Mwiza’s Story
Bereaved mother Florisa shares the hope she has found in the life of her daughter, Mwiza, born with holoprosencephaly.
Colors of the Wind
To celebrate day 2 of Holoprosencephaly Awareness Week, we are repeating a blog entry from October 2019 when Sarah Brown recorded Colors of the Wind in honor of our HPE community.
Where do you live?
Families for HoPE is seeking volunteers! Won’t you help us share the hope in holoprosencephaly?
Who are you?
Who are YOU, and what makes you tick? Stay turned to learn how your special talents can grow with Families for HoPE!
Thank You for Taking the Time to Help Us Grow!
Thank you for your interest in participating in the 2022 HPE Family Conference Survey. Unfortunately, the survey is now closed. Please look for future surveys. The information we collect now, and in the future will be used to help guide Families for HoPE to provide complete and better services for our HPE families.
Order shirts by April 1
ORDER t-shirts, Hoodies and tanks before the april 1 deadline! In the spirit of F•R•I•E•N•D•S which are so important to have in our lives, you have only a few days remaining to order our new H•P•E t-shirts, hoodies and tanks. The last day to order is April 1, so don’t delay! After you receive …
NEWS: Families for HoPE Names Executive Director
Families for HoPE recently welcomed Susan Millender as Executive Director. Millender is the first person to fill the role for the Indianapolis-based nonprofit organization in its 16-year history.
Seeking an Executive Director
We are looking for an Executive Director for Families for HoPE! Executive Director Job Description Summary: Families for HoPE (FFH) is a nonprofit organization seeking to address the needs of families and children diagnosed with holoprosencephaly and related brain malformations. The primary programs of FFH include bi-annual conferences, social media support groups, accurate medical information distribution, …