Holoprosencephaly Awareness Week is March 20-26, 2022.
New t-shirts are now available to order just in time for Holoprosencephaly Awareness Week!
Back by popular demand is Families for HoPE logowear. Choose among t-shirts (short-sleeve, long-sleeve and ladies cut) and hoodies in charcoal or navy. The front of the apparel is printed with the colorful Families for HoPE logo. Printed on the back is the first name of every child we know with HPE. At the top …
Written by Roxanne Steele Growing up in Indiana in the 1970’s and 80’s, I have to admit I never encountered many people who were different. Yes different races and economic factors but not anyone with any real disability.
As HPE families, what can we do to share our HoPE and holoprosencephaly with the world?
Guest Author: Melissa, Isaiah’s mom Our journey started on January 11, 2016 when we found out we we were pregnant with Isaiah. When I was 18 weeks, my primary OBGYN noticed something wrong with Isaiah’s head. He wasn’t sure what was going on, so he sent us to a maternal fetal medicine specialist. This doctor …
Holo. . . what?
A mother and her son’s journey with Treacher Collins Syndrome and HPE
Coloring is a hot trend for adults, and gathering a group of individuals together to color is a unique way to raise awareness of HPE! If you are interested in using coloring as a way to raise awareness of HPE and raise funds for Families for HoPE, we can help you do so. If you …