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About Us

Families for HoPE, Inc. is a 501(c)(3) nonprofit organization formed to address the needs of families and children diagnosed with holoprosencephaly (HPE) and related brain malformations. Families for HoPE seeks to provide support for all stages in the HPE journey:…

What is HPE?

If you are new to this term, you may find yourself wanting to know more! Well, look no further, because we have an explanation for you!  Ho•lo•pros•en•ceph•a•ly \ho-lo-PROS-en-sef-a-le\ is a congenital brain disorder caused by a failure of an embryo’s…

Donate Now

Families for HoPE, Inc. is a 501(c)(3) nonprofit organization, and your donation is tax-deductible to the extent permitted by law. If you would prefer to make a donation via check, please make your check payable to “Families for HoPE, Inc.” and…

HPE Conference

2020 Conference Registration

Registration is now open for the 2020 Family Conference on Holoprosencephaly

Always Remembered

As we approach the 2018 Family Conference on Holoprosencephaly, we want to share with you how we will honor and remember those we love who have passed away with HPE. As you may know, at each of our past family conferences on HPE,…

Where we are

By Nikki Tuma Here is a little story about Kreighton that got us to where we are today : Kreighton was born July 25, 2013.. when we found out we were pregnant with him, there were no abnormalities that arose…

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What HoPE means to us

What is it really…this HOPE? And why is it so important? Hope is something we can feel, but hope is also an intentional choice. Definition; hope  /hōp/ a feeling of expectation and desire for a certain thing to happen.”he looked through…

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