After careful consideration, we have arrived at the difficult decision to cancel the Family Conference on Holoprosencephaly which had been rescheduled for June 2021 (postponed from June 2020).
Written by Roxanne Steele Growing up in Indiana in the 1970’s and 80’s, I have to admit I never encountered many people who were different. Yes different races and economic factors but not anyone with any real disability.
By Heather Rinard The blades of the grass softly whispered their song in my ear, as I laid sprawled out on the checkered cloth, enjoying our teddy bear picnic. Momma made our childhood magical. From tea parties in the garden, family night games of drawing in the dark and Red hots in our hot cocoa …
Guest Author: Melissa, Isaiah’s mom Our journey started on January 11, 2016 when we found out we we were pregnant with Isaiah. When I was 18 weeks, my primary OBGYN noticed something wrong with Isaiah’s head. He wasn’t sure what was going on, so he sent us to a maternal fetal medicine specialist. This doctor …
Category: Embrace the Journey, Guest Authors Tags: #familiesforhope, #holoprosencephaly #hope, #sharingHoPE, awareness, Carter Centers, diagnosis, disability, Embrace the Journey, family, holoprosencephaly, HoPE, HPE, prenatal, special needs
By Amy L. Springer, Guest Author I learned that I was pregnant February 24, 1994. I had a sonogram like normal and all was good. I later started to have problems with bleeding, so we did another sonogram, which showed the baby to have a “lemon-shaped head” and I had placenta previa so a follow …
Category: Guest Authors Tags: #holoprosencephaly #hope, diagnosis, disability, Embrace the Journey, happy, holoprosencephaly, HoPE, HPE, journey, laughter, special needs
Feel free to be creative and create your own sign or you can download and print a givingTuesday unselfie template here! Please send your #unselfie to info@FamiliesforHoPE.org, so that we can add your unselfie to our page!
Tag: #holoprosencephaly #hope
Join our Fundraising Committee
Posted: May 27, 2023 by Leslie, Sammy's mom
Category: Fundraising Tags: #holoprosencephaly #hope, fundraising, get involved
Save the Date!
Posted: April 12, 2021 by Leslie, Sammy's mom
Category: HPE Conference Tags: #holoprosencephaly #hope, conference, Great Wolf Lodge
Important Update from Families for HoPE
Posted: May 17, 2020 by Leslie, Sammy's mom
After careful consideration, we have arrived at the difficult decision to cancel the Family Conference on Holoprosencephaly which had been rescheduled for June 2021 (postponed from June 2020).
Category: HPE Conference Tags: #holoprosencephaly #hope, conference, holoprosencephaly, HoPE
Roxanne Steele
Posted: July 22, 2019 by Leslie, Sammy's mom
Written by Roxanne Steele Growing up in Indiana in the 1970’s and 80’s, I have to admit I never encountered many people who were different. Yes different races and economic factors but not anyone with any real disability.
Category: Guest Authors, Inspiration Tags: #holoprosencephaly #hope, #sharingHoPE, awareness, disability, holoprosencephaly, HoPE, HPE, life, special needs
My Amazing life, at least it is to me!
Posted: March 25, 2019 by Leslie, Sammy's mom
By Heather Rinard The blades of the grass softly whispered their song in my ear, as I laid sprawled out on the checkered cloth, enjoying our teddy bear picnic. Momma made our childhood magical. From tea parties in the garden, family night games of drawing in the dark and Red hots in our hot cocoa …
Category: Embrace the Journey, Perspectives Tags: #familiesforhope, #gotHoPE, #holoprosencephaly #hope, #sharingHoPE, disability, family, holoprosencephaly awareness week, siblings, special needs
Never Lose HoPE
Posted: July 30, 2018 by Leslie, Sammy's mom
Guest Author: Melissa, Isaiah’s mom Our journey started on January 11, 2016 when we found out we we were pregnant with Isaiah. When I was 18 weeks, my primary OBGYN noticed something wrong with Isaiah’s head. He wasn’t sure what was going on, so he sent us to a maternal fetal medicine specialist. This doctor …
Category: Embrace the Journey, Guest Authors Tags: #familiesforhope, #holoprosencephaly #hope, #sharingHoPE, awareness, Carter Centers, diagnosis, disability, Embrace the Journey, family, holoprosencephaly, HoPE, HPE, prenatal, special needs
There is always HoPE
Posted: January 13, 2018 by Leslie, Sammy's mom
By Amy L. Springer, Guest Author I learned that I was pregnant February 24, 1994. I had a sonogram like normal and all was good. I later started to have problems with bleeding, so we did another sonogram, which showed the baby to have a “lemon-shaped head” and I had placenta previa so a follow …
Category: Guest Authors Tags: #holoprosencephaly #hope, diagnosis, disability, Embrace the Journey, happy, holoprosencephaly, HoPE, HPE, journey, laughter, special needs
We need your #unselfie for #GivingTuesday!
Posted: December 2, 2014 by Leslie, Sammy's mom
Feel free to be creative and create your own sign or you can download and print a givingTuesday unselfie template here! Please send your #unselfie to info@FamiliesforHoPE.org, so that we can add your unselfie to our page!
Category: #GivingTuesday, Holidays Tags: #holoprosencephaly #hope, #sharingHoPE, #unselfie, givingtuesday
June 14 – Racing for HoPE 2014
Posted: June 14, 2014 by Leslie, Sammy's mom
Category: Racing for HoPE Tags: #holoprosencephaly #hope, HPE, Josh Timmerman, racing for HoPE, Walk
June 7 – Racing for HoPE 2014
Posted: June 7, 2014 by Leslie, Sammy's mom
Category: Racing for HoPE Tags: #holoprosencephaly #hope, Josh Timmerman, racing for HoPE, Skylar