Category: Perspectives


Pearl Joy Brown

Last week, Pearl Joy Brown’s dad, Eric Brown, was asked to speak at a conference in Washington, DC.  Thank you, Eric, for sharing your humble spirit, your sincere and heartfelt words, and your beautiful photos.

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Laughing Matters

I am often asked why I smile so much.  Often, these inquisitive ones are looking only at the difficulties in caring for a medically fragile child as a 24/7 job. I respond simply, “I can either cry about it or laugh…

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Embrace the Journey

Life with HPE is a journey

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Living with a special kid

Hello, I’m Virginia, I have a little girl, Violeta, (3 years) with HPE semilobar and we live in Buenos Aires. She’s a cutie and she doesn’t have health issues (touch wood). Of course she has delays. I write a blog about…

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Deepest Sympathy 

Chance Urschel obituary “On behalf of all HPE families past and present, Families for HoPE extends its deepest condolences, love and admiration to the family of Chance Urschel. Chance is the child who brought HoPE to the hopeless, and his…

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Reflections

One more year loaded with sweet recollections and cheerful times have passed. Wonderful people have made our year exceptionally uncommon, and I wish this continues forever. With each sweet person around, each minute is a unique event for us. I…

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…every perfect gift is from above

  James 1:17 “Every good gift and every perfect gift is from above, coming down from the Father of lights with whom there is no variation or shadow due to change.” This journey is something I never saw coming. God chose…

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