888-533-4443 Info@FamiliesforHoPE.org 1219 N. Wittfield Street, Indianapolis, IN 46229

United Way

It’s the time of year when many companies are participating in United Way giving campaigns. Did you realize that you may be able to donate to Families for HoPE through your annual United Way workplace giving campaign? Often times, donors are allowed to designate a specific 501(c)(3) organization to receive funding, and we would be …

HoPE Walk ‘N’ Roll

First Annual HoPE Walk ‘N’ Roll festival Families for HoPE, Inc. is a 501(c)(3) nonprofit organization formed to address the needs of families and children diagnosed with holoprosencephaly (HPE) and related brain malformations. Deeply committed to raising awareness of holoprosencephaly, a group of HPE families in Arizona are joining together to host an awareness event …

Rare Disease Day

What is holoprosencephaly? Holoprosencephaly is an abnormality of brain development in which the brain doesn’t properly divide into the right and left hemispheres. The condition can also affect development of the head and face. In general, the severity of any facial defects corresponds to the severity of the brain defect. The most severely affected people have one …