888-533-4443 Info@FamiliesforHoPE.org 1219 N. Wittfield Street, Indianapolis, IN 46229

Tag: #holoprosencephaly #hope

My Amazing life, at least it is to me!

By Heather Rinard The blades of the grass softly whispered their song in my ear, as I laid sprawled out on the checkered cloth, enjoying our teddy bear picnic. Momma made our childhood magical. From tea parties in the garden, family night games of drawing in the dark and Red hots in our hot cocoa …

Never Lose HoPE

Guest Author: Melissa, Isaiah’s mom Our journey started on January 11, 2016 when we found out we we were pregnant with Isaiah. When I was 18 weeks, my primary OBGYN noticed something wrong with Isaiah’s head. He wasn’t sure what was going on, so he sent us to a maternal fetal medicine specialist. This doctor …

There is always HoPE

By Amy L. Springer, Guest Author I learned that I was pregnant February 24, 1994. I had a sonogram like normal and all was good. I later started to have problems with bleeding, so we did another sonogram, which showed the baby to have a “lemon-shaped head” and I had placenta previa so a follow …

Back by Popular Demand . . . HPE Awareness Week Apparel

Due to the popularity of the HoPE University apparel, we are extending the campaign until April 6!  If you missed the first opportunity to order or you wish you had ordered more, here is your chance! Holoprosencephaly 101: 17 letters. 7 syllables. Abbreviated as HPE. To learn about HPE, there are no formal classes offering …