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Thank you for visiting our website, and we welcome you to join us in this journey of HoPE.

We hope you will find a broad range of entries from informative pieces to inspiring stories of HoPE!  Our mission is to educate, support and encourage those whose lives have been touched by Holoprosencephaly.

Please join with us in sharing the HoPE in Holoprosencephaly!

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Roxanne Steele

August 3, 2019

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Written by Roxanne Steele Growing up in Indiana in the 1970’s and 80’s, I have to admit I never encountered many people who were different.  Yes different races and economic factors but not anyone with any real disability. 

Alone No More

August 3, 2019

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As I walked into the conference center that Sunday night in 2018, seeing all those kiddos–some I recognized, many I didn’t–but, it felt like I was home with “my people”.

Grandparents View

August 3, 2019

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While I’m preparing to complete the 2020 conference registration for Dorothy and I, we were talking about last years event.  2018 was my second conference.  The first was in 2008 when Chloe was a baby and I learned so much about HPE and about my granddaughter (pictured).  

Words

August 3, 2019

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By: Kelli Aardal Goin Words she never got to say, However communicated in a big way.

What HoPE means to us

July 31, 2019

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What is it really…this HOPE? And why is it so important? Hope is something we can feel, but hope is also an intentional choice. Definition; hope  /hōp/ a feeling of expectation and desire for a certain thing to happen.”he looked through her belongings in the hope of coming across some information” synonyms:  aspiration, desire, wish, expectation, ambition, …

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Never Lose HoPE

June 19, 2019

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Guest Author: Melissa, Isaiah’s mom Our journey started on January 11, 2016 when we found out we we were pregnant with Isaiah. When I was 18 weeks, my primary OBGYN noticed something wrong with Isaiah’s head. He wasn’t sure what was going on, so he sent us to a maternal fetal medicine specialist. This doctor …

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