What is it really…this HOPE? And why is it so important? Hope is something we can feel, but hope is also an intentional choice. Definition; hope /hōp/ a feeling of expectation and desire for a certain thing to happen.”he looked through her belongings in the hope of coming across some information” synonyms: aspiration, desire, wish, expectation, ambition, …
Posted: March 21, 2021 by Leslie, Sammy's mom
Paint with HoPE
Posted: March 29, 2019 by Leslie, Sammy's mom
Words
By: Kelli Aardal Goin Words she never got to say, However communicated in a big way.
Posted: March 27, 2019 by Leslie, Sammy's mom
Where we are
By Nikki Tuma Here is a little story about Kreighton that got us to where we are today.
Posted: March 26, 2019 by Leslie, Sammy's mom
Walk Around The World
As HPE families, what can we do to share our HoPE and holoprosencephaly with the world?
Posted: March 26, 2019 by Leslie, Sammy's mom
What HoPE means to us
What is it really…this HOPE? And why is it so important? Hope is something we can feel, but hope is also an intentional choice. Definition; hope /hōp/ a feeling of expectation and desire for a certain thing to happen.”he looked through her belongings in the hope of coming across some information” synonyms: aspiration, desire, wish, expectation, ambition, …
Posted: March 25, 2018 by Leslie, Sammy's mom
HPE Awareness Week
Holo. . . what?
Posted: March 26, 2017 by Leslie, Sammy's mom
Coloring
Coloring is a hot trend for adults, and gathering a group of individuals together to color is a unique way to raise awareness of HPE! If you are interested in using coloring as a way to raise awareness of HPE and raise funds for Families for HoPE, we can help you do so. If you …
Posted: March 9, 2017 by Leslie, Sammy's mom
A lasting memorial
As we approach Holoprosencephaly Awareness Week on March 27-April 2, we wanted to find a special and lasting way to memorialize all of our precious children who have passed away with HPE. As you may know, at each of our Family Conferences on HPE we do a memorial balloon release, and each balloon carries a …
Posted: March 17, 2016 by Leslie, Sammy's mom
Opportunity strikes
National Holoprosencephaly Awareness Week March 27th – April 2nd. We are often approached by HPE families seeking ideas for raising awareness for HPE in their local communities. One of the hottest trends right now is coloring books for adults. Haven’t you seen them in nearly every retail store lately? A few weeks ago, I …
Posted: March 25, 2015 by Leslie, Sammy's mom
Online Friends
A vast majority of our HPE families found HoPE through online friendships. Here’s to all of the HPE BFFs!