Awareness Week kicks off on Saturday, March 25
In preparation for Holoprosencephaly Awareness Week, we are happy to share a template you can use on social media in coordination with the daily prompts and activities.
Tag: HoPE
Holoprosencephaly Awareness Week 2023
It’s almost time for Holoprosencephaly Awareness Week, and we hope you will join Families for HoPE and HPE families around the globe in this awareness raising campaign. The week will kick off on Saturday, March 25 and run through Friday, March 31!
Who are you?
Who are YOU, and what makes you tick? Stay turned to learn how your special talents can grow with Families for HoPE!
Special Edition HoPE Newsletter
Please enjoy this special edition of the HoPE Newsletter highlighting the 2022 Family Conference on Holoprosencephaly. Special Edition Newsletter 2022 Conference
In Memoriam – Heather Dawn Rinard
It is with broken hearts that we share the news that our beloved board member, Heather Dawn Rinard, has succumbed to her brave battle with cancer. Heather leaves behind her loving husband Matt, son Gavin, and daughters Sami, Izzy and Charliedawn. Heather joined our HPE family with the birth of her daughter, Charliedawn in 2012, …
Important Update from Families for HoPE
After careful consideration, we have arrived at the difficult decision to cancel the Family Conference on Holoprosencephaly which had been rescheduled for June 2021 (postponed from June 2020).
2019 Costume Contest Winners
Results from the 2019 Families for HoPE Costume Contest
2019 HoPE Dads Retreat
Registration is open for the 2019 HoPE Dads Retreat to be held in Scottsdale, Arizona on October 11, 12, 13 and 14, 2019! This retreat is limited to only 14 dads so don’t delay in registering! Vision: To bring HPE dads together for a weekend retreat for the purpose of finding and sharing hope through …
Roxanne Steele
Written by Roxanne Steele Growing up in Indiana in the 1970’s and 80’s, I have to admit I never encountered many people who were different. Yes different races and economic factors but not anyone with any real disability.
Alone No More
As I walked into the conference center that Sunday night in 2018, seeing all those kiddos–some I recognized, many I didn’t–but, it felt like I was home with “my people”.