Autumn 2023 edition of the HoPE Newsletter
Support our mission to serve HPE families with this t-shirt fundraiser
Is there someone you know who radiates hope? Someone who makes hope contagious? Nominate a parent, caregiver or individual who exemplifies what it means to hope
In preparation for Holoprosencephaly Awareness Week, we are happy to share a template you can use on social media in coordination with the daily prompts and activities.
It’s almost time for Holoprosencephaly Awareness Week, and we hope you will join Families for HoPE and HPE families around the globe in this awareness raising campaign. The week will kick off on Saturday, March 25 and run through Friday, March 31!
Who are YOU, and what makes you tick? Stay turned to learn how your special talents can grow with Families for HoPE!
Please enjoy this special edition of the HoPE Newsletter highlighting the 2022 Family Conference on Holoprosencephaly. Special Edition Newsletter 2022 Conference
It is with broken hearts that we share the news that our beloved board member, Heather Dawn Rinard, has succumbed to her brave battle with cancer. Heather leaves behind her loving husband Matt, son Gavin, and daughters Sami, Izzy and Charliedawn. Heather joined our HPE family with the birth of her daughter, Charliedawn in 2012, …
After careful consideration, we have arrived at the difficult decision to cancel the Family Conference on Holoprosencephaly which had been rescheduled for June 2021 (postponed from June 2020).
Results from the 2019 Families for HoPE Costume Contest
Tag: HoPE
Autumn 2023 Newsletter
Posted: September 27, 2023 by Leslie, Sammy's mom
Autumn 2023 edition of the HoPE Newsletter
Category: News, Resources Tags: 2023, autumn, conference, fall, HoPE, newsletter, stetson
T-Shirt Fundraiser
Posted: August 2, 2023 by Leslie, Sammy's mom
Support our mission to serve HPE families with this t-shirt fundraiser
Category: Fundraising Tags: action words, advocate, customink, educate, empower, fundraiser, HoPE, love, shirts, support
HoPE Nominations
Posted: July 27, 2023 by Leslie, Sammy's mom
Is there someone you know who radiates hope? Someone who makes hope contagious? Nominate a parent, caregiver or individual who exemplifies what it means to hope
Category: Inspiration Tags: anticipation, cherish, contagious hope, desire, HoPE, nominate, radiate hope
Awareness Week kicks off on Saturday, March 25
Posted: March 22, 2023 by Leslie, Sammy's mom
In preparation for Holoprosencephaly Awareness Week, we are happy to share a template you can use on social media in coordination with the daily prompts and activities.
Category: Holoprosencephaly Awareness Week Tags: awareness, holoprosencephaly, HoPE, social media
Holoprosencephaly Awareness Week 2023
Posted: March 14, 2023 by Leslie, Sammy's mom
It’s almost time for Holoprosencephaly Awareness Week, and we hope you will join Families for HoPE and HPE families around the globe in this awareness raising campaign. The week will kick off on Saturday, March 25 and run through Friday, March 31!
Category: Holoprosencephaly Awareness Week Tags: #hpeawareness, awareness, holoprosencephaly, HoPE
Who are you?
Posted: January 30, 2023 by Leslie, Sammy's mom
Who are YOU, and what makes you tick? Stay turned to learn how your special talents can grow with Families for HoPE!
Category: General Tags: 2023, helping, HoPE, HPE, sharing, volunteer
Special Edition HoPE Newsletter
Posted: September 5, 2022 by Leslie, Sammy's mom
Please enjoy this special edition of the HoPE Newsletter highlighting the 2022 Family Conference on Holoprosencephaly. Special Edition Newsletter 2022 Conference
Category: News, Resources Tags: conference, families, HoPE, newsletter, prom
In Memoriam – Heather Dawn Rinard
Posted: July 9, 2020 by Leslie, Sammy's mom
It is with broken hearts that we share the news that our beloved board member, Heather Dawn Rinard, has succumbed to her brave battle with cancer. Heather leaves behind her loving husband Matt, son Gavin, and daughters Sami, Izzy and Charliedawn. Heather joined our HPE family with the birth of her daughter, Charliedawn in 2012, …
Category: Grief Tags: cancer, grief, heather, HoPE, love, rinard
Important Update from Families for HoPE
Posted: May 17, 2020 by Leslie, Sammy's mom
After careful consideration, we have arrived at the difficult decision to cancel the Family Conference on Holoprosencephaly which had been rescheduled for June 2021 (postponed from June 2020).
Category: HPE Conference Tags: #holoprosencephaly #hope, conference, holoprosencephaly, HoPE
2019 Costume Contest Winners
Posted: December 22, 2019 by Leslie, Sammy's mom
Results from the 2019 Families for HoPE Costume Contest
Category: Fundraising, Holidays Tags: contest, costume, gogo photo, halloween, HoPE