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My Amazing life, at least it is to me!

By Heather Rinard The blades of the grass softly whispered their song in my ear, as I laid sprawled out on the checkered cloth, enjoying our teddy bear picnic. Momma made our childhood magical. From tea parties in the garden,…

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Never Lose HoPE

Guest Author: Melissa, Isaiah’s mom Our journey started on January 11, 2016 when we found out we we were pregnant with Isaiah. When I was 18 weeks, my primary OBGYN noticed something wrong with Isaiah’s head. He wasn’t sure what…

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There is always HoPE

By Amy L. Springer, Guest Author I learned that I was pregnant February 24, 1994. I had a sonogram like normal and all was good. I later started to have problems with bleeding, so we did another sonogram, which showed…

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Back by Popular Demand . . . HPE Awareness Week Apparel

Due to the popularity of the HoPE University apparel, we are extending the campaign until April 6!  If you missed the first opportunity to order or you wish you had ordered more, here is your chance! Holoprosencephaly 101: 17 letters….

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We need your #unselfie for #GivingTuesday!

Feel free to be creative and create your own sign or you can download and print a givingTuesday unselfie template here! Please send your #unselfie to info@FamiliesforHoPE.org, so that we can add your unselfie to our page!

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June 14 – Racing for HoPE 2014

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June 7 – Racing for HoPE 2014

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Meet Maddox

Maddox’s parents–Philip and Hailey Brewer–have shared Maddox’s story in honor of Holoprosencephaly Awareness Week.  Check it out by clicking on the photo below . . .

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Bobby’s HoPE

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Unsung Heroes

In our journey with HPE, there are many people who make a difference . . . but there are some who are quiet, unsung heroes. . . those whom we can never thank enough, yet we owe them the world.

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#GivingTuesday . . . #SharingHoPE

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We need your #unselfie!

Feel free to be creative and create your own sign or you can download and print a givingTuesday unselfie template here! Please send your #unselfie to info@FamiliesforHoPE.org, so that we can add your unselfie to our collage!

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So very thankful . . .

We are thankful for each of the infants, children, and adults with HPE who have touched our hearts in countless ways–those born and unborn, living or deceased. We are thankful for our HPE parents.  We all remember the moment that…

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