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Tag: conference

Attention families who attended our 2022 Family Conference on Holoprosencephaly in Mason, Ohio

It was a pleasure hosting you at Great Wolf Lodge & Conference Center in June! We thank you for coming to the conference. All of YOU made this year’s conference such a very special time, and we invite you to share your feedback on the conference with us. If you did not have a chance …

Update on 2020 Family Conference on Holoprosencephaly

Due to the Corona Virus crisis in the United States, the board of directors of Families for HoPE, Inc. have made the decision to postpone the Family Conference on Holoprosencephaly to be held in June 2020. We have worked with Great Wolf Lodge & Conference Center in Mason, Ohio to reschedule the conference and have …

Honoring Brianna

Written by Leslie Harley In all of the years we have been doing the Family Conference on Holoprosencephaly, I don’t think there has been anyone in attendance who radiates such pure joy when she enters the room as Brianna Bixenman. Accompanied by her parents, Bill and Janet, then 19 year-old Brianna traveled from New Jersey …

Grandparents View

Written by Pete Lawler While I’m preparing to complete the 2020 conference registration for Dorothy and I, we were talking about last year’s event. 2018 was my second conference. The first was in 2008 when Chloe was a baby, and I learned so much about HPE and about my granddaughter. Like a lot of families, …