As we approach Holoprosencephaly Awareness Week on March 27-April 2, we wanted to find a special and lasting way to memorialize all of our precious children who have passed away with HPE. As you may know, at each of our Family Conferences on HPE we do a memorial balloon release, and each balloon carries a …
Posted: March 31, 2018 by Leslie, Sammy's mom
2018 Conference Update
Author, Christopher de Vinck to deliver keynote address
Posted: March 26, 2018 by Leslie, Sammy's mom
Sponsorship Opportunities Available
If you or someone you know might be interested in becoming a conference sponsor, please let us know!
Posted: March 8, 2018 by Leslie, Sammy's mom
New Friends
HPE siblings embrace the journey
Posted: June 15, 2017 by Leslie, Sammy's mom
Registration is open!
Register for the 2018 Family Conference on Holoprosencephaly
Posted: March 9, 2017 by Leslie, Sammy's mom
A lasting memorial
As we approach Holoprosencephaly Awareness Week on March 27-April 2, we wanted to find a special and lasting way to memorialize all of our precious children who have passed away with HPE. As you may know, at each of our Family Conferences on HPE we do a memorial balloon release, and each balloon carries a …
Posted: March 7, 2017 by Leslie, Sammy's mom
Have Prom, Will Travel
Embrace the journey and dance
Posted: March 5, 2017 by CharlieDawns momma
The beauty
Embrace the beauty of the journey
Posted: March 3, 2017 by CharlieDawns momma
Family
Embrace the Journey with Harley’s family
Posted: March 2, 2017 by CharlieDawns momma
Sisterhood of the Traveling Dress
Embracing the journey when you’ve been asked to give someone the shirt off your back
Posted: February 27, 2017 by CharlieDawns momma
Embrace the Journey with Carol-Lynn
An HPE mom shares how she has embraced the journey with HPE