Archives


There is always HoPE

By Amy L. Springer, Guest Author I learned that I was pregnant February 24, 1994. I had a sonogram like normal and all was good. I later started to have problems with bleeding, so we did another sonogram, which showed…

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2018 Families for HoPE Conference 

Families for HoPE, Inc. would like you to “Save the Date” for the 2018 Family Conference on Holoprosencephaly to be held at the Great Wolf Lodge and Conference Center in Cincinnati/Mason, Ohio. The conference will be held from check-in on…

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Coloring

Coloring is a hot trend for adults, and gathering a group of individuals together to color is a unique way to raise awareness of HPE!  If you are interested in using coloring as a way to raise awareness of HPE…

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Laughing Matters

I am often asked why I smile so much.  Often, these inquisitive ones are looking only at the difficulties in caring for a medically fragile child as a 24/7 job. I respond simply, “I can either cry about it or laugh…

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Journey Reminder 

By Cheryl Lehman My family and I have attended almost every conference (2004, 2008, 2010, 2012, 2014 and 2016). We always look forward to these “family vacations” to get acquainted with our other “family” – our holoprosencephaly family. 2016 was…

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Hercules’ Journey 

Embrace the Journey with Hercules

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Embrace the Journey with Carol-Lynn

An HPE mom shares how she has embraced the journey with HPE

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