HPE siblings embrace the journey
A mother and her son’s journey with Treacher Collins Syndrome and HPE
Category: Embrace the Journey, Guest Authors Tags: #familiesforhope, #gotHoPE, #sharingHoPE, awareness, conference, diagnosis, happy, holoprosencephaly, HoPE, prenatal, treacher collins
By Amy L. Springer, Guest Author I learned that I was pregnant February 24, 1994. I had a sonogram like normal and all was good. I later started to have problems with bleeding, so we did another sonogram, which showed the baby to have a “lemon-shaped head” and I had placenta previa so a follow …
Category: Guest Authors Tags: #holoprosencephaly #hope, diagnosis, disability, Embrace the Journey, happy, holoprosencephaly, HoPE, HPE, journey, laughter, special needs
Music Therapy for Jacqui written by Maury Smith One of the special things about my 17-year old daughter, Jacqueline, is the effect that music has on her. She loves most songs but there are a select few that cause her to make her sad face and start crying. When we were at a large family …
Category: Child of HoPE, Guest Authors, Holoprosencephaly Awareness Week 2014, Inspiration, Leslie Tags: dionne, happy, jacqueline, jacqui, music, playlist, songs, springsteen, therapy, warwick
Tag: happy
New Friends
Posted: March 8, 2018 by Leslie, Sammy's mom
HPE siblings embrace the journey
Category: Embrace the Journey, HPE Conference Tags: #BFGIndy, conference, dalton, Embrace the Journey, happy, nick, siblings
Having HoPE will give you courage
Posted: March 7, 2018 by CharlieDawns momma
A mother and her son’s journey with Treacher Collins Syndrome and HPE
Category: Embrace the Journey, Guest Authors Tags: #familiesforhope, #gotHoPE, #sharingHoPE, awareness, conference, diagnosis, happy, holoprosencephaly, HoPE, prenatal, treacher collins
There is always HoPE
Posted: January 13, 2018 by CharlieDawns momma
By Amy L. Springer, Guest Author I learned that I was pregnant February 24, 1994. I had a sonogram like normal and all was good. I later started to have problems with bleeding, so we did another sonogram, which showed the baby to have a “lemon-shaped head” and I had placenta previa so a follow …
Category: Guest Authors Tags: #holoprosencephaly #hope, diagnosis, disability, Embrace the Journey, happy, holoprosencephaly, HoPE, HPE, journey, laughter, special needs
Jacqui’s Playlist
Posted: March 13, 2014 by Leslie, Sammy's mom
Music Therapy for Jacqui written by Maury Smith One of the special things about my 17-year old daughter, Jacqueline, is the effect that music has on her. She loves most songs but there are a select few that cause her to make her sad face and start crying. When we were at a large family …
Category: Child of HoPE, Guest Authors, Holoprosencephaly Awareness Week 2014, Inspiration, Leslie Tags: dionne, happy, jacqueline, jacqui, music, playlist, songs, springsteen, therapy, warwick