Today, we are celebrating our HPE community and what that community means to us. Please share how Families for HoPE and other HPE families or children with HPE have influenced your journey of HoPE.
Who are YOU, and what makes you tick? Stay turned to learn how your special talents can grow with Families for HoPE!
Available in t-shirts and hoodies, you can show your love of someone with HPE and raise awareness for HPE at the same time.
Written by Roxanne Steele Growing up in Indiana in the 1970’s and 80’s, I have to admit I never encountered many people who were different. Yes different races and economic factors but not anyone with any real disability.
She is not broken She does not need fixing
One mom’s story of having more children after HPE
Guest Author: Melissa, Isaiah’s mom Our journey started on January 11, 2016 when we found out we we were pregnant with Isaiah. When I was 18 weeks, my primary OBGYN noticed something wrong with Isaiah’s head. He wasn’t sure what was going on, so he sent us to a maternal fetal medicine specialist. This doctor …
Category: Embrace the Journey, Guest Authors Tags: #familiesforhope, #holoprosencephaly #hope, #sharingHoPE, awareness, Carter Centers, diagnosis, disability, Embrace the Journey, family, holoprosencephaly, HoPE, HPE, prenatal, special needs
By Amy L. Springer, Guest Author I learned that I was pregnant February 24, 1994. I had a sonogram like normal and all was good. I later started to have problems with bleeding, so we did another sonogram, which showed the baby to have a “lemon-shaped head” and I had placenta previa so a follow …
Category: Guest Authors Tags: #holoprosencephaly #hope, diagnosis, disability, Embrace the Journey, happy, holoprosencephaly, HoPE, HPE, journey, laughter, special needs
Tag: HPE
We are Family
Posted: March 30, 2023 by Leslie, Sammy's mom
Today, we are celebrating our HPE community and what that community means to us. Please share how Families for HoPE and other HPE families or children with HPE have influenced your journey of HoPE.
Category: Holoprosencephaly Awareness Week Tags: awareness, family, holoprosencephaly, HPE, we are family
Who are you?
Posted: January 30, 2023 by Leslie, Sammy's mom
Who are YOU, and what makes you tick? Stay turned to learn how your special talents can grow with Families for HoPE!
Category: General Tags: 2023, helping, HoPE, HPE, sharing, volunteer
Order Today
Posted: November 27, 2022 by Leslie, Sammy's mom
Available in t-shirts and hoodies, you can show your love of someone with HPE and raise awareness for HPE at the same time.
Category: Fundraising, Holidays Tags: fundraiser, holoprosencephaly, hoodies, HPE, names, shirts
Roxanne Steele
Posted: July 22, 2019 by Leslie, Sammy's mom
Written by Roxanne Steele Growing up in Indiana in the 1970’s and 80’s, I have to admit I never encountered many people who were different. Yes different races and economic factors but not anyone with any real disability.
Category: Guest Authors, Inspiration Tags: #holoprosencephaly #hope, #sharingHoPE, awareness, disability, holoprosencephaly, HoPE, HPE, life, special needs
Not Broken
Posted: July 3, 2019 by Leslie, Sammy's mom
She is not broken She does not need fixing
Category: Inspiration Tags: #familiesforhope, #sharingHoPE, diagnosis, disability, Embrace the Journey, family, holoprosencephaly, HoPE, HPE
More children after HPE
Posted: October 29, 2018 by Leslie, Sammy's mom
One mom’s story of having more children after HPE
Category: Embrace the Journey, Guest Authors, Perspectives Tags: brother, eric ryan, HPE, preemie, pregnancy, sibings, sister, slider
Overcoming Obstacles One Climb at a Time
Posted: October 2, 2018 by Leslie, Sammy's mom
Meet Keith!
Category: Guest Authors, Inspiration Tags: climbing, HPE, keith, Ohio, vertical adventures
Never Lose HoPE
Posted: July 30, 2018 by Leslie, Sammy's mom
Guest Author: Melissa, Isaiah’s mom Our journey started on January 11, 2016 when we found out we we were pregnant with Isaiah. When I was 18 weeks, my primary OBGYN noticed something wrong with Isaiah’s head. He wasn’t sure what was going on, so he sent us to a maternal fetal medicine specialist. This doctor …
Category: Embrace the Journey, Guest Authors Tags: #familiesforhope, #holoprosencephaly #hope, #sharingHoPE, awareness, Carter Centers, diagnosis, disability, Embrace the Journey, family, holoprosencephaly, HoPE, HPE, prenatal, special needs
HPE Awareness Week
Posted: March 25, 2018 by Leslie, Sammy's mom
Holo. . . what?
Category: Holoprosencephaly Awareness Week Tags: awareness, holoprosencephaly awareness week, HoPE, HPE
There is always HoPE
Posted: January 13, 2018 by Leslie, Sammy's mom
By Amy L. Springer, Guest Author I learned that I was pregnant February 24, 1994. I had a sonogram like normal and all was good. I later started to have problems with bleeding, so we did another sonogram, which showed the baby to have a “lemon-shaped head” and I had placenta previa so a follow …
Category: Guest Authors Tags: #holoprosencephaly #hope, diagnosis, disability, Embrace the Journey, happy, holoprosencephaly, HoPE, HPE, journey, laughter, special needs