Written by Roxanne Steele Growing up in Indiana in the 1970’s and 80’s, I have to admit I never encountered many people who were different. Yes different races and economic factors but not anyone with any real disability.
She is not broken She does not need fixing
One mom’s story of having more children after HPE
Guest Author: Melissa, Isaiah’s mom Our journey started on January 11, 2016 when we found out we we were pregnant with Isaiah. When I was 18 weeks, my primary OBGYN noticed something wrong with Isaiah’s head. He wasn’t sure what was going on, so he sent us to a maternal fetal medicine specialist. This doctor …
Category: Embrace the Journey, Guest Authors Tags: #familiesforhope, #holoprosencephaly #hope, #sharingHoPE, awareness, Carter Centers, diagnosis, disability, Embrace the Journey, family, holoprosencephaly, HoPE, HPE, prenatal, special needs
By Amy L. Springer, Guest Author I learned that I was pregnant February 24, 1994. I had a sonogram like normal and all was good. I later started to have problems with bleeding, so we did another sonogram, which showed the baby to have a “lemon-shaped head” and I had placenta previa so a follow …
Category: Guest Authors Tags: #holoprosencephaly #hope, diagnosis, disability, Embrace the Journey, happy, holoprosencephaly, HoPE, HPE, journey, laughter, special needs
Coloring is a hot trend for adults, and gathering a group of individuals together to color is a unique way to raise awareness of HPE! If you are interested in using coloring as a way to raise awareness of HPE and raise funds for Families for HoPE, we can help you do so. If you …
Category: Fundraising, Holoprosencephaly Awareness Week Tags: awareness, balloons, coloring, community, event, fundraising, HoPE, HPE, pencils, wristbands
I am often asked why I smile so much. Often, these inquisitive ones are looking only at the difficulties in caring for a medically fragile child as a 24/7 job. I respond simply, “I can either cry about it or laugh about it; I choose laughter.” Humans are social creatures, and humor is one of the …
Thumbprints on our hearts
Tag: HPE
Roxanne Steele
Posted: July 22, 2019 by CharlieDawns momma
Written by Roxanne Steele Growing up in Indiana in the 1970’s and 80’s, I have to admit I never encountered many people who were different. Yes different races and economic factors but not anyone with any real disability.
Category: Guest Authors, Inspiration Tags: #holoprosencephaly #hope, #sharingHoPE, awareness, disability, holoprosencephaly, HoPE, HPE, life, special needs
Not Broken
Posted: July 3, 2019 by CharlieDawns momma
She is not broken She does not need fixing
Category: Inspiration Tags: #familiesforhope, #sharingHoPE, diagnosis, disability, Embrace the Journey, family, holoprosencephaly, HoPE, HPE
More children after HPE
Posted: October 29, 2018 by CharlieDawns momma
One mom’s story of having more children after HPE
Category: Embrace the Journey, Guest Authors, Perspectives Tags: brother, eric ryan, HPE, preemie, pregnancy, sibings, sister, slider
Overcoming Obstacles One Climb at a Time
Posted: October 2, 2018 by CharlieDawns momma
Meet Keith!
Category: Guest Authors, Inspiration Tags: climbing, HPE, keith, Ohio, vertical adventures
Never Lose HoPE
Posted: July 30, 2018 by CharlieDawns momma
Guest Author: Melissa, Isaiah’s mom Our journey started on January 11, 2016 when we found out we we were pregnant with Isaiah. When I was 18 weeks, my primary OBGYN noticed something wrong with Isaiah’s head. He wasn’t sure what was going on, so he sent us to a maternal fetal medicine specialist. This doctor …
Category: Embrace the Journey, Guest Authors Tags: #familiesforhope, #holoprosencephaly #hope, #sharingHoPE, awareness, Carter Centers, diagnosis, disability, Embrace the Journey, family, holoprosencephaly, HoPE, HPE, prenatal, special needs
HPE Awareness Week
Posted: March 25, 2018 by Leslie, Sammy's mom
Holo. . . what?
Category: Holoprosencephaly Awareness Week Tags: awareness, holoprosencephaly awareness week, HoPE, HPE
There is always HoPE
Posted: January 13, 2018 by CharlieDawns momma
By Amy L. Springer, Guest Author I learned that I was pregnant February 24, 1994. I had a sonogram like normal and all was good. I later started to have problems with bleeding, so we did another sonogram, which showed the baby to have a “lemon-shaped head” and I had placenta previa so a follow …
Category: Guest Authors Tags: #holoprosencephaly #hope, diagnosis, disability, Embrace the Journey, happy, holoprosencephaly, HoPE, HPE, journey, laughter, special needs
Coloring
Posted: March 26, 2017 by Leslie, Sammy's mom
Coloring is a hot trend for adults, and gathering a group of individuals together to color is a unique way to raise awareness of HPE! If you are interested in using coloring as a way to raise awareness of HPE and raise funds for Families for HoPE, we can help you do so. If you …
Category: Fundraising, Holoprosencephaly Awareness Week Tags: awareness, balloons, coloring, community, event, fundraising, HoPE, HPE, pencils, wristbands
Laughing Matters
Posted: March 26, 2017 by CharlieDawns momma
I am often asked why I smile so much. Often, these inquisitive ones are looking only at the difficulties in caring for a medically fragile child as a 24/7 job. I respond simply, “I can either cry about it or laugh about it; I choose laughter.” Humans are social creatures, and humor is one of the …
Category: Embrace the Journey, Gotta Laugh, Perspectives Tags: excitment, HPE, joy, laugh, laughter, medicine, smile
Journey Reminder
Posted: March 2, 2017 by CharlieDawns momma
Thumbprints on our hearts
Category: Embrace the Journey, Guest Authors Tags: conference, family, HPE, slider, thumbprint