About Us

Families for HoPE, Inc. is a 501(c)(3) nonprofit organization formed to address the needs of families and children diagnosed with holoprosencephaly (HPE) and related brain malformations. Families for HoPE seeks to provide support for all stages in the HPE journey:…

lobar HPE scan

What is HPE?

If you are new to this term, you may find yourself wanting to know more! Well, look no further, because we have an explanation for you!  Ho•lo•pros•en•ceph•a•ly \ho-lo-PROS-en-sef-a-le\ is a congenital brain disorder caused by a failure of an embryo’s…


Donate Now

Families for HoPE, Inc. is a 501(c)(3) nonprofit organization, and your donation is tax-deductible to the extent permitted by law. If you would prefer to make a donation via check, please make your check payable to “Families for HoPE, Inc.” and…

Brackets For Good 2016

Keeping Score for BFG Tournament

Our sincere gratitude to those who have scored points for Families for HoPE in our run in the Brackets For Good tournament! Dr. Vicky Vandervort Buck Thomas Amber Keel, in memory of my son Hunter Greyson Keel. Love you bud….

BFG Fans around the WORLD

Let’s spread the word! Let Brackets For Good know that we have fans all over the WORLD!! Print out the fan paper and fill in where you are from! Then post it on your social media with #HoPE #BFGIndy   Click…


Brackets For Good

Please help Families for HoPE to compete in the Brackets For Good tournament


I run 4 Michael/Hannah

Lynton Dawson is a triathlete from the UK. Hannah Smith is a child with HPE from the US. They have never met; however, they have a very special bond.

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Living with a special kid

Hello, I’m Virginia, I have a little girl, Violeta, (3 years) with HPE semilobar and we live in Buenos Aires. She’s a cutie and she doesn’t have health issues (touch wood). Of course she has delays. I write a blog about…

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HPE and other wacky goodness

HPE Awareness Week 2016

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