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Having HoPE will give you courage

A mother and her son’s journey with Treacher Collins Syndrome and HPE

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HoPE and the One Percenters

Please enjoy this YouTube video created by Rob Myers, Gabby’s dad, on #GivingTuesday. Thank you so much to Rob, Heidi, and Gabby for your commitment, support, and inspiration.  

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Thank you, thank you, thank you!

Thank you to Barb Brown for your $15 donation to Families for HoPE on #GivingTuesday! Thank you to Jane Merdic for your $15 donation on #GivingTuesday to Families for HoPE. So pleased and grateful to Mary Gamache for your $100…

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We need your #unselfie for #GivingTuesday!

Feel free to be creative and create your own sign or you can download and print a givingTuesday unselfie template here! Please send your #unselfie to info@FamiliesforHoPE.org, so that we can add your unselfie to our page!

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Faces of HoPE

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Meet Abigail

(Written by Michelle Alexander) 13 years ago, I laid bleeding to death. I had just seen my only baby girl for the first time without the fuzziness of an ultrasound. She was beautiful. For 7 hours, I laid in recovery…

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Meet Mary and Robert

(Submitted by Pat Wright) HPE is not a rare disorder in our immediate family, 50% of the children have HPE, and it has not prematurely taken the lives of the affected children, as one is 32-years old and the other…

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Songs for your journey of HoPE

Music often helps us get through different phases in our lives. We want to know what kind of music HPE families listen to, as they experience different moods. We have created some playlists on the Families for HoPE Pinterest board for different moods/themes!…

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Meet Maddox

Maddox’s parents–Philip and Hailey Brewer–have shared Maddox’s story in honor of Holoprosencephaly Awareness Week.  Check it out by clicking on the photo below . . .

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Bobby’s HoPE

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Unsung Heroes

In our journey with HPE, there are many people who make a difference . . . but there are some who are quiet, unsung heroes. . . those whom we can never thank enough, yet we owe them the world.

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March 10-16 is Holoprosencephaly Awareness Week!

March 10-16 has been designated as Holoprosencephaly Awareness Week! Over the course of the next several days, we would ask that you look for opportunities to share the HoPE you’ve found in Holoprosencephaly.  Use your favorite social media accounts to…

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#GivingTuesday . . . #SharingHoPE

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We need your #unselfie!

Feel free to be creative and create your own sign or you can download and print a givingTuesday unselfie template here! Please send your #unselfie to info@FamiliesforHoPE.org, so that we can add your unselfie to our collage!

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So very thankful . . .

We are thankful for each of the infants, children, and adults with HPE who have touched our hearts in countless ways–those born and unborn, living or deceased. We are thankful for our HPE parents.  We all remember the moment that…

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