Category: Embrace the Journey


More children after HPE

One mom’s story of having more children after HPE

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New Friends

HPE siblings embrace the journey

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Having HoPE will give you courage

A mother and her son’s journey with Treacher Collins Syndrome and HPE

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2018 Families for HoPE Conference 

Families for HoPE, Inc. would like you to “Save the Date” for the 2018 Family Conference on Holoprosencephaly to be held at the Great Wolf Lodge and Conference Center in Cincinnati/Mason, Ohio. The conference will be held from check-in on…

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Laughing Matters

I am often asked why I smile so much.  Often, these inquisitive ones are looking only at the difficulties in caring for a medically fragile child as a 24/7 job. I respond simply, “I can either cry about it or laugh…

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Have Prom, Will Travel

Embrace the journey and dance

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The beauty 

Embrace the beauty of the journey

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Family 

Embrace the Journey with Harley’s family

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Sisterhood of the Traveling Dress

Embracing the journey when you’ve been asked to give someone the shirt off your back

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Journey Reminder 

Thumbprints on our hearts

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Hercules’ Journey 

Embrace the Journey with Hercules

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Embrace the Journey with Carol-Lynn

An HPE mom shares how she has embraced the journey with HPE

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Embrace the Journey

Life with HPE is a journey

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Journey of HoPE to Dallas

In July 2016, over 70 HPE families embarked on a journey from all corners of the U.S. to Dallas, Texas for the 2016 Family Conference on HPE.  Held biennially, the conference is a collaborative endeavor among Families for HoPE, the…

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