By Heather Rinard The blades of the grass softly whispered their song in my ear, as I laid sprawled out on the checkered cloth, enjoying our teddy bear picnic. Momma made our childhood magical. From tea parties in the garden, family night games of drawing in the dark and Red hots in our hot cocoa …
HPE siblings embrace the journey
We want you to join us as A Family of HoPE at the 2016 Family Conference on Holoprosencephaly in Dallas, Texas on July 12-15 presented by Families for HoPE, Inc. and Carter Centers for Brain Research in Holoprosencephaly and Related Malformations. This conference is for families and persons who are affected by HPE, their extended …
Flackback Friday – April 2006 HPE Family Weekend and Conference Indianapolis, Indiana, USA April 21-23, 2006 Co-sponsored by Families for HoPE, Inc. and the Carter Centers at Kennedy Krieger Institute The Highlights The HPE Family Weekend & Conference, co-sponsored by Families for HoPE and the Carter Center at Kennedy Krieger Institute, was truly a weekend …
Tag: siblings
My Amazing life, at least it is to me!
Posted: March 25, 2019 by Leslie, Sammy's mom
By Heather Rinard The blades of the grass softly whispered their song in my ear, as I laid sprawled out on the checkered cloth, enjoying our teddy bear picnic. Momma made our childhood magical. From tea parties in the garden, family night games of drawing in the dark and Red hots in our hot cocoa …
Category: Embrace the Journey, Perspectives Tags: #familiesforhope, #gotHoPE, #holoprosencephaly #hope, #sharingHoPE, disability, family, holoprosencephaly awareness week, siblings, special needs
New Friends
Posted: March 8, 2018 by Leslie, Sammy's mom
HPE siblings embrace the journey
Category: Embrace the Journey, HPE Conference Tags: #BFGIndy, conference, dalton, Embrace the Journey, happy, nick, siblings
Registration is open for 2016 Family Conference on HPE
Posted: January 12, 2016 by Leslie, Sammy's mom
We want you to join us as A Family of HoPE at the 2016 Family Conference on Holoprosencephaly in Dallas, Texas on July 12-15 presented by Families for HoPE, Inc. and Carter Centers for Brain Research in Holoprosencephaly and Related Malformations. This conference is for families and persons who are affected by HPE, their extended …
Category: HPE Conference Tags: conference, dallas, holoprosencephaly, HPE, siblings
2006 HPE Family Conference
Posted: March 15, 2006 by Leslie, Sammy's mom
Flackback Friday – April 2006 HPE Family Weekend and Conference Indianapolis, Indiana, USA April 21-23, 2006 Co-sponsored by Families for HoPE, Inc. and the Carter Centers at Kennedy Krieger Institute The Highlights The HPE Family Weekend & Conference, co-sponsored by Families for HoPE and the Carter Center at Kennedy Krieger Institute, was truly a weekend …
Category: Holidays, HPE Conference Tags: conference, family, holoprosencephaly, Indianapolis, racing, siblings