Archives
She is not broken She does not need fixing She is no more different or wrong than you and I are the same or right. She is not broken She does not need fixing Your advice might come from a…
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Registration is open for the 2019 HoPE Moms Retreat to be held in New Orleans, Louisiana on June 28, 29 and 30, 2019! This retreat is limited to only 30 moms, so don’t delay in registering! Vision: To bring HPE…
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Guest Author: Melissa, Isaiah’s mom Our journey started on January 11, 2016 when we found out we we were pregnant with Isaiah. When I was 18 weeks, my primary OBGYN noticed something wrong with Isaiah’s head. He wasn’t sure what…
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Category: Embrace the Journey, Guest Authors
Tags: #familiesforhope, #holoprosencephaly #hope, #sharingHoPE, awareness, Carter Centers, diagnosis, disability, Embrace the Journey, family, holoprosencephaly, HoPE, HPE, prenatal, special needs
Holo. . . what?
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A mother and her son’s journey with Treacher Collins Syndrome and HPE
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Category: Embrace the Journey, Guest Authors
Tags: #familiesforhope, #gotHoPE, #sharingHoPE, awareness, conference, diagnosis, happy, holoprosencephaly, HoPE, prenatal, treacher collins
Last week, Pearl Joy Brown’s dad, Eric Brown, was asked to speak at a conference in Washington, DC. Thank you, Eric, for sharing your humble spirit, your sincere and heartfelt words, and your beautiful photos.
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By Amy L. Springer, Guest Author I learned that I was pregnant February 24, 1994. I had a sonogram like normal and all was good. I later started to have problems with bleeding, so we did another sonogram, which showed…
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Category: Guest Authors
Tags: #holoprosencephaly #hope, diagnosis, disability, Embrace the Journey, happy, holoprosencephaly, HoPE, HPE, journey, laughter, special needs
Coloring is a hot trend for adults, and gathering a group of individuals together to color is a unique way to raise awareness of HPE! If you are interested in using coloring as a way to raise awareness of HPE…
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Category: Fundraising, Holoprosencephaly Awareness Week
Tags: awareness, balloons, coloring, community, event, fundraising, HoPE, HPE, pencils, wristbands
Embrace the beauty of the journey
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Embracing the journey when you’ve been asked to give someone the shirt off your back
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Category: Embrace the Journey, Gotta Laugh, Guest Authors, HPE Conference
Tags: brandy, conference, dallas, dress, Embrace the Journey, heather, HoPE, kristy, prom, rachel, sisterhood
Embrace the Journey with Hercules
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Category: Embrace the Journey, Guest Authors
Tags: allegiant airlines, ana vindas, hercules, holoprosencephaly, HoPE, HPE, journey, pilot, plane, Service dog
Round 1 MVPs!
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Category: Brackets For Good
Tags: #BFG17, #BFGIndy, #ffh, #TeamHoPE, basketball, big dance, brackets for good, donors, HoPE, March Madness, points, score
Chance Urschel obituary “On behalf of all HPE families past and present, Families for HoPE extends its deepest condolences, love and admiration to the family of Chance Urschel. Chance is the child who brought HoPE to the hopeless, and his…
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Category: Child of HoPE, Grief, Inspiration, Milestones, Perspectives
Tags: beautiful, Carter Centers, chance, chance urschel, condolences, encouragement, grief, HoPE, sympathy
Let’s spread the word! Let Brackets For Good know that we have fans all over the WORLD!! Print out the fan paper and fill in where you are from! Then post it on your social media with #HoPE #BFGIndy Click…
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Families for HoPE, Inc.