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My Amazing life, at least it is to me!

By Heather Rinard The blades of the grass softly whispered their song in my ear, as I laid sprawled out on the checkered cloth, enjoying our teddy bear picnic. Momma made our childhood magical. From tea parties in the garden,…

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There is always HoPE

By Amy L. Springer, Guest Author I learned that I was pregnant February 24, 1994. I had a sonogram like normal and all was good. I later started to have problems with bleeding, so we did another sonogram, which showed…

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Please do not stare . . .

We have all been there . . . in a public place with our child . . . and we feel the stares.  What do you do? Kellie Moore, mom to 4 year-old JT, from Bowling Green, Kentucky recently created…

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Halloween Costumes

Do you have a creative idea for a Halloween costume for your child with HPE?  Have you found a way to incorporate your child’s wheelchair or stroller into their Halloween costume? We would love to see some of our HPE…

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