Our conferences are referred to as the Family Conference on Holoprosencephaly because it really is about the entire family. The siblings of our special children are encouraged to attend our conferences, and we have special activities to help make them feel celebrated and an important part of our HPE family.
At the end of the 2016 conference, 11 year-old Dalton (big brother to Teagan with HPE) told his mom Keisha, “No matter where the next conference is, we have to go! This is the most fun I think I have ever had. One of the best times I’ve ever had.”
Dalton told her that “making friends with Nick” was his favorite part of the conference. Nick who was 19 years old at the time of the conference is a favorite of many with his huge smile and generous hugs. While Nick may be described by some to be the strong, silent type, Dalton listened with his ears and with his heart to hear the language of friendship.
Being around other families who were like his own family and being with kids like Teagan and Nick made Dalton feel happy, he said.
To know that Dalton was able to create a lasting memory of our conference and wants to make that journey again, that means the world to us!
You can help make the 2018 Family Conference on Holoprosencephaly a reality for HPE families with a donation to Families for HoPE.