Not Broken
Updated on August 3, 2019 by CharlieDawns momma
She is not broken She does not need fixing
Tag: #familiesforhope
My Amazing life, at least it is to me!
Updated on March 26, 2019 by CharlieDawns momma
By Heather Rinard The blades of the grass softly whispered their song in my ear, as I laid sprawled out on the checkered cloth, enjoying our teddy bear picnic. Momma made our childhood magical. From tea parties in the garden, family night games of drawing in the dark and Red hots in our hot cocoa …
Never Lose HoPE
Updated on June 19, 2019 by CharlieDawns momma
Guest Author: Melissa, Isaiah’s mom Our journey started on January 11, 2016 when we found out we we were pregnant with Isaiah. When I was 18 weeks, my primary OBGYN noticed something wrong with Isaiah’s head. He wasn’t sure what was going on, so he sent us to a maternal fetal medicine specialist. This doctor …
Having HoPE will give you courage
Updated on April 27, 2018 by CharlieDawns momma
A mother and her son’s journey with Treacher Collins Syndrome and HPE
July 3 – Racing for HoPE 2015
Updated on July 3, 2015 by Leslie, Sammy's mom
Back by Popular Demand . . . HPE Awareness Week Apparel
Updated on March 27, 2015 by Leslie, Sammy's mom
Due to the popularity of the HoPE University apparel, we are extending the campaign until April 6! If you missed the first opportunity to order or you wish you had ordered more, here is your chance! Holoprosencephaly 101: 17 letters. 7 syllables. Abbreviated as HPE. To learn about HPE, there are no formal classes offering …
HoPE and the One Percenters
Updated on December 3, 2014 by Leslie, Sammy's mom
Please enjoy this YouTube video created by Rob Myers, Gabby’s dad, on #GivingTuesday. Thank you so much to Rob, Heidi, and Gabby for your commitment, support, and inspiration.
#GivingTuesday 2014
Updated on November 26, 2014 by Leslie, Sammy's mom
#GivingTuesday is a movement to create a national day of giving on the Tuesday following Thanksgiving, Black Friday and Cyber Monday. On #GivingTuesday, please join Families for HoPE in helping to share the HoPE in Holoprosencephaly. We would love for you to join us with your time, talents, and personality to share the HoPE in …