Tag: #holoprosencephaly #hope
After careful consideration, we have arrived at the difficult decision to cancel the Family Conference on Holoprosencephaly which had been rescheduled for June 2021 (postponed from June 2020).
Updated on August 3, 2019 by CharlieDawns momma
Written by Roxanne Steele Growing up in Indiana in the 1970’s and 80’s, I have to admit I never encountered many people who were different. Yes different races and economic factors but not anyone with any real disability.
Updated on January 29, 2020 by CharlieDawns momma
By Heather Rinard The blades of the grass softly whispered their song in my ear, as I laid sprawled out on the checkered cloth, enjoying our teddy bear picnic. Momma made our childhood magical. From tea parties in the garden, family night games of drawing in the dark and Red hots in our hot cocoa …
Updated on June 19, 2019 by CharlieDawns momma
Guest Author: Melissa, Isaiah’s mom Our journey started on January 11, 2016 when we found out we we were pregnant with Isaiah. When I was 18 weeks, my primary OBGYN noticed something wrong with Isaiah’s head. He wasn’t sure what was going on, so he sent us to a maternal fetal medicine specialist. This doctor …
Category: Embrace the Journey, Guest Authors Tags: #familiesforhope, #holoprosencephaly #hope, #sharingHoPE, awareness, Carter Centers, diagnosis, disability, Embrace the Journey, family, holoprosencephaly, HoPE, HPE, prenatal, special needs
Updated on January 14, 2018 by CharlieDawns momma
By Amy L. Springer, Guest Author I learned that I was pregnant February 24, 1994. I had a sonogram like normal and all was good. I later started to have problems with bleeding, so we did another sonogram, which showed the baby to have a “lemon-shaped head” and I had placenta previa so a follow …
Category: Guest Authors Tags: #holoprosencephaly #hope, diagnosis, disability, Embrace the Journey, happy, holoprosencephaly, HoPE, HPE, journey, laughter, special needs
Updated on March 27, 2015 by Leslie, Sammy's mom
Due to the popularity of the HoPE University apparel, we are extending the campaign until April 6! If you missed the first opportunity to order or you wish you had ordered more, here is your chance! Holoprosencephaly 101: 17 letters. 7 syllables. Abbreviated as HPE. To learn about HPE, there are no formal classes offering …
Updated on December 3, 2014 by Leslie, Sammy's mom
Feel free to be creative and create your own sign or you can download and print a givingTuesday unselfie template here! Please send your #unselfie to info@FamiliesforHoPE.org, so that we can add your unselfie to our page!
Posted on June 14, 2014 by Leslie, Sammy's mom
Posted on June 7, 2014 by Leslie, Sammy's mom
Posted on March 12, 2014 by Leslie, Sammy's mom
Maddox’s parents–Philip and Hailey Brewer–have shared Maddox’s story in honor of Holoprosencephaly Awareness Week. Check it out by clicking on the photo below . . .
Category: Child of HoPE, Holoprosencephaly Awareness Week 2014, Inspiration, Leslie, Perspectives Tags: #holoprosencephaly #hope, #sharingHoPE, awareness, brewer, maddox, philip, riley hospital
Tag: #holoprosencephaly #hope
Important Update from Families for HoPE
Posted on May 17, 2020 by Leslie, Sammy's mom
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After careful consideration, we have arrived at the difficult decision to cancel the Family Conference on Holoprosencephaly which had been rescheduled for June 2021 (postponed from June 2020).
Category: HPE Conference Tags: #holoprosencephaly #hope, conference, holoprosencephaly, HoPE
Roxanne Steele
Updated on August 3, 2019 by CharlieDawns momma
Written by Roxanne Steele Growing up in Indiana in the 1970’s and 80’s, I have to admit I never encountered many people who were different. Yes different races and economic factors but not anyone with any real disability.
Category: Guest Authors, Inspiration Tags: #holoprosencephaly #hope, #sharingHoPE, awareness, disability, holoprosencephaly, HoPE, HPE, life, special needs
My Amazing life, at least it is to me!
Updated on January 29, 2020 by CharlieDawns momma
By Heather Rinard The blades of the grass softly whispered their song in my ear, as I laid sprawled out on the checkered cloth, enjoying our teddy bear picnic. Momma made our childhood magical. From tea parties in the garden, family night games of drawing in the dark and Red hots in our hot cocoa …
Category: Embrace the Journey, Perspectives Tags: #familiesforhope, #gotHoPE, #holoprosencephaly #hope, #sharingHoPE, disability, family, holoprosencephaly awareness week, siblings, special needs
Never Lose HoPE
Updated on June 19, 2019 by CharlieDawns momma
Guest Author: Melissa, Isaiah’s mom Our journey started on January 11, 2016 when we found out we we were pregnant with Isaiah. When I was 18 weeks, my primary OBGYN noticed something wrong with Isaiah’s head. He wasn’t sure what was going on, so he sent us to a maternal fetal medicine specialist. This doctor …
Category: Embrace the Journey, Guest Authors Tags: #familiesforhope, #holoprosencephaly #hope, #sharingHoPE, awareness, Carter Centers, diagnosis, disability, Embrace the Journey, family, holoprosencephaly, HoPE, HPE, prenatal, special needs
There is always HoPE
Updated on January 14, 2018 by CharlieDawns momma
By Amy L. Springer, Guest Author I learned that I was pregnant February 24, 1994. I had a sonogram like normal and all was good. I later started to have problems with bleeding, so we did another sonogram, which showed the baby to have a “lemon-shaped head” and I had placenta previa so a follow …
Category: Guest Authors Tags: #holoprosencephaly #hope, diagnosis, disability, Embrace the Journey, happy, holoprosencephaly, HoPE, HPE, journey, laughter, special needs
Back by Popular Demand . . . HPE Awareness Week Apparel
Updated on March 27, 2015 by Leslie, Sammy's mom
Due to the popularity of the HoPE University apparel, we are extending the campaign until April 6! If you missed the first opportunity to order or you wish you had ordered more, here is your chance! Holoprosencephaly 101: 17 letters. 7 syllables. Abbreviated as HPE. To learn about HPE, there are no formal classes offering …
Category: Holoprosencephaly Awareness Week 2015 Tags: #familiesforhope, #holoprosencephaly #hope, 2015 HPE Awareness Week, awareness, fundraiser, fundraising, HoPE U
We need your #unselfie for #GivingTuesday!
Updated on December 3, 2014 by Leslie, Sammy's mom
Feel free to be creative and create your own sign or you can download and print a givingTuesday unselfie template here! Please send your #unselfie to info@FamiliesforHoPE.org, so that we can add your unselfie to our page!
Category: #GivingTuesday, Holidays Tags: #holoprosencephaly #hope, #sharingHoPE, #unselfie, givingtuesday
June 14 – Racing for HoPE 2014
Posted on June 14, 2014 by Leslie, Sammy's mom
Category: Racing for HoPE Tags: #holoprosencephaly #hope, HPE, Josh Timmerman, racing for HoPE, Walk
June 7 – Racing for HoPE 2014
Posted on June 7, 2014 by Leslie, Sammy's mom
Category: Racing for HoPE Tags: #holoprosencephaly #hope, Josh Timmerman, racing for HoPE, Skylar
Meet Maddox
Posted on March 12, 2014 by Leslie, Sammy's mom
Maddox’s parents–Philip and Hailey Brewer–have shared Maddox’s story in honor of Holoprosencephaly Awareness Week. Check it out by clicking on the photo below . . .
Category: Child of HoPE, Holoprosencephaly Awareness Week 2014, Inspiration, Leslie, Perspectives Tags: #holoprosencephaly #hope, #sharingHoPE, awareness, brewer, maddox, philip, riley hospital