Last week, Pearl Joy Brown’s dad, Eric Brown, was asked to speak at a conference in Washington, DC. Thank you, Eric, for sharing your humble spirit, your sincere and heartfelt words, and your beautiful photos.
Chance Urschel obituary “On behalf of all HPE families past and present, Families for HoPE extends its deepest condolences, love and admiration to the family of Chance Urschel. Chance is the child who brought HoPE to the hopeless, and his inspiration touched all of our lives.”
Hope is a word I never thought too much about, just a word without much meaning. But since 2013 it is a word with a whole lot of meaning, but then written as HoPE. On July 7th 2013 our daughter Kate was born. My pregnancy was uneventful except for a 33 week sonogram …
(Written by Michelle Alexander) 13 years ago, I laid bleeding to death. I had just seen my only baby girl for the first time without the fuzziness of an ultrasound. She was beautiful. For 7 hours, I laid in recovery while my body threaten to give up. Thinking of the only real picture I had …
(Submitted by Pat Wright) HPE is not a rare disorder in our immediate family, 50% of the children have HPE, and it has not prematurely taken the lives of the affected children, as one is 32-years old and the other is 23-years old. It has however taken us down a road of understanding and certainly …
Music Therapy for Jacqui written by Maury Smith One of the special things about my 17-year old daughter, Jacqueline, is the effect that music has on her. She loves most songs but there are a select few that cause her to make her sad face and start crying. When we were at a large family …
Maddox’s parents–Philip and Hailey Brewer–have shared Maddox’s story in honor of Holoprosencephaly Awareness Week. Check it out by clicking on the photo below . . .
Posted: March 29, 2019 by CharlieDawns momma
Words
By: Kelli Aardal Goin Words she never got to say, However communicated in a big way.
Posted: January 23, 2018 by Leslie, Sammy's mom
Pearl Joy Brown
Last week, Pearl Joy Brown’s dad, Eric Brown, was asked to speak at a conference in Washington, DC. Thank you, Eric, for sharing your humble spirit, your sincere and heartfelt words, and your beautiful photos.
Posted: March 2, 2016 by CharlieDawns momma
Deepest Sympathy
Chance Urschel obituary “On behalf of all HPE families past and present, Families for HoPE extends its deepest condolences, love and admiration to the family of Chance Urschel. Chance is the child who brought HoPE to the hopeless, and his inspiration touched all of our lives.”
Posted: December 11, 2015 by CharlieDawns momma
HoPE 4 Kate
Hope is a word I never thought too much about, just a word without much meaning. But since 2013 it is a word with a whole lot of meaning, but then written as HoPE. On July 7th 2013 our daughter Kate was born. My pregnancy was uneventful except for a 33 week sonogram …
Posted: September 10, 2014 by Leslie, Sammy's mom
The J.P. Story
This is a great blog written by a dad about one of our HPE families in Florida. http://navigatinglifesdetours.com/2014/08/30/the-j-p-story-uncertainty-before-birth/
Posted: March 16, 2014 by Leslie, Sammy's mom
Faces of HoPE
Posted: March 14, 2014 by Leslie, Sammy's mom
Meet Abigail
(Written by Michelle Alexander) 13 years ago, I laid bleeding to death. I had just seen my only baby girl for the first time without the fuzziness of an ultrasound. She was beautiful. For 7 hours, I laid in recovery while my body threaten to give up. Thinking of the only real picture I had …
Posted: March 14, 2014 by Leslie, Sammy's mom
Meet Mary and Robert
(Submitted by Pat Wright) HPE is not a rare disorder in our immediate family, 50% of the children have HPE, and it has not prematurely taken the lives of the affected children, as one is 32-years old and the other is 23-years old. It has however taken us down a road of understanding and certainly …
Posted: March 13, 2014 by Leslie, Sammy's mom
Jacqui’s Playlist
Music Therapy for Jacqui written by Maury Smith One of the special things about my 17-year old daughter, Jacqueline, is the effect that music has on her. She loves most songs but there are a select few that cause her to make her sad face and start crying. When we were at a large family …
Posted: March 12, 2014 by Leslie, Sammy's mom
Meet Maddox
Maddox’s parents–Philip and Hailey Brewer–have shared Maddox’s story in honor of Holoprosencephaly Awareness Week. Check it out by clicking on the photo below . . .