Guest Author: Melissa, Isaiah’s mom Our journey started on January 11, 2016 when we found out we we were pregnant with Isaiah. When I was 18 weeks, my primary OBGYN noticed something wrong with Isaiah’s head. He wasn’t sure what was going on, so he sent us to a maternal fetal medicine specialist. This doctor …
Category: Embrace the Journey, Guest Authors Tags: #familiesforhope, #holoprosencephaly #hope, #sharingHoPE, awareness, Carter Centers, diagnosis, disability, Embrace the Journey, family, holoprosencephaly, HoPE, HPE, prenatal, special needs
In July 2016, over 70 HPE families embarked on a journey from all corners of the U.S. to Dallas, Texas for the 2016 Family Conference on HPE. Held biennially, the conference is a collaborative endeavor among Families for HoPE, the Carter Centers for Research in Holoprosencephaly, Texas Scottish Rite Hospital for Children and National Institutes …
Chance Urschel obituary “On behalf of all HPE families past and present, Families for HoPE extends its deepest condolences, love and admiration to the family of Chance Urschel. Chance is the child who brought HoPE to the hopeless, and his inspiration touched all of our lives.”
Category: Child of HoPE, Grief, Inspiration, Milestones, Perspectives Tags: beautiful, Carter Centers, chance, chance urschel, condolences, encouragement, grief, HoPE, sympathy
The 2014 Family Conference on HPE was held in Dallas, Texas on October 2-4. Held at the Texas Scottish Rite Hospital for Children Conference Center, over 60 HPE families gathered for the conference sponsored by Families for HoPE in collaboration with the Carter Center for Research in Holoprosencephaly and Related Malformations.
Well, the wait is over! Grab your family calendar and save the dates! We want to invite you and your family to Dallas, Texas on October 2-4, 2014 for our 2014 Conference: “HoPE in the Heart of Texas”. The conference is a collaboration between Families for HoPE and the Carter Centers for Brain Research in …
Tag: Carter Centers
Never Lose HoPE
Posted: July 30, 2018 by Leslie, Sammy's mom
Guest Author: Melissa, Isaiah’s mom Our journey started on January 11, 2016 when we found out we we were pregnant with Isaiah. When I was 18 weeks, my primary OBGYN noticed something wrong with Isaiah’s head. He wasn’t sure what was going on, so he sent us to a maternal fetal medicine specialist. This doctor …
Category: Embrace the Journey, Guest Authors Tags: #familiesforhope, #holoprosencephaly #hope, #sharingHoPE, awareness, Carter Centers, diagnosis, disability, Embrace the Journey, family, holoprosencephaly, HoPE, HPE, prenatal, special needs
Journey of HoPE to Dallas
Posted: February 24, 2017 by Leslie, Sammy's mom
In July 2016, over 70 HPE families embarked on a journey from all corners of the U.S. to Dallas, Texas for the 2016 Family Conference on HPE. Held biennially, the conference is a collaborative endeavor among Families for HoPE, the Carter Centers for Research in Holoprosencephaly, Texas Scottish Rite Hospital for Children and National Institutes …
Category: Embrace the Journey, HPE Conference Tags: Carter Centers, conference, dallas, Embrace the Journey, NIH, police, scottish rite, shooting, Texas scottish rite hospital
Deepest Sympathy
Posted: March 2, 2016 by Leslie, Sammy's mom
Chance Urschel obituary “On behalf of all HPE families past and present, Families for HoPE extends its deepest condolences, love and admiration to the family of Chance Urschel. Chance is the child who brought HoPE to the hopeless, and his inspiration touched all of our lives.”
Category: Child of HoPE, Grief, Inspiration, Milestones, Perspectives Tags: beautiful, Carter Centers, chance, chance urschel, condolences, encouragement, grief, HoPE, sympathy
2014 Family Conference on HPE
Posted: October 23, 2014 by Leslie, Sammy's mom
The 2014 Family Conference on HPE was held in Dallas, Texas on October 2-4. Held at the Texas Scottish Rite Hospital for Children Conference Center, over 60 HPE families gathered for the conference sponsored by Families for HoPE in collaboration with the Carter Center for Research in Holoprosencephaly and Related Malformations.
Category: HPE Conference Tags: Carter Centers, conference, holoprosencephaly, Texas scottish rite hospital
Save the Date for the 2014 Family Conference on HPE
Posted: November 1, 2013 by Leslie, Sammy's mom
Well, the wait is over! Grab your family calendar and save the dates! We want to invite you and your family to Dallas, Texas on October 2-4, 2014 for our 2014 Conference: “HoPE in the Heart of Texas”. The conference is a collaboration between Families for HoPE and the Carter Centers for Brain Research in …
Category: HPE Conference Tags: Carter Centers, childrens hospital, conference, dallas, holoprosencephaly, HPE, save the date, scottish rite, texas
2010 Family Conference on Holoprosencephaly
Posted: March 16, 2010 by Leslie, Sammy's mom
Category: HPE Conference Tags: bethesda, Carter Centers, conference, holoprosencephaly, HoPE, HPE, NIH