Category: Child of HoPE


Deepest Sympathy 

Chance Urschel obituary “On behalf of all HPE families past and present, Families for HoPE extends its deepest condolences, love and admiration to the family of Chance Urschel. Chance is the child who brought HoPE to the hopeless, and his…

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HoPE 4 Kate

     Hope is a word I never thought too much about, just a word without much meaning. But since 2013 it is a word with a whole lot of meaning, but then written as HoPE. On July 7th 2013…

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The J.P. Story

This is a great blog written by a dad about one of our HPE families in Florida. http://navigatinglifesdetours.com/2014/08/30/the-j-p-story-uncertainty-before-birth/

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Faces of HoPE

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Meet Abigail

(Written by Michelle Alexander) 13 years ago, I laid bleeding to death. I had just seen my only baby girl for the first time without the fuzziness of an ultrasound. She was beautiful. For 7 hours, I laid in recovery…

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Meet Mary and Robert

(Submitted by Pat Wright) HPE is not a rare disorder in our immediate family, 50% of the children have HPE, and it has not prematurely taken the lives of the affected children, as one is 32-years old and the other…

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Jacqui’s Playlist

Music Therapy for Jacqui written by Maury Smith One of the special things about my 17-year old daughter, Jacqueline, is the effect that music has on her.¬† She loves most songs but there are a select few that cause her…

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