Category: Holoprosencephaly Awareness Week


Coloring

Coloring is a hot trend for adults, and gathering a group of individuals together to color is a unique way to raise awareness of HPE!  If you are interested in using coloring as a way to raise awareness of HPE…

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A lasting memorial

As we approach Holoprosencephaly Awareness Week on March 27-April 2, we wanted to find a special and lasting way to memorialize all of our precious children who have passed away with HPE. As you may know, at each of our…

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Journey of HoPE to Dallas

In July 2016, over 70 HPE families embarked on a journey from all corners of the U.S. to Dallas, Texas for the 2016 Family Conference on HPE.  Held biennially, the conference is a collaborative endeavor among Families for HoPE, the…

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Opportunity strikes

National Holoprosencephaly Awareness Week March 27th – April 2nd.   We are often approached by HPE families seeking ideas for raising awareness for HPE in their local communities. One of the hottest trends right now is coloring books for adults. Haven’t…

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HPE Awareness Week 2015 – Social Media Tools

Please feel free to download and share these items on social media to help raise awareness of HPE during Holoprosencephaly Awareness Week 2015, March 23-29.  

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HoPE is on YouTube

This playlist features children with HPE.  Sit back, relax, and prepare to smile as you see these beautiful miracles–Eva, Madelyn, Sammy, Marissa, Maeve, Cameron.  Do you have a video you’d like to share with us, please comment below and include…

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HPE Families, Start Your Engines!

The 1st Annual Holoprosencephaly Awareness Week kicks off tomorrow!  We want to hear what you and your family and friends are doing to help raise awareness and educate others about this condition that has made such an impact on our…

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Celebrate HPE Awareness Week

LINKS: Miche Scentsy Thirty-One Blessings Unlimited Pampered Chef Premiere Designs

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Celebrate HPE Awareness Week

LINKS: Miche Scentsy Thirty-One Blessings Unlimited Pampered Chef Premiere Designs

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