NIH Study on Environmental Determinants of Holoprosencephaly
We understand only a fraction of the causes of holoprosencephaly and what
leads to the wide spectrum of clinical features seen in patients with
holoprosencephaly. In this environmental study, we are trying to better
understand the different factors that can contribute to holoprosencephaly and
its presentation that often varies from patient to patient.
What does the study entail?
Filling out out a 45-minute online survey
What does the survey ask about?
The survey asks about your pregnancy and the three months before
pregnancy. Please go to http://hope.ctss.nih.gov to get more information.
We are actively recruiting to reach our study goal of 200 participants!
If you are interested in filling out the survey:
- Contact Yonit Addissie at yonit.addissie@nih.gov or 301-402-5812
- Then, go to http://hope.ctss.nih.gov
*There is no compensation for this study
Share the HoPE in Holoprosecephaly
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NIH Study on Environmental Determinants of Holoprosencephaly
Posted: November 27, 2018 by Leslie, Sammy's mom
NIH Study on Environmental Determinants of Holoprosencephaly
We understand only a fraction of the causes of holoprosencephaly and what
leads to the wide spectrum of clinical features seen in patients with
holoprosencephaly. In this environmental study, we are trying to better
understand the different factors that can contribute to holoprosencephaly and
its presentation that often varies from patient to patient.
What does the study entail?
Filling out out a 45-minute online survey
What does the survey ask about?
The survey asks about your pregnancy and the three months before
pregnancy. Please go to http://hope.ctss.nih.gov to get more information.
We are actively recruiting to reach our study goal of 200 participants!
If you are interested in filling out the survey:
*There is no compensation for this study
Share the HoPE in Holoprosecephaly
Like this:
Category: Research Tags: determinants, environmental, NIH, pregnancy, study, survey