Tag: disability
Written by Roxanne Steele Growing up in Indiana in the 1970’s and 80’s, I have to admit I never encountered many people who were different. Yes different races and economic factors but not anyone with any real disability.
She is not broken She does not need fixing
By Heather Rinard The blades of the grass softly whispered their song in my ear, as I laid sprawled out on the checkered cloth, enjoying our teddy bear picnic. Momma made our childhood magical. From tea parties in the garden, family night games of drawing in the dark and Red hots in our hot cocoa …
Guest Author: Melissa, Isaiah’s mom Our journey started on January 11, 2016 when we found out we we were pregnant with Isaiah. When I was 18 weeks, my primary OBGYN noticed something wrong with Isaiah’s head. He wasn’t sure what was going on, so he sent us to a maternal fetal medicine specialist. This doctor …
Category: Embrace the Journey, Guest Authors Tags: #familiesforhope, #holoprosencephaly #hope, #sharingHoPE, awareness, Carter Centers, diagnosis, disability, Embrace the Journey, family, holoprosencephaly, HoPE, HPE, prenatal, special needs
By Amy L. Springer, Guest Author I learned that I was pregnant February 24, 1994. I had a sonogram like normal and all was good. I later started to have problems with bleeding, so we did another sonogram, which showed the baby to have a “lemon-shaped head” and I had placenta previa so a follow …
Category: Guest Authors Tags: #holoprosencephaly #hope, diagnosis, disability, Embrace the Journey, happy, holoprosencephaly, HoPE, HPE, journey, laughter, special needs
We have all been there . . . in a public place with our child . . . and we feel the stares. What do you do? Kellie Moore, mom to 4 year-old JT, from Bowling Green, Kentucky recently created this t-shirt for those “special” occasions. That’s one courageous and creative mom you have, JT! …
Do you have a creative idea for a Halloween costume for your child with HPE? Have you found a way to incorporate your child’s wheelchair or stroller into their Halloween costume? We would love to see some of our HPE kiddos all decked out in their Halloween attire. Send us your pictures at info@FamiliesforHoPE.org, and …
Tag: disability
Roxanne Steele
Posted: July 22, 2019 by Leslie, Sammy's mom
Written by Roxanne Steele Growing up in Indiana in the 1970’s and 80’s, I have to admit I never encountered many people who were different. Yes different races and economic factors but not anyone with any real disability.
Category: Guest Authors, Inspiration Tags: #holoprosencephaly #hope, #sharingHoPE, awareness, disability, holoprosencephaly, HoPE, HPE, life, special needs
Not Broken
Posted: July 3, 2019 by Leslie, Sammy's mom
She is not broken She does not need fixing
Category: Inspiration Tags: #familiesforhope, #sharingHoPE, diagnosis, disability, Embrace the Journey, family, holoprosencephaly, HoPE, HPE
My Amazing life, at least it is to me!
Posted: March 25, 2019 by Leslie, Sammy's mom
By Heather Rinard The blades of the grass softly whispered their song in my ear, as I laid sprawled out on the checkered cloth, enjoying our teddy bear picnic. Momma made our childhood magical. From tea parties in the garden, family night games of drawing in the dark and Red hots in our hot cocoa …
Category: Embrace the Journey, Perspectives Tags: #familiesforhope, #gotHoPE, #holoprosencephaly #hope, #sharingHoPE, disability, family, holoprosencephaly awareness week, siblings, special needs
Never Lose HoPE
Posted: July 30, 2018 by Leslie, Sammy's mom
Guest Author: Melissa, Isaiah’s mom Our journey started on January 11, 2016 when we found out we we were pregnant with Isaiah. When I was 18 weeks, my primary OBGYN noticed something wrong with Isaiah’s head. He wasn’t sure what was going on, so he sent us to a maternal fetal medicine specialist. This doctor …
Category: Embrace the Journey, Guest Authors Tags: #familiesforhope, #holoprosencephaly #hope, #sharingHoPE, awareness, Carter Centers, diagnosis, disability, Embrace the Journey, family, holoprosencephaly, HoPE, HPE, prenatal, special needs
There is always HoPE
Posted: January 13, 2018 by Leslie, Sammy's mom
By Amy L. Springer, Guest Author I learned that I was pregnant February 24, 1994. I had a sonogram like normal and all was good. I later started to have problems with bleeding, so we did another sonogram, which showed the baby to have a “lemon-shaped head” and I had placenta previa so a follow …
Category: Guest Authors Tags: #holoprosencephaly #hope, diagnosis, disability, Embrace the Journey, happy, holoprosencephaly, HoPE, HPE, journey, laughter, special needs
Please do not stare . . .
Posted: October 25, 2012 by Leslie, Sammy's mom
We have all been there . . . in a public place with our child . . . and we feel the stares. What do you do? Kellie Moore, mom to 4 year-old JT, from Bowling Green, Kentucky recently created this t-shirt for those “special” occasions. That’s one courageous and creative mom you have, JT! …
Category: Perspectives Tags: awareness, disability, educate, HoPE, stare
Halloween Costumes
Posted: October 20, 2011 by Leslie, Sammy's mom
Do you have a creative idea for a Halloween costume for your child with HPE? Have you found a way to incorporate your child’s wheelchair or stroller into their Halloween costume? We would love to see some of our HPE kiddos all decked out in their Halloween attire. Send us your pictures at info@FamiliesforHoPE.org, and …
Category: Holidays Tags: costume, disability, halloween, special needs, wheelchairs