Today, we are celebrating our HPE community and what that community means to us. Please share how Families for HoPE and other HPE families or children with HPE have influenced your journey of HoPE.
On day 3 of Holoprosencephaly Awareness Week, we invite you to be a storyteller. Tell the story of one of the best days ever in the life of your child or family.
To celebrate day 2 of Holoprosencephaly Awareness Week, we are repeating a blog entry from October 2019 when Sarah Brown recorded Colors of the Wind in honor of our HPE community.
In preparation for Holoprosencephaly Awareness Week, we are happy to share a template you can use on social media in coordination with the daily prompts and activities.
It’s almost time for Holoprosencephaly Awareness Week, and we hope you will join Families for HoPE and HPE families around the globe in this awareness raising campaign. The week will kick off on Saturday, March 25 and run through Friday, March 31!
Posted: March 30, 2023 by Leslie, Sammy's mom
We are Family
Today, we are celebrating our HPE community and what that community means to us. Please share how Families for HoPE and other HPE families or children with HPE have influenced your journey of HoPE.
Posted: March 28, 2023 by Leslie, Sammy's mom
It’s day 4 of Holoprosencephaly Awareness Week, and this is a perfect opportunity to show some creativity and put a smile on the face of another.
Posted: March 27, 2023 by Leslie, Sammy's mom
Oh, What a Night (or Day)
On day 3 of Holoprosencephaly Awareness Week, we invite you to be a storyteller. Tell the story of one of the best days ever in the life of your child or family.
Posted: March 25, 2023 by Leslie, Sammy's mom
Colors of the Wind
To celebrate day 2 of Holoprosencephaly Awareness Week, we are repeating a blog entry from October 2019 when Sarah Brown recorded Colors of the Wind in honor of our HPE community.
Posted: March 25, 2023 by Leslie, Sammy's mom
Cover Me in Sunshine
Today kicks off Holoprosencephaly Awareness Week! Today’s theme is “Cover Me in Sunshine”.
Posted: March 22, 2023 by Leslie, Sammy's mom
Awareness Week kicks off on Saturday, March 25
In preparation for Holoprosencephaly Awareness Week, we are happy to share a template you can use on social media in coordination with the daily prompts and activities.
Posted: March 14, 2023 by Leslie, Sammy's mom
Holoprosencephaly Awareness Week 2023
It’s almost time for Holoprosencephaly Awareness Week, and we hope you will join Families for HoPE and HPE families around the globe in this awareness raising campaign. The week will kick off on Saturday, March 25 and run through Friday, March 31!
Posted: February 27, 2022 by Leslie, Sammy's mom
HPE Awareness Week
Holoprosencephaly Awareness Week is March 20-26, 2022.
Posted: February 16, 2022 by Leslie, Sammy's mom
Awareness Shirts
New t-shirts are now available to order just in time for Holoprosencephaly Awareness Week!
Posted: March 21, 2021 by Leslie, Sammy's mom
Paint with HoPE