888-533-4443 Info@FamiliesforHoPE.org 1219 N. Wittfield Street, Indianapolis, IN 46229

Rare Disease Day

What is holoprosencephaly? Holoprosencephaly is an abnormality of brain development in which the brain doesn’t properly divide into the right and left hemispheres. The condition can also affect development of the head and face. In general, the severity of any facial defects corresponds to the severity of the brain defect. The most severely affected people have one …

NIH Study on Environmental Determinants of Holoprosencephaly

NIH Study on Environmental Determinants of Holoprosencephaly We understand only a fraction of the causes of holoprosencephaly and what leads to the wide spectrum of clinical features seen in patients with holoprosencephaly. In this environmental study, we are trying to better understand the different factors that can contribute to holoprosencephaly and its presentation that often …

New NIH Study on Environmental Determinants of Holoprosencephaly

New NIH study on Environmental Determinants of Holoprosencephaly  We understand only a fraction of the causes of holoprosencephaly and what leads to the wide spectrum of clinical features seen in patients with holoprosencephaly. In this new environmental study, we are trying to better understand the different factors that can contribute to holoprosencephaly and its presentation …