing up with Rhonda had a profound effect on my life, my personality, and my heart.

Colors of HoPE

Hi!  I’m Sarah from Leicester, England.  I was diagnosed as an adult, in 2016, with Lobar HPE an Rhombencephalosynapsis.  I love to sing and was honoured to be contacted by Leslie from Families for HoPE and asked if I would like to record a song for all of our HoPE children and their loved ones. …

Roxanne Steele

Written by Roxanne Steele Growing up in Indiana in the 1970’s and 80’s, I have to admit I never encountered many people who were different.  Yes different races and economic factors but not anyone with any real disability. 

Alone No More

As I walked into the conference center that Sunday night in 2018, seeing all those kiddos–some I recognized, many I didn’t–but, it felt like I was home with “my people”.

Grandparents View

Written by Pete Lawler While I’m preparing to complete the 2020 conference registration for Dorothy and I, we were talking about last year’s event. 2018 was my second conference. The first was in 2008 when Chloe was a baby, and I learned so much about HPE and about my granddaughter. Like a lot of families, …

Words

By: Kelli Aardal Goin Words she never got to say, However communicated in a big way.