Families for HoPE, Inc.As we approach the 2018 Family Conference on Holoprosencephaly, we want to share with you how we will honor and remember those we love who have passed away with HPE. As you may know, at each of our past family conferences on HPE,…
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2018 Conference Update
Author, Christopher de Vinck to deliver keynote address
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Sponsorship Opportunities Available
If you or someone you know might be interested in becoming a conference sponsor, please let us know!
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Registration is open!
Register for the 2018 Family Conference on Holoprosencephaly
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Sisterhood of the Traveling Dress
Embracing the journey when you’ve been asked to give someone the shirt off your back
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Journey Reminder
Thumbprints on our hearts
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Embrace the Journey with Carol-Lynn
An HPE mom shares how she has embraced the journey with HPE
About Us
Families for HoPE, Inc. is a 501(c)(3) nonprofit organization formed to address the needs of families and children diagnosed with holoprosencephaly (HPE) and related brain malformations. Families for HoPE seeks to provide support for all stages in the HPE journey:…
What is HPE?
If you are new to this term, you may find yourself wanting to know more! Well, look no further, because we have an explanation for you! Ho•lo•pros•en•ceph•a•ly \ho-lo-PROS-en-sef-a-le\ is a congenital brain disorder caused by a failure of an embryo’s…
Donate Now
Families for HoPE, Inc. is a 501(c)(3) nonprofit organization, and your donation is tax-deductible to the extent permitted by law. If you would prefer to make a donation via check, please make your check payable to “Families for HoPE, Inc.” and…
HPE Conference
Register by May 1
May 1 is the deadline to register for the 2018 Family Conference on Holoprosencephaly. If you still need to register or you have registered but need to modify your registration, CLICK HERE If you have any questions, please contact Leslie…
2018 Conference Update
Author, Christopher de Vinck to deliver keynote address
Pearl Joy Brown
Last week, Pearl Joy Brown’s dad, Eric Brown, was asked to speak at a conference in Washington, DC. Thank you, Eric, for sharing your humble spirit, your sincere and heartfelt words, and your beautiful photos.
I run 4 Michael/Hannah
Lynton Dawson is a triathlete from the UK. Hannah Smith is a child with HPE from the US. They have never met; however, they have a very special bond.