We thank all who responded to the survey questions We recently asked families to share thoughts on the impact of Families for HoPE (FFH). We received powerful feedback from 127 survey respondents. Your responses to our survey questions help us chart the future of Families for HoPE. Because of you we will work to maintain …
PARENTS FIND HOPE AND PURPOSE, INSPITE OF BEING GIVEN NONE
Members of the medical community still say HPE is incompatible with life, but our stories say otherwise.
Michelle Modula Duffo and her husband Jose had tried to get pregnant for seven years, before turning to IVF. Michelle and Jose were thrilled with the success of the process and looked forward to welcoming their child.
I was a baby when Rhonda came onto my life, so I don’t remember when I met her, but she was my first BFF. Growing up with Rhonda had a profound effect on my life, my personality, and my heart.
By Heather Rinard The blades of the grass softly whispered their song in my ear, as I laid sprawled out on the checkered cloth, enjoying our teddy bear picnic. Momma made our childhood magical. From tea parties in the garden, family night games of drawing in the dark and Red hots in our hot cocoa …
What is it really…this HOPE? And why is it so important? Hope is something we can feel, but hope is also an intentional choice. Definition; hope /hōp/ a feeling of expectation and desire for a certain thing to happen.”he looked through her belongings in the hope of coming across some information” synonyms: aspiration, desire, wish, expectation, ambition, …
Last week, Pearl Joy Brown’s dad, Eric Brown, was asked to speak at a conference in Washington, DC. Thank you, Eric, for sharing your humble spirit, your sincere and heartfelt words, and your beautiful photos.
I am often asked why I smile so much. Often, these inquisitive ones are looking only at the difficulties in caring for a medically fragile child as a 24/7 job. I respond simply, “I can either cry about it or laugh about it; I choose laughter.” Humans are social creatures, and humor is one of the …
Posted: March 27, 2026 by lyndot71
Families for HoPE 2025 Fall Family Survey Results
We thank all who responded to the survey questions We recently asked families to share thoughts on the impact of Families for HoPE (FFH). We received powerful feedback from 127 survey respondents. Your responses to our survey questions help us chart the future of Families for HoPE. Because of you we will work to maintain …
Posted: March 25, 2024 by lyndot71
Celebrating HPE Awareness Week, Sharing Our Families’ Stories
PARENTS FIND HOPE AND PURPOSE, INSPITE OF BEING GIVEN NONE
Members of the medical community still say HPE is incompatible with life, but our stories say otherwise.
Michelle Modula Duffo and her husband Jose had tried to get pregnant for seven years, before turning to IVF. Michelle and Jose were thrilled with the success of the process and looked forward to welcoming their child.
Posted: November 30, 2019 by Leslie, Sammy's mom
My friend, Rhonda
I was a baby when Rhonda came onto my life, so I don’t remember when I met her, but she was my first BFF. Growing up with Rhonda had a profound effect on my life, my personality, and my heart.
Posted: March 25, 2019 by Leslie, Sammy's mom
My Amazing life, at least it is to me!
By Heather Rinard The blades of the grass softly whispered their song in my ear, as I laid sprawled out on the checkered cloth, enjoying our teddy bear picnic. Momma made our childhood magical. From tea parties in the garden, family night games of drawing in the dark and Red hots in our hot cocoa …
Posted: March 26, 2019 by Leslie, Sammy's mom
What HoPE means to us
What is it really…this HOPE? And why is it so important? Hope is something we can feel, but hope is also an intentional choice. Definition; hope /hōp/ a feeling of expectation and desire for a certain thing to happen.”he looked through her belongings in the hope of coming across some information” synonyms: aspiration, desire, wish, expectation, ambition, …
Posted: October 29, 2018 by Leslie, Sammy's mom
More children after HPE
One mom’s story of having more children after HPE
Posted: March 31, 2018 by Leslie, Sammy's mom
2018 Conference Update
Author, Christopher de Vinck to deliver keynote address
Posted: January 23, 2018 by Leslie, Sammy's mom
Pearl Joy Brown
Last week, Pearl Joy Brown’s dad, Eric Brown, was asked to speak at a conference in Washington, DC. Thank you, Eric, for sharing your humble spirit, your sincere and heartfelt words, and your beautiful photos.
Posted: March 26, 2017 by Leslie, Sammy's mom
Laughing Matters
I am often asked why I smile so much. Often, these inquisitive ones are looking only at the difficulties in caring for a medically fragile child as a 24/7 job. I respond simply, “I can either cry about it or laugh about it; I choose laughter.” Humans are social creatures, and humor is one of the …
Posted: February 25, 2017 by Leslie, Sammy's mom
Embrace the Journey
Life with HPE is a journey