Tag: #hpeawareness
We thank all who responded to the survey questions We recently asked families to share thoughts on the impact of Families for HoPE (FFH). We received powerful feedback from 127 survey respondents. Your responses to our survey questions help us chart the future of Families for HoPE. Because of you we will work to maintain …
Connected by HoPE, United by Love At Families for HoPE, we know that the journey with Holoprosencephaly can often feel like navigating a vast and unpredictable sea. This year, our theme—Connected by HoPE, United by Love—is a reminder that no family has to sail alone. The Anchor symbolizes the stability we find in one another; it is …
We are Connected by HoPE, United by Love The journey with Holoprosencephaly can often feel like navigating a vast and unpredictable sea. This year, our theme—Connected by HoPE, United by Love—is a reminder that no family has to sail alone. The Anchor symbolizes the stability we find in one another; it is the strength that keeps us …
John Hunsinger, President The board of directors of Families for HoPE elected John Hunsinger president of the board at its annual meeting on February 23. John has served on Families for HoPE’s board since November 2024. He is a resident of Wilmington, NC. His wife Amanda and John are the parents of three-year-old daughter …
Our daughter Grace Inez was a blue-eyed beauty with long eyelashes, perfect eyebrows, and the cutest dimple in her chin. Her captivating smile lit up every room she was in. Her laugh was contagious, and her sweet voice was music to our ears.
A Life Well Lived, A Legacy of Love Written By Lauren Edwards The Beginning Collins Monroe Brown changed the world more in her few short years on earth than many of us can even hope to in an entire lifetime. Collins was our first child and was born January 27, 2019. At the 20-week anatomy …
To make your giving more convenient, you can now give by text.
Order by MARCH 5 to receive in time for HPE Awareness Week
We are excited to announce that ShopRaise will make a $5.00 Bonus Donation* to Families for HoPE when you shop using the ShopRaise app for your first order over $50.00. This is a limited time offer. Please get the app and start shopping at over 1,200 retailers to support our mission. Every dollar raised will make …
It’s almost time for Holoprosencephaly Awareness Week, and we hope you will join Families for HoPE and HPE families around the globe in this awareness raising campaign. The week will kick off on Saturday, March 25 and run through Friday, March 31!
Tag: #hpeawareness
Families for HoPE 2025 Fall Family Survey Results
Posted: March 27, 2026 by lyndot71
We thank all who responded to the survey questions We recently asked families to share thoughts on the impact of Families for HoPE (FFH). We received powerful feedback from 127 survey respondents. Your responses to our survey questions help us chart the future of Families for HoPE. Because of you we will work to maintain …
Category: Perspectives Tags: #holoprosencephaly #hope, #hpeawareness, #hpefamilies, families for hope
2026 HPE Awareness Week is March 22nd – March 28th
Posted: March 4, 2026 by lyndot71
Connected by HoPE, United by Love At Families for HoPE, we know that the journey with Holoprosencephaly can often feel like navigating a vast and unpredictable sea. This year, our theme—Connected by HoPE, United by Love—is a reminder that no family has to sail alone. The Anchor symbolizes the stability we find in one another; it is …
Category: Holoprosencephaly Awareness Week Tags: #familiesforhope, #holoprosencephaly #hope, #hpeawareness, HPE
Celebrate HPE Awareness Week 2026 – March 22nd – March 28th
Posted: March 2, 2026 by lyndot71
We are Connected by HoPE, United by Love The journey with Holoprosencephaly can often feel like navigating a vast and unpredictable sea. This year, our theme—Connected by HoPE, United by Love—is a reminder that no family has to sail alone. The Anchor symbolizes the stability we find in one another; it is the strength that keeps us …
Category: Anchors of HoPE, HPE Awareness Week 2026 Tags: #familiesforhope, #holoprosencephaly #hope, #hpeawareness, #hpefamilies, #sharingHoPE, HPE
Families for HoPE Board Names New President John Hunsinger
Posted: February 27, 2026 by lyndot71
John Hunsinger, President The board of directors of Families for HoPE elected John Hunsinger president of the board at its annual meeting on February 23. John has served on Families for HoPE’s board since November 2024. He is a resident of Wilmington, NC. His wife Amanda and John are the parents of three-year-old daughter …
Category: General Tags: #familiesforhope, #holoprosencephaly #hope, #hpeawareness, #sharingHoPE
Celebrating HPE Awareness Week, Sharing Our Families’ Stories
Posted: March 27, 2024 by lyndot71
Our daughter Grace Inez was a blue-eyed beauty with long eyelashes, perfect eyebrows, and the cutest dimple in her chin. Her captivating smile lit up every room she was in. Her laugh was contagious, and her sweet voice was music to our ears.
Category: Child of HoPE, Grief, Holoprosencephaly Awareness Week, Inspiration Tags: #hpeawareness, 2024 HPE Awareness Week, families for hope, grace, grace inez, holoprosencephaly, HoPE
Celebrating HPE Awareness Week, Sharing Our Families’ Stories
Posted: March 26, 2024 by lyndot71
A Life Well Lived, A Legacy of Love Written By Lauren Edwards The Beginning Collins Monroe Brown changed the world more in her few short years on earth than many of us can even hope to in an entire lifetime. Collins was our first child and was born January 27, 2019. At the 20-week anatomy …
Category: Child of HoPE, Guest Authors, Holoprosencephaly Awareness Week, Inspiration Tags: #hpeawareness, 2024 HPE Awareness Week, collins, collins brown, families for hope, HoPE
Text to Give
Posted: March 15, 2024 by Leslie, Sammy's mom
To make your giving more convenient, you can now give by text.
Category: Fundraising Tags: #hpeawareness, giving, HoPE, text to give
HoPE U T-Shirts – Order by March 8
Posted: February 28, 2024 by Leslie, Sammy's mom
Order by MARCH 5 to receive in time for HPE Awareness Week
Category: Fundraising, Holoprosencephaly Awareness Week Tags: #hpeawareness, awareness, education, holoprosencephaly, HoPE U, medical, t-shirt
Shop Over 1,200 Retailers and Raise for Families for HoPE
Posted: February 12, 2024 by lyndot71
We are excited to announce that ShopRaise will make a $5.00 Bonus Donation* to Families for HoPE when you shop using the ShopRaise app for your first order over $50.00. This is a limited time offer. Please get the app and start shopping at over 1,200 retailers to support our mission. Every dollar raised will make …
Category: Fundraising Tags: #familiesforhope, #hpeawareness, #shopraise, holoprosencephaly, HoPE
Holoprosencephaly Awareness Week 2023
Posted: March 14, 2023 by Leslie, Sammy's mom
It’s almost time for Holoprosencephaly Awareness Week, and we hope you will join Families for HoPE and HPE families around the globe in this awareness raising campaign. The week will kick off on Saturday, March 25 and run through Friday, March 31!
Category: Holoprosencephaly Awareness Week Tags: #hpeawareness, awareness, holoprosencephaly, HoPE