After careful consideration, we have arrived at the difficult decision to cancel the Family Conference on Holoprosencephaly which had been rescheduled for June 2021 (postponed from June 2020).
Tag: #holoprosencephaly #hope
Updated on August 3, 2019 by CharlieDawns momma
Written by Roxanne Steele Growing up in Indiana in the 1970’s and 80’s, I have to admit I never encountered many people who were different. Yes different races and economic factors but not anyone with any real disability.
Updated on January 29, 2020 by CharlieDawns momma
By Heather Rinard The blades of the grass softly whispered their song in my ear, as I laid sprawled out on the checkered cloth, enjoying our teddy bear picnic. Momma made our childhood magical. From tea parties in the garden, family night games of drawing in the dark and Red hots in our hot cocoa …
Updated on June 19, 2019 by CharlieDawns momma
Guest Author: Melissa, Isaiah’s mom Our journey started on January 11, 2016 when we found out we we were pregnant with Isaiah. When I was 18 weeks, my primary OBGYN noticed something wrong with Isaiah’s head. He wasn’t sure what was going on, so he sent us to a maternal fetal medicine specialist. This doctor …
Updated on January 14, 2018 by CharlieDawns momma
By Amy L. Springer, Guest Author I learned that I was pregnant February 24, 1994. I had a sonogram like normal and all was good. I later started to have problems with bleeding, so we did another sonogram, which showed the baby to have a “lemon-shaped head” and I had placenta previa so a follow …
Updated on March 27, 2015 by Leslie, Sammy's mom
Due to the popularity of the HoPE University apparel, we are extending the campaign until April 6! If you missed the first opportunity to order or you wish you had ordered more, here is your chance! Holoprosencephaly 101: 17 letters. 7 syllables. Abbreviated as HPE. To learn about HPE, there are no formal classes offering …
Updated on December 3, 2014 by Leslie, Sammy's mom
Feel free to be creative and create your own sign or you can download and print a givingTuesday unselfie template here! Please send your #unselfie to info@FamiliesforHoPE.org, so that we can add your unselfie to our page!
Posted on June 14, 2014 by Leslie, Sammy's mom
Posted on June 7, 2014 by Leslie, Sammy's mom
Posted on March 12, 2014 by Leslie, Sammy's mom
Maddox’s parents–Philip and Hailey Brewer–have shared Maddox’s story in honor of Holoprosencephaly Awareness Week. Check it out by clicking on the photo below . . .