Important Update from Families for HoPE
After careful consideration, we have arrived at the difficult decision to cancel the Family Conference on Holoprosencephaly which had been rescheduled for June 2021 (postponed from June 2020).
Update on 2020 Family Conference on Holoprosencephaly
Due to the Corona Virus crisis in the United States, the board of directors of Families for HoPE, Inc. have made the decision to postpone the Family Conference on Holoprosencephaly to be held in June 2020. We have worked with Great Wolf Lodge & Conference Center in Mason, Ohio to reschedule the conference and have …
Honoring Brianna
Written by Leslie Harley In all of the years we have been doing the Family Conference on Holoprosencephaly, I don’t think there has been anyone in attendance who radiates such pure joy when she enters the room as Brianna Bixenman. Accompanied by her parents, Bill and Janet, then 19 year-old Brianna traveled from New Jersey …
Wonderful memories from the 2018 Family Conference on HPE!
Video highlights from the 2018 Family Conference on Holoprosencephaly
Alone No More
As I walked into the conference center that Sunday night in 2018, seeing all those kiddos–some I recognized, many I didn’t–but, it felt like I was home with “my people”.
Grandparents View
Written by Pete Lawler While I’m preparing to complete the 2020 conference registration for Dorothy and I, we were talking about last year’s event. 2018 was my second conference. The first was in 2008 when Chloe was a baby, and I learned so much about HPE and about my granddaughter. Like a lot of families, …
Conference Registration Fee Payment
2020 Family Conference on Holoprosencephaly Great Wolf Lodge & Conference Center – Mason, Ohio June 14-18, 2020
Always Remembered
As we approach the 2018 Family Conference on Holoprosencephaly, we want to share with you how we will honor and remember those we love who have passed away with HPE. As you may know, at each of our past family conferences on HPE, we have had a memorial balloon release. The balloon releases are lovely and special for all of …