Updated on December 22, 2019 by Leslie, Sammy's mom
Written by Leslie Harley In all of the years we have been doing the Family Conference on Holoprosencephaly, I don’t think there has been anyone in attendance who radiates such pure joy when she enters the room as Brianna Bixenman. Accompanied by her parents, Bill and Janet, then 19 year-old Brianna traveled from New Jersey …
Updated on August 3, 2019 by CharlieDawns momma
As I walked into the conference center that Sunday night in 2018, seeing all those kiddos–some I recognized, many I didn’t–but, it felt like I was home with “my people”.
Updated on November 30, 2019 by CharlieDawns momma
Written by Pete Lawler While I’m preparing to complete the 2020 conference registration for Dorothy and I, we were talking about last year’s event. 2018 was my second conference. The first was in 2008 when Chloe was a baby, and I learned so much about HPE and about my granddaughter. Like a lot of families, …
Updated on October 26, 2019 by Leslie, Sammy's mom
2020 Family Conference on Holoprosencephaly Great Wolf Lodge & Conference Center – Mason, Ohio June 14-18, 2020
Posted on February 28, 2019 by Leslie, Sammy's mom
Save the Date
Updated on May 13, 2018 by Leslie, Sammy's mom
As we approach the 2018 Family Conference on Holoprosencephaly, we want to share with you how we will honor and remember those we love who have passed away with HPE. As you may know, at each of our past family conferences on HPE, we have had a memorial balloon release. The balloon releases are lovely and special for all of …
Updated on November 23, 2018 by Leslie, Sammy's mom
If you or someone you know might be interested in becoming a conference sponsor, please let us know!
Updated on March 25, 2018 by Leslie, Sammy's mom
HPE siblings embrace the journey
Updated on April 27, 2018 by CharlieDawns momma
A mother and her son’s journey with Treacher Collins Syndrome and HPE
Updated on November 23, 2018 by Leslie, Sammy's mom
Register for the 2018 Family Conference on Holoprosencephaly