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About Us

Families for HoPE, Inc. is a 501(c)(3) nonprofit organization formed to address the needs of families and children diagnosed with holoprosencephaly (HPE) and related brain malformations. Families for HoPE seeks to provide support for all stages in the HPE journey:…

What is HPE?

If you are new to this term, you may find yourself wanting to know more! Well, look no further, because we have an explanation for you!  Ho•lo•pros•en•ceph•a•ly \ho-lo-PROS-en-sef-a-le\ is a congenital brain disorder caused by a failure of an embryo’s…

Donate Now

Families for HoPE, Inc. is a 501(c)(3) nonprofit organization, and your donation is tax-deductible to the extent permitted by law. If you would prefer to make a donation via check, please make your check payable to “Families for HoPE, Inc.” and…

HPE Conference

Always Remembered

As we approach the 2018 Family Conference on Holoprosencephaly, we want to share with you how we will honor and remember those we love who have passed away with HPE. As you may know, at each of our past family conferences on HPE,…

Register by May 1

May 1 is the deadline to register for the 2018 Family Conference on Holoprosencephaly. If you still need to register or you have registered but need to modify your registration, CLICK HERE If you have any questions, please contact Leslie…

2018 Conference Update

Author, Christopher de Vinck to deliver keynote address

2018 Conference Update

Author, Christopher de Vinck to deliver keynote address

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Pearl Joy Brown

Last week, Pearl Joy Brown’s dad, Eric Brown, was asked to speak at a conference in Washington, DC.  Thank you, Eric, for sharing your humble spirit, your sincere and heartfelt words, and your beautiful photos.

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