Tag: awareness
Today, we are celebrating our HPE community and what that community means to us. Please share how Families for HoPE and other HPE families or children with HPE have influenced your journey of HoPE.
It’s day 4 of Holoprosencephaly Awareness Week, and this is a perfect opportunity to show some creativity and put a smile on the face of another.
On day 3 of Holoprosencephaly Awareness Week, we invite you to be a storyteller. Tell the story of one of the best days ever in the life of your child or family.
To celebrate day 2 of Holoprosencephaly Awareness Week, we are repeating a blog entry from October 2019 when Sarah Brown recorded Colors of the Wind in honor of our HPE community.
Today kicks off Holoprosencephaly Awareness Week! Today’s theme is “Cover Me in Sunshine”.
In preparation for Holoprosencephaly Awareness Week, we are happy to share a template you can use on social media in coordination with the daily prompts and activities.
It’s almost time for Holoprosencephaly Awareness Week, and we hope you will join Families for HoPE and HPE families around the globe in this awareness raising campaign. The week will kick off on Saturday, March 25 and run through Friday, March 31!
Please help us raise $10,000 to reach, raise awareness, and educate women AND ob-gyns, geneticists, industry partners and others.
Holoprosencephaly Awareness Week is March 20-26, 2022.
New t-shirts are now available to order just in time for Holoprosencephaly Awareness Week!
Tag: awareness
We are Family
Posted: March 30, 2023 by Leslie, Sammy's mom
Today, we are celebrating our HPE community and what that community means to us. Please share how Families for HoPE and other HPE families or children with HPE have influenced your journey of HoPE.
Category: Holoprosencephaly Awareness Week Tags: awareness, family, holoprosencephaly, HPE, we are family
Posted: March 28, 2023 by Leslie, Sammy's mom
It’s day 4 of Holoprosencephaly Awareness Week, and this is a perfect opportunity to show some creativity and put a smile on the face of another.
Category: Holoprosencephaly Awareness Week Tags: awareness, holoprosencephaly, pocketful of sunshine
Oh, What a Night (or Day)
Posted: March 27, 2023 by Leslie, Sammy's mom
On day 3 of Holoprosencephaly Awareness Week, we invite you to be a storyteller. Tell the story of one of the best days ever in the life of your child or family.
Category: Holoprosencephaly Awareness Week Tags: awareness, best day ever, holoprosencephaly, oh what a night, storyteller
Colors of the Wind
Posted: March 25, 2023 by Leslie, Sammy's mom
To celebrate day 2 of Holoprosencephaly Awareness Week, we are repeating a blog entry from October 2019 when Sarah Brown recorded Colors of the Wind in honor of our HPE community.
Category: General, Holoprosencephaly Awareness Week Tags: awareness, colors of the wind, Pocahontas, sarah brown, song
Cover Me in Sunshine
Posted: March 25, 2023 by Leslie, Sammy's mom
Today kicks off Holoprosencephaly Awareness Week! Today’s theme is “Cover Me in Sunshine”.
Category: Holoprosencephaly Awareness Week Tags: awareness, cover me in sunshine, holoprosencephaly, songs, spotify, sunglasses, yellow
Awareness Week kicks off on Saturday, March 25
Posted: March 22, 2023 by Leslie, Sammy's mom
In preparation for Holoprosencephaly Awareness Week, we are happy to share a template you can use on social media in coordination with the daily prompts and activities.
Category: Holoprosencephaly Awareness Week Tags: awareness, holoprosencephaly, HoPE, social media
Holoprosencephaly Awareness Week 2023
Posted: March 14, 2023 by Leslie, Sammy's mom
It’s almost time for Holoprosencephaly Awareness Week, and we hope you will join Families for HoPE and HPE families around the globe in this awareness raising campaign. The week will kick off on Saturday, March 25 and run through Friday, March 31!
Category: Holoprosencephaly Awareness Week Tags: #hpeawareness, awareness, holoprosencephaly, HoPE
#Giving Tuesday, November 29
Posted: November 1, 2022 by lyndot71
Please help us raise $10,000 to reach, raise awareness, and educate women AND ob-gyns, geneticists, industry partners and others.
Category: #GivingTuesday Tags: #givingtuesday, awareness, donate, give
HPE Awareness Week
Posted: February 27, 2022 by Leslie, Sammy's mom
Holoprosencephaly Awareness Week is March 20-26, 2022.
Category: Holoprosencephaly Awareness Week Tags: activities, awareness, holoprosencephaly, hpe awareness week
Awareness Shirts
Posted: February 16, 2022 by Leslie, Sammy's mom
New t-shirts are now available to order just in time for Holoprosencephaly Awareness Week!
Category: Fundraising, Holoprosencephaly Awareness Week, News Tags: awareness, friends, i'll be there for you, tshirt