Tag: conference
After careful consideration, we have arrived at the difficult decision to cancel the Family Conference on Holoprosencephaly which had been rescheduled for June 2021 (postponed from June 2020).
Posted on March 21, 2020 by Leslie, Sammy's mom
Due to the Corona Virus crisis in the United States, the board of directors of Families for HoPE, Inc. have made the decision to postpone the Family Conference on Holoprosencephaly to be held in June 2020. We have worked with Great Wolf Lodge & Conference Center in Mason, Ohio to reschedule the conference and have …
Updated on December 22, 2019 by Leslie, Sammy's mom
Written by Leslie Harley In all of the years we have been doing the Family Conference on Holoprosencephaly, I don’t think there has been anyone in attendance who radiates such pure joy when she enters the room as Brianna Bixenman. Accompanied by her parents, Bill and Janet, then 19 year-old Brianna traveled from New Jersey …
Updated on August 3, 2019 by CharlieDawns momma
As I walked into the conference center that Sunday night in 2018, seeing all those kiddos–some I recognized, many I didn’t–but, it felt like I was home with “my people”.
Updated on November 30, 2019 by CharlieDawns momma
Written by Pete Lawler While I’m preparing to complete the 2020 conference registration for Dorothy and I, we were talking about last year’s event. 2018 was my second conference. The first was in 2008 when Chloe was a baby, and I learned so much about HPE and about my granddaughter. Like a lot of families, …
Updated on October 26, 2019 by Leslie, Sammy's mom
2020 Family Conference on Holoprosencephaly Great Wolf Lodge & Conference Center – Mason, Ohio June 14-18, 2020
Posted on February 28, 2019 by Leslie, Sammy's mom
Save the Date
Updated on May 13, 2018 by Leslie, Sammy's mom
As we approach the 2018 Family Conference on Holoprosencephaly, we want to share with you how we will honor and remember those we love who have passed away with HPE. As you may know, at each of our past family conferences on HPE, we have had a memorial balloon release. The balloon releases are lovely and special for all of …
Updated on November 23, 2018 by Leslie, Sammy's mom
If you or someone you know might be interested in becoming a conference sponsor, please let us know!
Updated on March 25, 2018 by Leslie, Sammy's mom
HPE siblings embrace the journey
Tag: conference
Important Update from Families for HoPE
Posted on May 17, 2020 by Leslie, Sammy's mom
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After careful consideration, we have arrived at the difficult decision to cancel the Family Conference on Holoprosencephaly which had been rescheduled for June 2021 (postponed from June 2020).
Category: HPE Conference Tags: #holoprosencephaly #hope, conference, holoprosencephaly, HoPE
Update on 2020 Family Conference on Holoprosencephaly
Posted on March 21, 2020 by Leslie, Sammy's mom
Due to the Corona Virus crisis in the United States, the board of directors of Families for HoPE, Inc. have made the decision to postpone the Family Conference on Holoprosencephaly to be held in June 2020. We have worked with Great Wolf Lodge & Conference Center in Mason, Ohio to reschedule the conference and have …
Category: HPE Conference Tags: conference, june 2021, postponed
Honoring Brianna
Updated on December 22, 2019 by Leslie, Sammy's mom
Written by Leslie Harley In all of the years we have been doing the Family Conference on Holoprosencephaly, I don’t think there has been anyone in attendance who radiates such pure joy when she enters the room as Brianna Bixenman. Accompanied by her parents, Bill and Janet, then 19 year-old Brianna traveled from New Jersey …
Category: Fundraising, HPE Conference, Inspiration Tags: brainsky levinson, brianna, conference, sam horn, scholarship
Alone No More
Updated on August 3, 2019 by CharlieDawns momma
As I walked into the conference center that Sunday night in 2018, seeing all those kiddos–some I recognized, many I didn’t–but, it felt like I was home with “my people”.
Category: Guest Authors, HPE Conference Tags: canada, conference, HoPE, zoe
Grandparents View
Updated on November 30, 2019 by CharlieDawns momma
Written by Pete Lawler While I’m preparing to complete the 2020 conference registration for Dorothy and I, we were talking about last year’s event. 2018 was my second conference. The first was in 2008 when Chloe was a baby, and I learned so much about HPE and about my granddaughter. Like a lot of families, …
Category: Guest Authors, HPE Conference Tags: conference, decals, Dorothy, grandparent, Pete, photos, vendor, vinyl
Conference Registration Fee Payment
Updated on October 26, 2019 by Leslie, Sammy's mom
2020 Family Conference on Holoprosencephaly Great Wolf Lodge & Conference Center – Mason, Ohio June 14-18, 2020
Category: HPE Conference Tags: 2020, conference, Great Wolf Lodge, holoprosencephaly, Mason, Ohio, registration
Save the Date for the 2020 Family Conference on Holoprosencephaly
Posted on February 28, 2019 by Leslie, Sammy's mom
Save the Date
Category: HPE Conference Tags: 2020, conference, Great Wolf Lodge, save the date
Always Remembered
Updated on May 13, 2018 by Leslie, Sammy's mom
As we approach the 2018 Family Conference on Holoprosencephaly, we want to share with you how we will honor and remember those we love who have passed away with HPE. As you may know, at each of our past family conferences on HPE, we have had a memorial balloon release. The balloon releases are lovely and special for all of …
Category: Grief, HPE Conference Tags: balloons, bereaved, bubbles, celebration, conference, grieving, honor, memorial, reading of the names
Sponsorship Opportunities Available
Updated on November 23, 2018 by Leslie, Sammy's mom
If you or someone you know might be interested in becoming a conference sponsor, please let us know!
Category: Fundraising, HPE Conference Tags: conference, Great Wolf Lodge, Ohio, sponsors, sponsorship opportunities
New Friends
Updated on March 25, 2018 by Leslie, Sammy's mom
HPE siblings embrace the journey
Category: Embrace the Journey, HPE Conference Tags: #BFGIndy, conference, dalton, Embrace the Journey, happy, nick, siblings