Written by Josh Timmerman Growing up, I dreamed of being a race car driver, and when that dream became a reality for me, I knew that I wanted to make a difference and be known as a man and driver who stands for something. In 2006, I met a little boy named Sammy Harley who …
Deepest Sympathy
Chance Urschel obituary “On behalf of all HPE families past and present, Families for HoPE extends its deepest condolences, love and admiration to the family of Chance Urschel. Chance is the child who brought HoPE to the hopeless, and his inspiration touched all of our lives.”
HoPE 4 Kate
Hope is a word I never thought too much about, just a word without much meaning. But since 2013 it is a word with a whole lot of meaning, but then written as HoPE. On July 7th 2013 our daughter Kate was born. My pregnancy was uneventful except for a 33 week sonogram …
Meet Abigail
(Written by Michelle Alexander) 13 years ago, I laid bleeding to death. I had just seen my only baby girl for the first time without the fuzziness of an ultrasound. She was beautiful. For 7 hours, I laid in recovery while my body threaten to give up. Thinking of the only real picture I had …
Meet Mary and Robert
(Submitted by Pat Wright) HPE is not a rare disorder in our immediate family, 50% of the children have HPE, and it has not prematurely taken the lives of the affected children, as one is 32-years old and the other is 23-years old. It has however taken us down a road of understanding and certainly …
1 – 2 – 3 – 4 – 5 – 6 . . .
One of our new little ones with HPE, Pearl Joy Brown, has been busy helping raise awareness of HPE. Her story was published in the Washington Times newspaper earlier this week. Please take some time to read through the blog about her or follow her dad on Twitter. There is even a special virtual event …
Happy 30th Birthday! x2
This is a very special week for our HPE family. This week we celebrate the 30th birthdays of two of our girls…Mary Wright and Lindsey Martinsons. Happy birthday to these two ladies who truly inspire us all and give us HoPE!