I was a baby when Rhonda came onto my life, so I don’t remember when I met her, but she was my first BFF. Growing up with Rhonda had a profound effect on my life, my personality, and my heart.

Posted: November 30, 2019 by Leslie, Sammy's mom
I was a baby when Rhonda came onto my life, so I don’t remember when I met her, but she was my first BFF. Growing up with Rhonda had a profound effect on my life, my personality, and my heart.
Posted: March 25, 2019 by Leslie, Sammy's mom
By Heather Rinard The blades of the grass softly whispered their song in my ear, as I laid sprawled out on the checkered cloth, enjoying our teddy bear picnic. Momma made our childhood magical. From tea parties in the garden, family night games of drawing in the dark and Red hots in our hot cocoa …
Posted: March 26, 2019 by Leslie, Sammy's mom
What is it really…this HOPE? And why is it so important? Hope is something we can feel, but hope is also an intentional choice. Definition; hope /hōp/ a feeling of expectation and desire for a certain thing to happen.”he looked through her belongings in the hope of coming across some information” synonyms: aspiration, desire, wish, expectation, ambition, …
Posted: October 29, 2018 by Leslie, Sammy's mom
One mom’s story of having more children after HPE
Posted: March 31, 2018 by Leslie, Sammy's mom
Author, Christopher de Vinck to deliver keynote address
Posted: January 23, 2018 by Leslie, Sammy's mom
Last week, Pearl Joy Brown’s dad, Eric Brown, was asked to speak at a conference in Washington, DC. Thank you, Eric, for sharing your humble spirit, your sincere and heartfelt words, and your beautiful photos.
Posted: March 26, 2017 by Leslie, Sammy's mom
I am often asked why I smile so much. Often, these inquisitive ones are looking only at the difficulties in caring for a medically fragile child as a 24/7 job. I respond simply, “I can either cry about it or laugh about it; I choose laughter.” Humans are social creatures, and humor is one of the …
Posted: June 28, 2016 by Leslie, Sammy's mom
Hello, I’m Virginia, I have a little girl, Violeta, (3 years) with HPE semilobar and we live in Buenos Aires. She’s a cutie and she doesn’t have health issues (touch wood). Of course she has delays. I write a blog about living with a special kid (it’s in spanish: https://tenerunhijocondiscapacidad.wordpress.com/
Posted: March 2, 2016 by Leslie, Sammy's mom
Chance Urschel obituary “On behalf of all HPE families past and present, Families for HoPE extends its deepest condolences, love and admiration to the family of Chance Urschel. Chance is the child who brought HoPE to the hopeless, and his inspiration touched all of our lives.”