Families for HoPE, Inc.

Sharing the HoPE in HoloProsEncephaly


Families for HoPE, Inc. is a 501(c)(3) nonprofit organization formed to address the needs of families and children diagnosed with holoprosencephaly (HPE) and related brain malformations.





Families for HoPE seeks to provide support for all stages in the HPE journey:

Families of unborn infants receiving a diagnosis of HPE


Families of newborns diagnosed with HPE at birth


Families of infants with delay in diagnosis of HPE


Families of children with a diagnosis of HPE


Families of adults with a diagnosis of HPE


Families grieving the loss of a child with a diagnosis of HPE

The Families for HoPE logo was designed by Shira Arnold, mother of Cayden. The three family groupings represent various stages in the HPE journey--prenatal diagnosis, infant diagnosed with HPE, and older child diagnosed with HPE. Each family is holding a balloon. As many of our greiving families find comfort in the act of releasing balloons in memory of their beloved children, these balloons represent the infants and children with HPE who are no longer with us.