This is the continuation of ‘The Thirteen Days of Arthur,’ a series of writings by Melissa Mouzin-Bennett, mom to Arthur Hancock… ********************* As I promised, the thirteen days of Arthur are about important virtues he taught us. Today’s virtue is to always look your best. I know you’re probably thinking that is not necessarily important to …
Day 2: We got by with a little help from our friends…
This is a continuation of a series of writings by Melissa Mouzin-Bennett, mom to Arthur Hancock. ********************* So as soon as we got our prenatal diagnosis that our baby was going to have a terminal illness, my instinct was to seclude our little family in a pod so no one and nothing could get to …
The Thirteen Days of Arthur…
Over the course of the next 13 days, we will share the writings of Melissa Mouzin-Bennett. Roy Hancock and Melissa Bennett are the parents of precious Arthur who was born with HPE. In a memorial tribute to their beloved son, Melissa will share in her own words the things that Arthur taught his family about …
I’m thankful for…
the internet. Without it, my journey of HoPE would have left me feeling so isolated and alone. What are you thankful for? Happy Thanksgiving Day from your friends at Families for HoPE
Sweet Inspiration
It only takes one look at the smile on 3 year-old Maeve Tierney’s face to see that she’s full of sweetness, and apparently, that’s a family trait. Maeve’s 8 year-old cousin, Cece recently used sweet treats to help raise funds and raise awareness of HPE. At Craneville Elementary School in Dalton, Massachusetts, Cece’s third-grade teacher …
Some Kid
Throughout my journey in the HPE world, I have had the privilege to personally meet many individuals with HPE. So often, I find that I don’t even have the words to adequately describe the encounter because I’m so humbled by the experience. I can recite the definition of holoprosencephaly forward and backward in my sleep; …