Not Broken
She is not broken She does not need fixing
Tag: Embrace the Journey
Never Lose HoPE
Guest Author: Melissa, Isaiah’s mom Our journey started on January 11, 2016 when we found out we we were pregnant with Isaiah. When I was 18 weeks, my primary OBGYN noticed something wrong with Isaiah’s head. He wasn’t sure what was going on, so he sent us to a maternal fetal medicine specialist. This doctor …
New Friends
HPE siblings embrace the journey
There is always HoPE
By Amy L. Springer, Guest Author I learned that I was pregnant February 24, 1994. I had a sonogram like normal and all was good. I later started to have problems with bleeding, so we did another sonogram, which showed the baby to have a “lemon-shaped head” and I had placenta previa so a follow …
Sisterhood of the Traveling Dress
Embracing the journey when you’ve been asked to give someone the shirt off your back
Embrace the Journey with Carol-Lynn
An HPE mom shares how she has embraced the journey with HPE
Journey of HoPE to Dallas
In July 2016, over 70 HPE families embarked on a journey from all corners of the U.S. to Dallas, Texas for the 2016 Family Conference on HPE. Held biennially, the conference is a collaborative endeavor among Families for HoPE, the Carter Centers for Research in Holoprosencephaly, Texas Scottish Rite Hospital for Children and National Institutes …