Not Broken
Updated on August 3, 2019 by CharlieDawns momma
She is not broken She does not need fixing
Tag: Embrace the Journey
Never Lose HoPE
Updated on June 19, 2019 by CharlieDawns momma
Guest Author: Melissa, Isaiah’s mom Our journey started on January 11, 2016 when we found out we we were pregnant with Isaiah. When I was 18 weeks, my primary OBGYN noticed something wrong with Isaiah’s head. He wasn’t sure what was going on, so he sent us to a maternal fetal medicine specialist. This doctor …
New Friends
Updated on March 25, 2018 by Leslie, Sammy's mom
HPE siblings embrace the journey
There is always HoPE
Updated on January 14, 2018 by CharlieDawns momma
By Amy L. Springer, Guest Author I learned that I was pregnant February 24, 1994. I had a sonogram like normal and all was good. I later started to have problems with bleeding, so we did another sonogram, which showed the baby to have a “lemon-shaped head” and I had placenta previa so a follow …
Sisterhood of the Traveling Dress
Updated on July 31, 2019 by CharlieDawns momma
Embracing the journey when you’ve been asked to give someone the shirt off your back
Embrace the Journey with Carol-Lynn
Updated on March 17, 2017 by CharlieDawns momma
An HPE mom shares how she has embraced the journey with HPE
Journey of HoPE to Dallas
Updated on March 24, 2018 by Leslie, Sammy's mom
In July 2016, over 70 HPE families embarked on a journey from all corners of the U.S. to Dallas, Texas for the 2016 Family Conference on HPE. Held biennially, the conference is a collaborative endeavor among Families for HoPE, the Carter Centers for Research in Holoprosencephaly, Texas Scottish Rite Hospital for Children and National Institutes …
