Archives


Register by May 1

May 1 is the deadline to register for the 2018 Family Conference on Holoprosencephaly. If you still need to register or you have registered but need to modify your registration, CLICK HERE If you have any questions, please contact Leslie…

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Having HoPE will give you courage

A mother and her son’s journey with Treacher Collins Syndrome and HPE

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Pearl Joy Brown

Last week, Pearl Joy Brown’s dad, Eric Brown, was asked to speak at a conference in Washington, DC.  Thank you, Eric, for sharing your humble spirit, your sincere and heartfelt words, and your beautiful photos.

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There is always HoPE

By Amy L. Springer, Guest Author I learned that I was pregnant February 24, 1994. I had a sonogram like normal and all was good. I later started to have problems with bleeding, so we did another sonogram, which showed…

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Hercules’ Journey 

Embrace the Journey with Hercules

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Embrace the Journey with Carol-Lynn

An HPE mom shares how she has embraced the journey with HPE

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New NIH Study on Environmental Determinants of Holoprosencephaly

New NIH study on Environmental Determinants of Holoprosencephaly  We understand only a fraction of the causes of holoprosencephaly and what leads to the wide spectrum of clinical features seen in patients with holoprosencephaly. In this new environmental study, we are…

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Registration is open for 2016 Family Conference on HPE

We want you to join us as A Family of HoPE at the 2016 Family Conference on Holoprosencephaly in Dallas, Texas on July 12-15 presented by Families for HoPE, Inc. and Carter Centers for Brain Research in Holoprosencephaly and Related…

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#GivingTuesday 2015

#GivingTuesday is a movement to create a national day of giving on the Tuesday following Thanksgiving, Black Friday and Cyber Monday. On #GivingTuesday, please join Families for HoPE in helping to share the HoPE in Holoprosencephaly. We would love for…

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Spread the word

For a limited time only there is toddler sizes, onsies and hoodies!!    Order toddler shirts here

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October 18 – Racing for HoPE 2015

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August 22 – Racing for HoPE 2015

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June 6 – Racing for HoPE 2015

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HoPE has supernatural powers

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HPE Awareness Week 2015 – Social Media Tools

Please feel free to download and share these items on social media to help raise awareness of HPE during Holoprosencephaly Awareness Week 2015, March 23-29.  

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