NIH Study on Environmental Determinants of Holoprosencephaly We understand only a fraction of the causes of holoprosencephaly and what leads to the wide spectrum of clinical features seen in patients with holoprosencephaly. In this environmental study, we are trying to better understand the different factors that can contribute to holoprosencephaly and its presentation that often …
In July 2016, over 70 HPE families embarked on a journey from all corners of the U.S. to Dallas, Texas for the 2016 Family Conference on HPE. Held biennially, the conference is a collaborative endeavor among Families for HoPE, the Carter Centers for Research in Holoprosencephaly, Texas Scottish Rite Hospital for Children and National Institutes …
New NIH study on Environmental Determinants of Holoprosencephaly We understand only a fraction of the causes of holoprosencephaly and what leads to the wide spectrum of clinical features seen in patients with holoprosencephaly. In this new environmental study, we are trying to better understand the different factors that can contribute to holoprosencephaly and its presentation …
Tag: NIH
NIH Study on Environmental Determinants of Holoprosencephaly
Posted: November 27, 2018 by Leslie, Sammy's mom
NIH Study on Environmental Determinants of Holoprosencephaly We understand only a fraction of the causes of holoprosencephaly and what leads to the wide spectrum of clinical features seen in patients with holoprosencephaly. In this environmental study, we are trying to better understand the different factors that can contribute to holoprosencephaly and its presentation that often …
Category: Research Tags: determinants, environmental, NIH, pregnancy, study, survey
Journey of HoPE to Dallas
Posted: February 24, 2017 by Leslie, Sammy's mom
In July 2016, over 70 HPE families embarked on a journey from all corners of the U.S. to Dallas, Texas for the 2016 Family Conference on HPE. Held biennially, the conference is a collaborative endeavor among Families for HoPE, the Carter Centers for Research in Holoprosencephaly, Texas Scottish Rite Hospital for Children and National Institutes …
Category: Embrace the Journey, HPE Conference Tags: Carter Centers, conference, dallas, Embrace the Journey, NIH, police, scottish rite, shooting, Texas scottish rite hospital
New NIH Study on Environmental Determinants of Holoprosencephaly
Posted: September 30, 2016 by Leslie, Sammy's mom
New NIH study on Environmental Determinants of Holoprosencephaly We understand only a fraction of the causes of holoprosencephaly and what leads to the wide spectrum of clinical features seen in patients with holoprosencephaly. In this new environmental study, we are trying to better understand the different factors that can contribute to holoprosencephaly and its presentation …
Category: Research Tags: environmental, holoprosencephaly, HPE, NIH, pregnancy, study, survey
2010 Family Conference on Holoprosencephaly
Posted: March 16, 2010 by Leslie, Sammy's mom
Category: HPE Conference Tags: bethesda, Carter Centers, conference, holoprosencephaly, HoPE, HPE, NIH