Maddox’s parents–Philip and Hailey Brewer–have shared Maddox’s story in honor of Holoprosencephaly Awareness Week. Check it out by clicking on the photo below . . .
Category: Child of HoPE, Holoprosencephaly Awareness Week 2014, Inspiration, Leslie, Perspectives Tags: #holoprosencephaly #hope, #sharingHoPE, awareness, brewer, maddox, philip, riley hospital
In our journey with HPE, there are many people who make a difference . . . but there are some who are quiet, unsung heroes. . . those whom we can never thank enough, yet we owe them the world.
Feel free to be creative and create your own sign or you can download and print a givingTuesday unselfie template here! Please send your #unselfie to info@FamiliesforHoPE.org, so that we can add your unselfie to our collage!
We are thankful for each of the infants, children, and adults with HPE who have touched our hearts in countless ways–those born and unborn, living or deceased. We are thankful for our HPE parents. We all remember the moment that the word “holoprosencephaly” became a part of our vocabulary, and we are grateful to have …
Category: #GivingTuesday, Holidays, Inspiration, Leslie, Perspectives Tags: #givingthanks, #givingtuesday, #holoprosencephaly #hope, #sharingHoPE, #thankful, #thanksgiving, help
Tag: #holoprosencephaly #hope
Meet Maddox
Posted: March 12, 2014 by Leslie, Sammy's mom
Maddox’s parents–Philip and Hailey Brewer–have shared Maddox’s story in honor of Holoprosencephaly Awareness Week. Check it out by clicking on the photo below . . .
Category: Child of HoPE, Holoprosencephaly Awareness Week 2014, Inspiration, Leslie, Perspectives Tags: #holoprosencephaly #hope, #sharingHoPE, awareness, brewer, maddox, philip, riley hospital
Bobby’s HoPE
Posted: March 11, 2014 by Leslie, Sammy's mom
Category: Child of HoPE, Holoprosencephaly Awareness Week 2014, Inspiration Tags: #holoprosencephaly #hope, #sharingHoPE, awareness, bobby, tom krause
Unsung Heroes
Posted: March 11, 2014 by Leslie, Sammy's mom
In our journey with HPE, there are many people who make a difference . . . but there are some who are quiet, unsung heroes. . . those whom we can never thank enough, yet we owe them the world.
Category: Holoprosencephaly Awareness Week 2014, Inspiration Tags: #holoprosencephaly #hope, #sharingHoPE, heroes, super, super hero, thanks, unsung
#GivingTuesday . . . #SharingHoPE
Posted: December 4, 2013 by Leslie, Sammy's mom
Category: #GivingTuesday, Holidays, Inspiration Tags: #givingtuesday, #holoprosencephaly #hope, #sharingHoPE, #unselfie, get involved
We need your #unselfie!
Posted: December 1, 2013 by Leslie, Sammy's mom
Feel free to be creative and create your own sign or you can download and print a givingTuesday unselfie template here! Please send your #unselfie to info@FamiliesforHoPE.org, so that we can add your unselfie to our collage!
Category: #GivingTuesday, Holidays Tags: #givingtuesday, #holoprosencephaly #hope, #sharingHoPE, #unselfie
So very thankful . . .
Posted: November 28, 2013 by Leslie, Sammy's mom
We are thankful for each of the infants, children, and adults with HPE who have touched our hearts in countless ways–those born and unborn, living or deceased. We are thankful for our HPE parents. We all remember the moment that the word “holoprosencephaly” became a part of our vocabulary, and we are grateful to have …
Category: #GivingTuesday, Holidays, Inspiration, Leslie, Perspectives Tags: #givingthanks, #givingtuesday, #holoprosencephaly #hope, #sharingHoPE, #thankful, #thanksgiving, help