Tag: HoPE
Please enjoy this special edition of the HoPE Newsletter highlighting the 2022 Family Conference on Holoprosencephaly. Special Edition Newsletter 2022 Conference
It is with broken hearts that we share the news that our beloved board member, Heather Dawn Rinard, has succumbed to her brave battle with cancer. Heather leaves behind her loving husband Matt, son Gavin, and daughters Sami, Izzy and Charliedawn. Heather joined our HPE family with the birth of her daughter, Charliedawn in 2012, …
After careful consideration, we have arrived at the difficult decision to cancel the Family Conference on Holoprosencephaly which had been rescheduled for June 2021 (postponed from June 2020).
Results from the 2019 Families for HoPE Costume Contest
Registration is open for the 2019 HoPE Dads Retreat to be held in Scottsdale, Arizona on October 11, 12, 13 and 14, 2019! This retreat is limited to only 14 dads so don’t delay in registering! Vision: To bring HPE dads together for a weekend retreat for the purpose of finding and sharing hope through …
Written by Roxanne Steele Growing up in Indiana in the 1970’s and 80’s, I have to admit I never encountered many people who were different. Yes different races and economic factors but not anyone with any real disability.
As I walked into the conference center that Sunday night in 2018, seeing all those kiddos–some I recognized, many I didn’t–but, it felt like I was home with “my people”.
She is not broken She does not need fixing
Guest Author: Melissa, Isaiah’s mom Our journey started on January 11, 2016 when we found out we we were pregnant with Isaiah. When I was 18 weeks, my primary OBGYN noticed something wrong with Isaiah’s head. He wasn’t sure what was going on, so he sent us to a maternal fetal medicine specialist. This doctor …
Category: Embrace the Journey, Guest Authors Tags: #familiesforhope, #holoprosencephaly #hope, #sharingHoPE, awareness, Carter Centers, diagnosis, disability, Embrace the Journey, family, holoprosencephaly, HoPE, HPE, prenatal, special needs
Holo. . . what?
Tag: HoPE
Special Edition HoPE Newsletter
Posted: September 5, 2022 by Leslie, Sammy's mom
Please enjoy this special edition of the HoPE Newsletter highlighting the 2022 Family Conference on Holoprosencephaly. Special Edition Newsletter 2022 Conference
Category: News, Resources Tags: conference, families, HoPE, newsletter, prom
In Memoriam – Heather Dawn Rinard
Posted: July 9, 2020 by Leslie, Sammy's mom
It is with broken hearts that we share the news that our beloved board member, Heather Dawn Rinard, has succumbed to her brave battle with cancer. Heather leaves behind her loving husband Matt, son Gavin, and daughters Sami, Izzy and Charliedawn. Heather joined our HPE family with the birth of her daughter, Charliedawn in 2012, …
Category: Grief Tags: cancer, grief, heather, HoPE, love, rinard
Important Update from Families for HoPE
Posted: May 17, 2020 by Leslie, Sammy's mom
After careful consideration, we have arrived at the difficult decision to cancel the Family Conference on Holoprosencephaly which had been rescheduled for June 2021 (postponed from June 2020).
Category: HPE Conference Tags: #holoprosencephaly #hope, conference, holoprosencephaly, HoPE
2019 Costume Contest Winners
Posted: December 22, 2019 by Leslie, Sammy's mom
Results from the 2019 Families for HoPE Costume Contest
Category: Fundraising, Holidays Tags: contest, costume, gogo photo, halloween, HoPE
2019 HoPE Dads Retreat
Posted: August 1, 2019 by Leslie, Sammy's mom
Registration is open for the 2019 HoPE Dads Retreat to be held in Scottsdale, Arizona on October 11, 12, 13 and 14, 2019! This retreat is limited to only 14 dads so don’t delay in registering! Vision: To bring HPE dads together for a weekend retreat for the purpose of finding and sharing hope through …
Category: Special Events Tags: dads, Father, HoPE, retreat, Scottsdale Arizona, weekend
Roxanne Steele
Posted: July 22, 2019 by CharlieDawns momma
Written by Roxanne Steele Growing up in Indiana in the 1970’s and 80’s, I have to admit I never encountered many people who were different. Yes different races and economic factors but not anyone with any real disability.
Category: Guest Authors, Inspiration Tags: #holoprosencephaly #hope, #sharingHoPE, awareness, disability, holoprosencephaly, HoPE, HPE, life, special needs
Alone No More
Posted: July 19, 2019 by CharlieDawns momma
As I walked into the conference center that Sunday night in 2018, seeing all those kiddos–some I recognized, many I didn’t–but, it felt like I was home with “my people”.
Category: Guest Authors, HPE Conference Tags: canada, conference, HoPE, zoe
Not Broken
Posted: July 3, 2019 by CharlieDawns momma
She is not broken She does not need fixing
Category: Inspiration Tags: #familiesforhope, #sharingHoPE, diagnosis, disability, Embrace the Journey, family, holoprosencephaly, HoPE, HPE
Never Lose HoPE
Posted: July 30, 2018 by CharlieDawns momma
Guest Author: Melissa, Isaiah’s mom Our journey started on January 11, 2016 when we found out we we were pregnant with Isaiah. When I was 18 weeks, my primary OBGYN noticed something wrong with Isaiah’s head. He wasn’t sure what was going on, so he sent us to a maternal fetal medicine specialist. This doctor …
Category: Embrace the Journey, Guest Authors Tags: #familiesforhope, #holoprosencephaly #hope, #sharingHoPE, awareness, Carter Centers, diagnosis, disability, Embrace the Journey, family, holoprosencephaly, HoPE, HPE, prenatal, special needs
HPE Awareness Week
Posted: March 25, 2018 by Leslie, Sammy's mom
Holo. . . what?
Category: Holoprosencephaly Awareness Week Tags: awareness, holoprosencephaly awareness week, HoPE, HPE