Tag: holoprosencephaly
If you have a child with HPE who is in the Class of 2023, please send us a photo at info@FamiliesforHoPE.org so that we can recognize his or her accomplishment.
Today, we are celebrating our HPE community and what that community means to us. Please share how Families for HoPE and other HPE families or children with HPE have influenced your journey of HoPE.
It’s day 4 of Holoprosencephaly Awareness Week, and this is a perfect opportunity to show some creativity and put a smile on the face of another.
On day 3 of Holoprosencephaly Awareness Week, we invite you to be a storyteller. Tell the story of one of the best days ever in the life of your child or family.
Today kicks off Holoprosencephaly Awareness Week! Today’s theme is “Cover Me in Sunshine”.
In preparation for Holoprosencephaly Awareness Week, we are happy to share a template you can use on social media in coordination with the daily prompts and activities.
It’s almost time for Holoprosencephaly Awareness Week, and we hope you will join Families for HoPE and HPE families around the globe in this awareness raising campaign. The week will kick off on Saturday, March 25 and run through Friday, March 31!
Available in t-shirts and hoodies, you can show your love of someone with HPE and raise awareness for HPE at the same time.
Holoprosencephaly Awareness Week is March 20-26, 2022.
Families for HoPE recently welcomed Susan Millender as Executive Director. Millender is the first person to fill the role for the Indianapolis-based nonprofit organization in its 16-year history.
Tag: holoprosencephaly
Class of 2023
Posted: May 15, 2023 by Leslie, Sammy's mom
If you have a child with HPE who is in the Class of 2023, please send us a photo at info@FamiliesforHoPE.org so that we can recognize his or her accomplishment.
Category: Milestones Tags: cap and gown, class of 2023, graduation, holoprosencephaly
We are Family
Posted: March 30, 2023 by Leslie, Sammy's mom
Today, we are celebrating our HPE community and what that community means to us. Please share how Families for HoPE and other HPE families or children with HPE have influenced your journey of HoPE.
Category: Holoprosencephaly Awareness Week Tags: awareness, family, holoprosencephaly, HPE, we are family
Posted: March 28, 2023 by Leslie, Sammy's mom
It’s day 4 of Holoprosencephaly Awareness Week, and this is a perfect opportunity to show some creativity and put a smile on the face of another.
Category: Holoprosencephaly Awareness Week Tags: awareness, holoprosencephaly, pocketful of sunshine
Oh, What a Night (or Day)
Posted: March 27, 2023 by Leslie, Sammy's mom
On day 3 of Holoprosencephaly Awareness Week, we invite you to be a storyteller. Tell the story of one of the best days ever in the life of your child or family.
Category: Holoprosencephaly Awareness Week Tags: awareness, best day ever, holoprosencephaly, oh what a night, storyteller
Cover Me in Sunshine
Posted: March 25, 2023 by Leslie, Sammy's mom
Today kicks off Holoprosencephaly Awareness Week! Today’s theme is “Cover Me in Sunshine”.
Category: Holoprosencephaly Awareness Week Tags: awareness, cover me in sunshine, holoprosencephaly, songs, spotify, sunglasses, yellow
Awareness Week kicks off on Saturday, March 25
Posted: March 22, 2023 by Leslie, Sammy's mom
In preparation for Holoprosencephaly Awareness Week, we are happy to share a template you can use on social media in coordination with the daily prompts and activities.
Category: Holoprosencephaly Awareness Week Tags: awareness, holoprosencephaly, HoPE, social media
Holoprosencephaly Awareness Week 2023
Posted: March 14, 2023 by Leslie, Sammy's mom
It’s almost time for Holoprosencephaly Awareness Week, and we hope you will join Families for HoPE and HPE families around the globe in this awareness raising campaign. The week will kick off on Saturday, March 25 and run through Friday, March 31!
Category: Holoprosencephaly Awareness Week Tags: #hpeawareness, awareness, holoprosencephaly, HoPE
Order Today
Posted: November 27, 2022 by Leslie, Sammy's mom
Available in t-shirts and hoodies, you can show your love of someone with HPE and raise awareness for HPE at the same time.
Category: Fundraising, Holidays Tags: fundraiser, holoprosencephaly, hoodies, HPE, names, shirts
HPE Awareness Week
Posted: February 27, 2022 by Leslie, Sammy's mom
Holoprosencephaly Awareness Week is March 20-26, 2022.
Category: Holoprosencephaly Awareness Week Tags: activities, awareness, holoprosencephaly, hpe awareness week
NEWS: Families for HoPE Names Executive Director
Posted: October 22, 2021 by Leslie, Sammy's mom
Families for HoPE recently welcomed Susan Millender as Executive Director. Millender is the first person to fill the role for the Indianapolis-based nonprofit organization in its 16-year history.
Category: General, News Tags: executive director, holoprosencephaly, news, susan millender