Updated on March 25, 2018 by Leslie, Sammy's mom
HPE siblings embrace the journey
Updated on April 27, 2018 by CharlieDawns momma
A mother and her son’s journey with Treacher Collins Syndrome and HPE
Category: Embrace the Journey, Guest Authors Tags: #familiesforhope, #gotHoPE, #sharingHoPE, awareness, conference, diagnosis, happy, holoprosencephaly, HoPE, prenatal, treacher collins
Updated on January 14, 2018 by CharlieDawns momma
By Amy L. Springer, Guest Author I learned that I was pregnant February 24, 1994. I had a sonogram like normal and all was good. I later started to have problems with bleeding, so we did another sonogram, which showed the baby to have a “lemon-shaped head” and I had placenta previa so a follow …
Category: Guest Authors Tags: #holoprosencephaly #hope, diagnosis, disability, Embrace the Journey, happy, holoprosencephaly, HoPE, HPE, journey, laughter, special needs
Updated on March 13, 2014 by Leslie, Sammy's mom
Music Therapy for Jacqui written by Maury Smith One of the special things about my 17-year old daughter, Jacqueline, is the effect that music has on her. She loves most songs but there are a select few that cause her to make her sad face and start crying. When we were at a large family …
Category: Child of HoPE, Guest Authors, Holoprosencephaly Awareness Week 2014, Inspiration, Leslie Tags: dionne, happy, jacqueline, jacqui, music, playlist, songs, springsteen, therapy, warwick
Tag: happy
New Friends
Updated on March 25, 2018 by Leslie, Sammy's mom
HPE siblings embrace the journey
Category: Embrace the Journey, HPE Conference Tags: #BFGIndy, conference, dalton, Embrace the Journey, happy, nick, siblings
Having HoPE will give you courage
Updated on April 27, 2018 by CharlieDawns momma
A mother and her son’s journey with Treacher Collins Syndrome and HPE
Category: Embrace the Journey, Guest Authors Tags: #familiesforhope, #gotHoPE, #sharingHoPE, awareness, conference, diagnosis, happy, holoprosencephaly, HoPE, prenatal, treacher collins
There is always HoPE
Updated on January 14, 2018 by CharlieDawns momma
By Amy L. Springer, Guest Author I learned that I was pregnant February 24, 1994. I had a sonogram like normal and all was good. I later started to have problems with bleeding, so we did another sonogram, which showed the baby to have a “lemon-shaped head” and I had placenta previa so a follow …
Category: Guest Authors Tags: #holoprosencephaly #hope, diagnosis, disability, Embrace the Journey, happy, holoprosencephaly, HoPE, HPE, journey, laughter, special needs
Jacqui’s Playlist
Updated on March 13, 2014 by Leslie, Sammy's mom
Music Therapy for Jacqui written by Maury Smith One of the special things about my 17-year old daughter, Jacqueline, is the effect that music has on her. She loves most songs but there are a select few that cause her to make her sad face and start crying. When we were at a large family …
Category: Child of HoPE, Guest Authors, Holoprosencephaly Awareness Week 2014, Inspiration, Leslie Tags: dionne, happy, jacqueline, jacqui, music, playlist, songs, springsteen, therapy, warwick