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My Amazing life, at least it is to me!

  Posted on by CharlieDawns momma

By Heather Rinard The blades of the grass softly whispered their song in my ear, as I laid sprawled out on the checkered cloth, enjoying our teddy bear picnic. Momma made our childhood magical. From tea parties in the garden,…

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 Category: General      Tags: , , , , , , , ,

Never Lose HoPE

  Posted on by CharlieDawns momma

Guest Author: Melissa, Isaiah’s mom Our journey started on January 11, 2016 when we found out we we were pregnant with Isaiah. When I was 18 weeks, my primary OBGYN noticed something wrong with Isaiah’s head. He wasn’t sure what…

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 Category: Embrace the Journey, Guest Authors      Tags: , , , , , , , , , , , , ,

There is always HoPE

  Posted on by CharlieDawns momma

  2 Comments

By Amy L. Springer, Guest Author I learned that I was pregnant February 24, 1994. I had a sonogram like normal and all was good. I later started to have problems with bleeding, so we did another sonogram, which showed…

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 Category: Guest Authors      Tags: , , , , , , , , , ,

Please do not stare . . .

  Posted on by Leslie, Sammy's mom

We have all been there . . . in a public place with our child . . . and we feel the stares.  What do you do? Kellie Moore, mom to 4 year-old JT, from Bowling Green, Kentucky recently created…

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 Category: Leslie, Perspectives      Tags: , , , ,

Halloween Costumes

  Posted on by Leslie, Sammy's mom

Do you have a creative idea for a Halloween costume for your child with HPE?  Have you found a way to incorporate your child’s wheelchair or stroller into their Halloween costume? We would love to see some of our HPE…

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 Category: Holidays, Leslie      Tags: , , , ,

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