Tag: #sharingHoPE
Looking for a chance to connect and share? We’re hosting an informal HoPE Huddle via Zoom, and we’d love to see you there. This is a relaxed space for our community to get together, catch up, and talk about the various resources available our HPE kids. If you’re new to our community, we welcome you …
We are Connected by HoPE, United by Love The journey with Holoprosencephaly can often feel like navigating a vast and unpredictable sea. This year, our theme—Connected by HoPE, United by Love—is a reminder that no family has to sail alone. The Anchor symbolizes the stability we find in one another; it is the strength that keeps us …
John Hunsinger, President The board of directors of Families for HoPE elected John Hunsinger president of the board at its annual meeting on February 23. John has served on Families for HoPE’s board since November 2024. He is a resident of Wilmington, NC. His wife Amanda and John are the parents of three-year-old daughter …
THANK YOU THANK YOU for blessing other HPE families with your compassion, commitment and support every day. You help build a community that is a refuge for families who would otherwise face the journey of caregiving alone. THANK YOU for supporting people in need overcome the challenges of raising a child …
Do you remember a time when everything changed? You had just heard the word “holoprosencephaly” or the phrase “incompatible with life,” and you were given no hope for your beloved child. At that moment and, perhaps, for some time afterward, you were confused, afraid, and alone. Until… You found Families for HoPE. You were welcomed …
As part of our commitment to navigating the challenges and celebrating the triumphs of those we serve, we reintroduce our successful Anchors of HoPE program. Initially launched in 2016, this program has been a vital part of our journey, offering a steady foundation from which we can expand and enhance our impact.
Written by Roxanne Steele Growing up in Indiana in the 1970’s and 80’s, I have to admit I never encountered many people who were different. Yes different races and economic factors but not anyone with any real disability.
She is not broken She does not need fixing
By Heather Rinard The blades of the grass softly whispered their song in my ear, as I laid sprawled out on the checkered cloth, enjoying our teddy bear picnic. Momma made our childhood magical. From tea parties in the garden, family night games of drawing in the dark and Red hots in our hot cocoa …
Tag: #sharingHoPE
Join Us for the HoPE Huddle
Posted: June 9, 2026 by lyndot71
Looking for a chance to connect and share? We’re hosting an informal HoPE Huddle via Zoom, and we’d love to see you there. This is a relaxed space for our community to get together, catch up, and talk about the various resources available our HPE kids. If you’re new to our community, we welcome you …
Category: Inspiration, Perspectives Tags: #familiesforhope, #holoprosencephaly #hope, #sharingHoPE
Celebrate HPE Awareness Week 2026 – March 22nd – March 28th
Posted: March 2, 2026 by lyndot71
We are Connected by HoPE, United by Love The journey with Holoprosencephaly can often feel like navigating a vast and unpredictable sea. This year, our theme—Connected by HoPE, United by Love—is a reminder that no family has to sail alone. The Anchor symbolizes the stability we find in one another; it is the strength that keeps us …
Category: Anchors of HoPE, HPE Awareness Week 2026 Tags: #familiesforhope, #holoprosencephaly #hope, #hpeawareness, #hpefamilies, #sharingHoPE, HPE
Families for HoPE Board Names New President John Hunsinger
Posted: February 27, 2026 by lyndot71
John Hunsinger, President The board of directors of Families for HoPE elected John Hunsinger president of the board at its annual meeting on February 23. John has served on Families for HoPE’s board since November 2024. He is a resident of Wilmington, NC. His wife Amanda and John are the parents of three-year-old daughter …
Category: General Tags: #familiesforhope, #holoprosencephaly #hope, #hpeawareness, #sharingHoPE
Thank You for Your Support
Posted: December 5, 2024 by lyndot71
THANK YOU THANK YOU for blessing other HPE families with your compassion, commitment and support every day. You help build a community that is a refuge for families who would otherwise face the journey of caregiving alone. THANK YOU for supporting people in need overcome the challenges of raising a child …
Category: Ambassadors for HoPE, Anchors of HoPE, Fundraising Tags: #Ambassador for HoPE #familiesforhope #HPE, #holoprosencephaly #hope, #sharingHoPE, donate
We’re Better Together – Giving Tuesday, December 3rd
Posted: November 8, 2024 by lyndot71
Do you remember a time when everything changed? You had just heard the word “holoprosencephaly” or the phrase “incompatible with life,” and you were given no hope for your beloved child. At that moment and, perhaps, for some time afterward, you were confused, afraid, and alone. Until… You found Families for HoPE. You were welcomed …
Category: #GivingTuesday, Inspiration, News Tags: #familiesforhope, #hpefamilies #hpe #familiesforhope, #sharingHoPE
Anchors for HoPE
Posted: May 8, 2024 by lyndot71
As part of our commitment to navigating the challenges and celebrating the triumphs of those we serve, we reintroduce our successful Anchors of HoPE program. Initially launched in 2016, this program has been a vital part of our journey, offering a steady foundation from which we can expand and enhance our impact.
Category: Anchors of HoPE, Fundraising Tags: #anchorsforhope, #familiesforhope, #holoprosencephaly #hope, #sharingHoPE, $5, monthly giving
Summer 2024 Newsletter
Posted: May 7, 2024 by lyndot71
Category: News Tags: #familiesforhope, #holoprosencephaly #hope, #sharingHoPE, HPE
Roxanne Steele
Posted: July 22, 2019 by Leslie, Sammy's mom
Written by Roxanne Steele Growing up in Indiana in the 1970’s and 80’s, I have to admit I never encountered many people who were different. Yes different races and economic factors but not anyone with any real disability.
Category: Guest Authors, Inspiration Tags: #holoprosencephaly #hope, #sharingHoPE, awareness, disability, holoprosencephaly, HoPE, HPE, life, special needs
Not Broken
Posted: July 3, 2019 by Leslie, Sammy's mom
She is not broken She does not need fixing
Category: Inspiration Tags: #familiesforhope, #sharingHoPE, diagnosis, disability, Embrace the Journey, family, holoprosencephaly, HoPE, HPE
My Amazing life, at least it is to me!
Posted: March 25, 2019 by Leslie, Sammy's mom
By Heather Rinard The blades of the grass softly whispered their song in my ear, as I laid sprawled out on the checkered cloth, enjoying our teddy bear picnic. Momma made our childhood magical. From tea parties in the garden, family night games of drawing in the dark and Red hots in our hot cocoa …
Category: Embrace the Journey, Perspectives Tags: #familiesforhope, #gotHoPE, #holoprosencephaly #hope, #sharingHoPE, disability, family, holoprosencephaly awareness week, siblings, special needs