What is it really…this HOPE? And why is it so important? Hope is something we can feel, but hope is also an intentional choice. Definition; hope /hōp/ a feeling of expectation and desire for a certain thing to happen.”he looked through her belongings in the hope of coming across some information” synonyms: aspiration, desire, wish, expectation, ambition, …
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Posted: March 22, 2023 by Leslie, Sammy's mom
Awareness Week kicks off on Saturday, March 25
In preparation for Holoprosencephaly Awareness Week, we are happy to share a template you can use on social media in coordination with the daily prompts and activities.
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Posted: March 14, 2023 by Leslie, Sammy's mom
Holoprosencephaly Awareness Week 2023
It’s almost time for Holoprosencephaly Awareness Week, and we hope you will join Families for HoPE and HPE families around the globe in this awareness raising campaign. The week will kick off on Saturday, March 25 and run through Friday, March 31!
Posted: February 27, 2022 by Leslie, Sammy's mom
HPE Awareness Week
Holoprosencephaly Awareness Week is March 20-26, 2022.
Posted: February 16, 2022 by Leslie, Sammy's mom
Awareness Shirts
New t-shirts are now available to order just in time for Holoprosencephaly Awareness Week!
Posted: March 21, 2021 by Leslie, Sammy's mom
Paint with HoPE
Posted: March 29, 2019 by CharlieDawns momma
Words
By: Kelli Aardal Goin Words she never got to say, However communicated in a big way.
Posted: March 27, 2019 by CharlieDawns momma
Where we are
By Nikki Tuma Here is a little story about Kreighton that got us to where we are today.
Posted: March 26, 2019 by Leslie, Sammy's mom
Walk Around The World
As HPE families, what can we do to share our HoPE and holoprosencephaly with the world?
Posted: March 26, 2019 by CharlieDawns momma
What HoPE means to us
What is it really…this HOPE? And why is it so important? Hope is something we can feel, but hope is also an intentional choice. Definition; hope /hōp/ a feeling of expectation and desire for a certain thing to happen.”he looked through her belongings in the hope of coming across some information” synonyms: aspiration, desire, wish, expectation, ambition, …
Posted: March 25, 2018 by Leslie, Sammy's mom
HPE Awareness Week
Holo. . . what?