It was a pleasure hosting you at Great Wolf Lodge & Conference Center in June! We thank you for coming to the conference. All of YOU made this year’s conference such a very special time, and we invite you to share your feedback on the conference with us. If you did not have a chance …
NIH Study on Environmental Determinants of Holoprosencephaly We understand only a fraction of the causes of holoprosencephaly and what leads to the wide spectrum of clinical features seen in patients with holoprosencephaly. In this environmental study, we are trying to better understand the different factors that can contribute to holoprosencephaly and its presentation that often …
New NIH study on Environmental Determinants of Holoprosencephaly We understand only a fraction of the causes of holoprosencephaly and what leads to the wide spectrum of clinical features seen in patients with holoprosencephaly. In this new environmental study, we are trying to better understand the different factors that can contribute to holoprosencephaly and its presentation …
Tag: survey
Attention families who attended our 2022 Family Conference on Holoprosencephaly in Mason, Ohio
Posted: July 17, 2022 by Leslie, Sammy's mom
It was a pleasure hosting you at Great Wolf Lodge & Conference Center in June! We thank you for coming to the conference. All of YOU made this year’s conference such a very special time, and we invite you to share your feedback on the conference with us. If you did not have a chance …
Category: HPE Conference Tags: conference, ideas, suggestions, survey
NIH Study on Environmental Determinants of Holoprosencephaly
Posted: November 27, 2018 by Leslie, Sammy's mom
NIH Study on Environmental Determinants of Holoprosencephaly We understand only a fraction of the causes of holoprosencephaly and what leads to the wide spectrum of clinical features seen in patients with holoprosencephaly. In this environmental study, we are trying to better understand the different factors that can contribute to holoprosencephaly and its presentation that often …
Category: Research Tags: determinants, environmental, NIH, pregnancy, study, survey
New NIH Study on Environmental Determinants of Holoprosencephaly
Posted: September 30, 2016 by Leslie, Sammy's mom
New NIH study on Environmental Determinants of Holoprosencephaly We understand only a fraction of the causes of holoprosencephaly and what leads to the wide spectrum of clinical features seen in patients with holoprosencephaly. In this new environmental study, we are trying to better understand the different factors that can contribute to holoprosencephaly and its presentation …
Category: Research Tags: environmental, holoprosencephaly, HPE, NIH, pregnancy, study, survey