Families for HoPE, Inc.
446Days
21Hours
32Minutes
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Category: HPE Conference
Always Remembered
As we approach the 2018 Family Conference on Holoprosencephaly, we want to share with you how we will honor and remember those we love who have passed away with HPE. As you may know, at each of our past family conferences on HPE,…
Read MoreSponsorship Opportunities Available
If you or someone you know might be interested in becoming a conference sponsor, please let us know!
Read MoreA lasting memorial
As we approach Holoprosencephaly Awareness Week on March 27-April 2, we wanted to find a special and lasting way to memorialize all of our precious children who have passed away with HPE. As you may know, at each of our…
Read MoreSisterhood of the Traveling Dress
Embracing the journey when you’ve been asked to give someone the shirt off your back
Read MoreEmbrace the Journey with Carol-Lynn
An HPE mom shares how she has embraced the journey with HPE
Read MoreJourney of HoPE to Dallas
In July 2016, over 70 HPE families embarked on a journey from all corners of the U.S. to Dallas, Texas for the 2016 Family Conference on HPE. Held biennially, the conference is a collaborative endeavor among Families for HoPE, the…
Read MoreConference Workshops
Do It Yourself Sensory Ideas – Come learn about our sensory system and its role in development and daily activities. Come find your sensory preferences. Families will work together to create, try and share sensory activities that can be used…
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