About Us

Families for HoPE, Inc. is a 501(c)(3) nonprofit organization formed to address the needs of families and children diagnosed with holoprosencephaly (HPE) and related brain malformations. Families for HoPE seeks to provide support for all stages in the HPE journey:…

What is HPE?

If you are new to this term, you may find yourself wanting to know more! Well, look no further, because we have an explanation for you!  Ho•lo•pros•en•ceph•a•ly \ho-lo-PROS-en-sef-a-le\ is a congenital brain disorder caused by a failure of an embryo’s…

Donate Now

Families for HoPE, Inc. is a 501(c)(3) nonprofit organization, and your donation is tax-deductible to the extent permitted by law. If you would prefer to make a donation via check, please make your check payable to “Families for HoPE, Inc.” and…

Embrace the Journey

2018 Families for HoPE Conference 

Families for HoPE, Inc. would like you to “Save the Date” for the 2018 Family Conference on Holoprosencephaly to be held at the Great Wolf Lodge and Conference Center in Cincinnati/Mason, Ohio. The conference will be held from check-in on…

Laughing Matters

I am often asked why I smile so much.  Often, these inquisitive ones are looking only at the difficulties in caring for a medically fragile child as a 24/7 job. I respond simply, “I can either cry about it or laugh…

New Friends

HPE siblings embrace the journey

I run 4 Michael/Hannah

Lynton Dawson is a triathlete from the UK. Hannah Smith is a child with HPE from the US. They have never met; however, they have a very special bond.

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Living with a special kid

Hello, I’m Virginia, I have a little girl, Violeta, (3 years) with HPE semilobar and we live in Buenos Aires. She’s a cutie and she doesn’t have health issues (touch wood). Of course she has delays. I write a blog about…

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HPE and other wacky goodness

HPE Awareness Week 2016

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