About Us

Families for HoPE, Inc. is a 501(c)(3) nonprofit organization formed to address the needs of families and children diagnosed with holoprosencephaly (HPE) and related brain malformations. Families for HoPE seeks to provide support for all stages in the HPE journey:…

lobar HPE scan

What is HPE?

If you are new to this term, you may find yourself wanting to know more! Well, look no further, because we have an explanation for you!  Ho•lo•pros•en•ceph•a•ly \ho-lo-PROS-en-sef-a-le\ is a congenital brain disorder caused by a failure of an embryo’s…


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Families for HoPE, Inc. is a 501(c)(3) nonprofit organization, and your donation is tax-deductible to the extent permitted by law. If you would prefer to make a donation via check, please make your check payable to “Families for HoPE, Inc.” and…

HPE Conference

2016 Conference Registration Frequently Asked Questions

2016 Conference FAQ Q:  If I pay online for the conference fee, do I still need to complete the separate registration form and mail or email to Roxanne Steele/Families for HoPE? A:  Yes, each family needs to complete a registration…

2016 Conference logo

Registration is open for 2016 Family Conference on HPE

We want you to join us as A Family of HoPE at the 2016 Family Conference on Holoprosencephaly in Dallas, Texas on July 12-15 presented by Families for HoPE, Inc. and Carter Centers for Brain Research in Holoprosencephaly and Related…

2016 Conference logo

2016 Conference Announcement

Families for HoPE announces exciting news

Living with a special kid

Hello, I’m Virginia, I have a little girl, Violeta, (3 years) with HPE semilobar and we live in Buenos Aires. She’s a cutie and she doesn’t have health issues (touch wood). Of course she has delays. I write a blog about…

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HPE and other wacky goodness

HPE Awareness Week 2016

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Deepest Sympathy 

Chance Urschel obituary “On behalf of all HPE families past and present, Families for HoPE extends its deepest condolences, love and admiration to the family of Chance Urschel. Chance is the child who brought HoPE to the hopeless, and his…

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