As we approach the 2018 Family Conference on Holoprosencephaly, we want to share with you how we will honor and remember those we love who have passed away with HPE. As you may know, at each of our past family conferences on HPE, we have had a memorial balloon release. The balloon releases are lovely and special for all of …
2018 Conference Update
Author, Christopher de Vinck to deliver keynote address
Sponsorship Opportunities Available
If you or someone you know might be interested in becoming a conference sponsor, please let us know!
Registration is open!
Register for the 2018 Family Conference on Holoprosencephaly
A lasting memorial
As we approach Holoprosencephaly Awareness Week on March 27-April 2, we wanted to find a special and lasting way to memorialize all of our precious children who have passed away with HPE. As you may know, at each of our Family Conferences on HPE we do a memorial balloon release, and each balloon carries a …
Sisterhood of the Traveling Dress
Embracing the journey when you’ve been asked to give someone the shirt off your back