Archives


Always Remembered

As we approach the 2018 Family Conference on Holoprosencephaly, we want to share with you how we will honor and remember those we love who have passed away with HPE. As you may know, at each of our past family conferences on HPE,…

Read More

Register by May 1

May 1 is the deadline to register for the 2018 Family Conference on Holoprosencephaly. If you still need to register or you have registered but need to modify your registration, CLICK HERE If you have any questions, please contact Leslie…

Read More

Sponsorship Opportunities Available

If you or someone you know might be interested in becoming a conference sponsor, please let us know!

Read More

New Friends

HPE siblings embrace the journey

Read More

Having HoPE will give you courage

A mother and her son’s journey with Treacher Collins Syndrome and HPE

Read More

Registration is open!

Register for the 2018 Family Conference on Holoprosencephaly

Read More

2018 Families for HoPE Conference 

Families for HoPE, Inc. would like you to “Save the Date” for the 2018 Family Conference on Holoprosencephaly to be held at the Great Wolf Lodge and Conference Center in Cincinnati/Mason, Ohio. The conference will be held from check-in on…

Read More

The beauty 

Embrace the beauty of the journey

Read More

Family 

Embrace the Journey with Harley’s family

Read More

Sisterhood of the Traveling Dress

Embracing the journey when you’ve been asked to give someone the shirt off your back

Read More

Journey Reminder 

Thumbprints on our hearts

Read More

Embrace the Journey with Carol-Lynn

An HPE mom shares how she has embraced the journey with HPE

Read More

Journey of HoPE to Dallas

In July 2016, over 70 HPE families embarked on a journey from all corners of the U.S. to Dallas, Texas for the 2016 Family Conference on HPE.  Held biennially, the conference is a collaborative endeavor among Families for HoPE, the…

Read More

How Families for HoPE has saved my family

Written by James Pruitt, HPE Dad

Read More

Conference Workshops 

Do It Yourself Sensory Ideas – Come learn about our sensory system and its role in development and daily activities. Come find your sensory preferences. Families will work together to create, try and share sensory activities that can be used…

Read More