Archives


Register by May 1

May 1 is the deadline to register for the 2018 Family Conference on Holoprosencephaly. If you still need to register or you have registered but need to modify your registration, CLICK HERE If you have any questions, please contact Leslie…

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HPE Awareness Week

Holo. . . what?

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There is always HoPE

By Amy L. Springer, Guest Author I learned that I was pregnant February 24, 1994. I had a sonogram like normal and all was good. I later started to have problems with bleeding, so we did another sonogram, which showed…

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2018 Families for HoPE Conference 

Families for HoPE, Inc. would like you to “Save the Date” for the 2018 Family Conference on Holoprosencephaly to be held at the Great Wolf Lodge and Conference Center in Cincinnati/Mason, Ohio. The conference will be held from check-in on…

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Coloring

Coloring is a hot trend for adults, and gathering a group of individuals together to color is a unique way to raise awareness of HPE!  If you are interested in using coloring as a way to raise awareness of HPE…

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Laughing Matters

I am often asked why I smile so much.  Often, these inquisitive ones are looking only at the difficulties in caring for a medically fragile child as a 24/7 job. I respond simply, “I can either cry about it or laugh…

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Journey Reminder 

Thumbprints on our hearts

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Hercules’ Journey 

Embrace the Journey with Hercules

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Embrace the Journey with Carol-Lynn

An HPE mom shares how she has embraced the journey with HPE

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New NIH Study on Environmental Determinants of Holoprosencephaly

New NIH study on Environmental Determinants of Holoprosencephaly  We understand only a fraction of the causes of holoprosencephaly and what leads to the wide spectrum of clinical features seen in patients with holoprosencephaly. In this new environmental study, we are…

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Make Dad Smile

Remember Father’s Day and help give back to Families for Hope!  Click here to order thru Amazon Smiles for Fathers Day

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What equipment do I really need at home? 

Description: Bring pictures/ dimensions (length and width of floor space it takes up) of equipment that you already have. Bring in your wish list of equipment (type/brand would be helpful but not necessary).    Bring basic dimensions of your living…

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Registration is open for 2016 Family Conference on HPE

We want you to join us as A Family of HoPE at the 2016 Family Conference on Holoprosencephaly in Dallas, Texas on July 12-15 presented by Families for HoPE, Inc. and Carter Centers for Brain Research in Holoprosencephaly and Related…

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Our mascot needs a name . . .

Before Families for HoPE was formed in 2006, there’s a character/animal that has served as our unofficial mascot in the HPE community, and that mascot is the frog.  It all started following the passing of Harrison Stauft, forever known as…

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August 22 – Racing for HoPE 2015

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