One of our new little ones with HPE, Pearl Joy Brown, has been busy helping raise awareness of HPE. Her story was published in the Washington Times newspaper earlier this week. Please take some time to read through the blog about her or follow her dad on Twitter.
There is even a special virtual event taking place next week called Letters to Pearl. Check it out and participate!
Pearl was born on a Friday, and each Friday, her family has been celebrating each week of her life. I thought it would be nice to see just how far little Pearl has come so far.