Category: HPE Conference


New Friends

HPE siblings embrace the journey

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A lasting memorial

As we approach Holoprosencephaly Awareness Week on March 27-April 2, we wanted to find a special and lasting way to memorialize all of our precious children who have passed away with HPE. As you may know, at each of our…

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Have Prom, Will Travel

Embrace the journey and dance

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The beauty 

Embrace the beauty of the journey

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Family 

Embrace the Journey with Harley’s family

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Sisterhood of the Traveling Dress

Embracing the journey when you’ve been asked to give someone the shirt off your back

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Embrace the Journey with Carol-Lynn

An HPE mom shares how she has embraced the journey with HPE

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Journey of HoPE to Dallas

In July 2016, over 70 HPE families embarked on a journey from all corners of the U.S. to Dallas, Texas for the 2016 Family Conference on HPE.  Held biennially, the conference is a collaborative endeavor among Families for HoPE, the…

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How Families for HoPE has saved my family

Written by James Pruitt, HPE Dad

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Conference Workshops 

Do It Yourself Sensory Ideas – Come learn about our sensory system and its role in development and daily activities. Come find your sensory preferences. Families will work together to create, try and share sensory activities that can be used…

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2016 Conference Registration Frequently Asked Questions

2016 Conference FAQ Q:  If I pay online for the conference fee, do I still need to complete the separate registration form and mail or email to Roxanne Steele/Families for HoPE? A:  Yes, each family needs to complete a registration…

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Registration is open for 2016 Family Conference on HPE

We want you to join us as A Family of HoPE at the 2016 Family Conference on Holoprosencephaly in Dallas, Texas on July 12-15 presented by Families for HoPE, Inc. and Carter Centers for Brain Research in Holoprosencephaly and Related…

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2016 Conference Announcement

Families for HoPE announces exciting news

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2016 Family Conference on Holoprosencephaly

Save the dates of July 12-15, 2016 for the next Family Conference on Holoprosencephaly sponsored by Families for HoPE, Inc. in collaboration with the Carter Centers for Brain Research in Holoprosencephaly and Related Malformations! Families for HoPE is thrilled to…

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2014 Family Conference on HPE

The 2014 Family Conference on HPE was held in Dallas, Texas on October 2-4.  Held at the Texas Scottish Rite Hospital for Children Conference Center, over 60 HPE families gathered for the conference sponsored by Families for HoPE in collaboration…

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