Over the past several months, the board of directors of Families for HoPE has been closely monitoring the coronavirus pandemic with the health, safety and well-being of our HPE families in mind. Of particular concern is the instability of the pandemic, the most-recent evidence that children may be vulnerable to a multi-system inflammatory syndrome triggered by COVID-19 infections, and the economic impact on our HPE families.
After careful consideration, we have arrived at the difficult decision to cancel the Family Conference on Holoprosencephaly which had been rescheduled for June 2021 (postponed from June 2020). We are heartbroken to make this decision as in-person conferences hold so much value for the HPE families who are able to attend, but we believe this is the best choice at this time. Families currently registered for the canceled conference will be contacted in the coming days to arrange a refund of registration fees.
Please enjoy these memories from the 2018 conference.
Are you seeking hope? You are not alone, and we can connect you with other HPE families through our online support groups and through our Parent-to-Parent program.