Tag: awareness
For Holoprosencephaly Awareness Week, we commissioned a custom silicone focal bead with the phrase “never lose hope”, and these beads can be used to decorate everyday items that can be worn or used as a conversation starter.
Category: Fundraising, Holoprosencephaly Awareness Week Tags: awareness, bangle, cup charm, fundraising, holoprosencephaly, ink pen, keychain, pen kit, purse, tumbler, wristlet
Families for HoPE, Inc. is honored and grateful to have two young people with HPE join the ranks of our organization’s Ambassadors for HoPE to help raise awareness of holoprosencephaly.
Calendar of Events as of June 1, 2024
Order by MARCH 5 to receive in time for HPE Awareness Week
Today, we are celebrating our HPE community and what that community means to us. Please share how Families for HoPE and other HPE families or children with HPE have influenced your journey of HoPE.
It’s day 4 of Holoprosencephaly Awareness Week, and this is a perfect opportunity to show some creativity and put a smile on the face of another.
On day 3 of Holoprosencephaly Awareness Week, we invite you to be a storyteller. Tell the story of one of the best days ever in the life of your child or family.
To celebrate day 2 of Holoprosencephaly Awareness Week, we are repeating a blog entry from October 2019 when Sarah Brown recorded Colors of the Wind in honor of our HPE community.
Today kicks off Holoprosencephaly Awareness Week! Today’s theme is “Cover Me in Sunshine”.
In preparation for Holoprosencephaly Awareness Week, we are happy to share a template you can use on social media in coordination with the daily prompts and activities.
Tag: awareness
Never Lose HoPE Campaign
Posted: March 24, 2025 by Leslie, Sammy's mom
For Holoprosencephaly Awareness Week, we commissioned a custom silicone focal bead with the phrase “never lose hope”, and these beads can be used to decorate everyday items that can be worn or used as a conversation starter.
Category: Fundraising, Holoprosencephaly Awareness Week Tags: awareness, bangle, cup charm, fundraising, holoprosencephaly, ink pen, keychain, pen kit, purse, tumbler, wristlet
Two Vibrant, Young People with HPE Join Us as Ambassadors for HoPE
Posted: June 13, 2024 by lyndot71
Families for HoPE, Inc. is honored and grateful to have two young people with HPE join the ranks of our organization’s Ambassadors for HoPE to help raise awareness of holoprosencephaly.
Category: Ambassadors for HoPE, Anchors of HoPE, Child of HoPE, Fundraising Tags: #Ambassador for HoPE #familiesforhope #HPE, #familiesforhope, #holoprosencephaly #hope, awareness, fundraising
Calendar of Events
Posted: June 8, 2024 by Leslie, Sammy's mom
Calendar of Events as of June 1, 2024
Category: Fundraising, HPE Conference Tags: awareness, calendar, events, fundraising
HoPE U T-Shirts – Order by March 8
Posted: February 28, 2024 by Leslie, Sammy's mom
Order by MARCH 5 to receive in time for HPE Awareness Week
Category: Fundraising, Holoprosencephaly Awareness Week Tags: #hpeawareness, awareness, education, holoprosencephaly, HoPE U, medical, t-shirt
We are Family
Posted: March 30, 2023 by Leslie, Sammy's mom
Today, we are celebrating our HPE community and what that community means to us. Please share how Families for HoPE and other HPE families or children with HPE have influenced your journey of HoPE.
Category: Holoprosencephaly Awareness Week Tags: awareness, family, holoprosencephaly, HPE, we are family
Posted: March 28, 2023 by Leslie, Sammy's mom
It’s day 4 of Holoprosencephaly Awareness Week, and this is a perfect opportunity to show some creativity and put a smile on the face of another.
Category: Holoprosencephaly Awareness Week Tags: awareness, holoprosencephaly, pocketful of sunshine
Oh, What a Night (or Day)
Posted: March 27, 2023 by Leslie, Sammy's mom
On day 3 of Holoprosencephaly Awareness Week, we invite you to be a storyteller. Tell the story of one of the best days ever in the life of your child or family.
Category: Holoprosencephaly Awareness Week Tags: awareness, best day ever, holoprosencephaly, oh what a night, storyteller
Colors of the Wind
Posted: March 25, 2023 by Leslie, Sammy's mom
To celebrate day 2 of Holoprosencephaly Awareness Week, we are repeating a blog entry from October 2019 when Sarah Brown recorded Colors of the Wind in honor of our HPE community.
Category: General, Holoprosencephaly Awareness Week Tags: awareness, colors of the wind, Pocahontas, sarah brown, song
Cover Me in Sunshine
Posted: March 25, 2023 by Leslie, Sammy's mom
Today kicks off Holoprosencephaly Awareness Week! Today’s theme is “Cover Me in Sunshine”.
Category: Holoprosencephaly Awareness Week Tags: awareness, cover me in sunshine, holoprosencephaly, songs, spotify, sunglasses, yellow
Awareness Week kicks off on Saturday, March 25
Posted: March 22, 2023 by Leslie, Sammy's mom
In preparation for Holoprosencephaly Awareness Week, we are happy to share a template you can use on social media in coordination with the daily prompts and activities.
Category: Holoprosencephaly Awareness Week Tags: awareness, holoprosencephaly, HoPE, social media