Posted on March 21, 2021 by Leslie, Sammy's mom
Posted on January 31, 2021 by Leslie, Sammy's mom
Back by popular demand is Families for HoPE logowear. Choose among t-shirts (short-sleeve, long-sleeve and ladies cut) and hoodies in charcoal or navy. The front of the apparel is printed with the colorful Families for HoPE logo. Printed on the back is the first name of every child we know with HPE. At the top …
Updated on August 3, 2019 by CharlieDawns momma
Written by Roxanne Steele Growing up in Indiana in the 1970’s and 80’s, I have to admit I never encountered many people who were different. Yes different races and economic factors but not anyone with any real disability.
Posted on March 26, 2019 by Leslie, Sammy's mom
As HPE families, what can we do to share our HoPE and holoprosencephaly with the world?
Updated on June 19, 2019 by CharlieDawns momma
Guest Author: Melissa, Isaiah’s mom Our journey started on January 11, 2016 when we found out we we were pregnant with Isaiah. When I was 18 weeks, my primary OBGYN noticed something wrong with Isaiah’s head. He wasn’t sure what was going on, so he sent us to a maternal fetal medicine specialist. This doctor …
Posted on March 25, 2018 by Leslie, Sammy's mom
Holo. . . what?
Updated on April 27, 2018 by CharlieDawns momma
A mother and her son’s journey with Treacher Collins Syndrome and HPE
Updated on March 26, 2017 by Leslie, Sammy's mom
Coloring is a hot trend for adults, and gathering a group of individuals together to color is a unique way to raise awareness of HPE! If you are interested in using coloring as a way to raise awareness of HPE and raise funds for Families for HoPE, we can help you do so. If you …
Updated on March 27, 2015 by Leslie, Sammy's mom
Updated on March 21, 2015 by Leslie, Sammy's mom
Please feel free to download and share these items on social media to help raise awareness of HPE during Holoprosencephaly Awareness Week 2015, March 23-29.