HoPE Archives - Families for HoPE, Inc.

In Memoriam – Heather Dawn Rinard

Updated on July 9, 2020 by Leslie, Sammy's mom

It is with broken hearts that we share the news that our beloved board member, Heather Dawn Rinard, has succumbed to her brave battle with cancer. Heather leaves behind her loving husband Matt, son Gavin, and daughters Sami, Izzy and Charliedawn. Heather joined our HPE family with the birth of her daughter, Charliedawn in 2012, …

Category: Grief Tags: cancer, grief, heather, HoPE, love, rinard

Important Update from Families for HoPE

Posted on May 17, 2020 by Leslie, Sammy's mom

After careful consideration, we have arrived at the difficult decision to cancel the Family Conference on Holoprosencephaly which had been rescheduled for June 2021 (postponed from June 2020).

Category: HPE Conference Tags: #holoprosencephaly #hope, conference, holoprosencephaly, HoPE

2019 Costume Contest Winners

Posted on December 22, 2019 by Leslie, Sammy's mom

Results from the 2019 Families for HoPE Costume Contest

Category: Fundraising, Holidays Tags: contest, costume, gogo photo, halloween, HoPE

2019 HoPE Dads Retreat

Updated on August 3, 2019 by Leslie, Sammy's mom

Registration is open for the 2019 HoPE Dads Retreat to be held in Scottsdale, Arizona on October 11, 12, 13 and 14, 2019! This retreat is limited to only 14 dads so don’t delay in registering! Vision: To bring HPE dads together for a weekend retreat for the purpose of finding and sharing hope through …

Category: Special Events Tags: dads, Father, HoPE, retreat, Scottsdale Arizona, weekend

Roxanne Steele

Updated on August 3, 2019 by CharlieDawns momma

Written by Roxanne Steele Growing up in Indiana in the 1970’s and 80’s, I have to admit I never encountered many people who were different. Yes different races and economic factors but not anyone with any real disability.

Category: Guest Authors, Inspiration Tags: #holoprosencephaly #hope, #sharingHoPE, awareness, disability, holoprosencephaly, HoPE, HPE, life, special needs

Alone No More

Updated on August 3, 2019 by CharlieDawns momma

As I walked into the conference center that Sunday night in 2018, seeing all those kiddos–some I recognized, many I didn’t–but, it felt like I was home with “my people”.

Category: Guest Authors, HPE Conference Tags: canada, conference, HoPE, zoe

Not Broken

Updated on August 3, 2019 by CharlieDawns momma

She is not broken She does not need fixing

Category: Inspiration Tags: #familiesforhope, #sharingHoPE, diagnosis, disability, Embrace the Journey, family, holoprosencephaly, HoPE, HPE

Never Lose HoPE

Updated on June 19, 2019 by CharlieDawns momma

Guest Author: Melissa, Isaiah’s mom Our journey started on January 11, 2016 when we found out we we were pregnant with Isaiah. When I was 18 weeks, my primary OBGYN noticed something wrong with Isaiah’s head. He wasn’t sure what was going on, so he sent us to a maternal fetal medicine specialist. This doctor …

Category: Embrace the Journey, Guest Authors Tags: #familiesforhope, #holoprosencephaly #hope, #sharingHoPE, awareness, Carter Centers, diagnosis, disability, Embrace the Journey, family, holoprosencephaly, HoPE, HPE, prenatal, special needs