Written by Roxanne Steele Growing up in Indiana in the 1970’s and 80’s, I have to admit I never encountered many people who were different. Yes different races and economic factors but not anyone with any real disability.
Last week, Pearl Joy Brown’s dad, Eric Brown, was asked to speak at a conference in Washington, DC. Thank you, Eric, for sharing your humble spirit, your sincere and heartfelt words, and your beautiful photos.
Can You Define Normal for Me? There’s More to His Life Than a Wheelchair September 2015 BY A.J. ZENDER On my first day home from college this past spring, bracing myself to live again with my parents as a 22-year-old college graduate, I walked in and saw my dad, just sitting down after work. We …
By: Eric Brown Quality of life… What a phrase! Seems like we hear it a lot in the HoPE community. Sometimes it’s from doctors during that 20-week ultrasound, as they unpack what the future may likely hold. Or maybe it’s shortly after delivery, when facts are finally being gathered and a diagnosis is given a …
Tag: life
Roxanne Steele
Posted: July 22, 2019 by CharlieDawns momma
Written by Roxanne Steele Growing up in Indiana in the 1970’s and 80’s, I have to admit I never encountered many people who were different. Yes different races and economic factors but not anyone with any real disability.
Category: Guest Authors, Inspiration Tags: #holoprosencephaly #hope, #sharingHoPE, awareness, disability, holoprosencephaly, HoPE, HPE, life, special needs
Pearl Joy Brown
Posted: January 23, 2018 by Leslie, Sammy's mom
Last week, Pearl Joy Brown’s dad, Eric Brown, was asked to speak at a conference in Washington, DC. Thank you, Eric, for sharing your humble spirit, your sincere and heartfelt words, and your beautiful photos.
Category: Child of HoPE, Guest Authors, Inspiration, Perspectives Tags: eric brown, eric brown photography, holoprosencephaly, HoPE, life, pearl joy brown, ruth
Can you define normal for me?
Posted: September 30, 2015 by CharlieDawns momma
Can You Define Normal for Me? There’s More to His Life Than a Wheelchair September 2015 BY A.J. ZENDER On my first day home from college this past spring, bracing myself to live again with my parents as a 22-year-old college graduate, I walked in and saw my dad, just sitting down after work. We …
Category: Gotta Laugh, Guest Authors, Inspiration, Perspectives Tags: AJ, life, normal, sam, wheelchair
Quality of Life
Posted: September 2, 2015 by CharlieDawns momma
By: Eric Brown Quality of life… What a phrase! Seems like we hear it a lot in the HoPE community. Sometimes it’s from doctors during that 20-week ultrasound, as they unpack what the future may likely hold. Or maybe it’s shortly after delivery, when facts are finally being gathered and a diagnosis is given a …
Category: Guest Authors, Inspiration, Perspectives Tags: beauty, HoPE, ideals, life, perspective, purpose, quality