Category: General


Halloween Costume contest

Families for HoPE annual Halloween costume contest has begun! Get in your entries! 1st prize $150 2nd prize $100 3rd prize $50 https://www.gogophotocontest.com/familiesforhope

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Children after HPE

It’s 2am and in laying in bed wide awake with my baby girl sleeping half way on me. I can barely move and the hand I’m using to type this with is just about numb. But, there’s really no other…

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Overcoming Obstacles One Climb at a Time

  Our adventure into competitive competition climbing began onJune 22, 2017 Keith Warrick stepped up to his first National Adaptive Climbing competition route. He had never competed in an adaptive climbing competition, never competed nationally and that was just the beginning of his journey…

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Only 2 days left 

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What equipment do I really need at home? 

Description: Bring pictures/ dimensions (length and width of floor space it takes up) of equipment that you already have. Bring in your wish list of equipment (type/brand would be helpful but not necessary).    Bring basic dimensions of your living…

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April 16 – Racing for HoPE 2016

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Meet HoPEY!

Our green and speckled friend has been named

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People First!

While you are reading HoPE, you may notice I say things like, “The child with HPE” or “The adult with HPE.” This may sound kind of wordy and repetitive, but there is a reason for it! You won’t hear me…

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In the works…

Thanks for stopping by HoPE!  Don’t forget to scroll down the page, to read HoPE’s first entries! Here’s a sneak peek at what you can expect to see on HoPE, in the near future… ~Child of HoPE: We will be regularly…

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Why HoPE?

You may be wondering to yourself, why does the HPE community use the term, HoPE?? If you look at the ‘What is HPE’  page, you will see the statistics and prognosis for HPE are somewhat grim. The HPE community has adopted the…

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What is HPE?

HPE is briefly discussed in our ‘About’ section, but if you are new to this term, you may find yourself wanting to know more! Well, look no further, because we have an explanation for you! Ho•lo•pros•en•ceph•a•ly \ho-lo-PROS-en-sef-a-le\ is a congenital…

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Welcome!

Welcome to HoPE, a blog about sharing the HoPE in Holoprosencephaly! On this blog, you will find entries and stories related to this rare brain condition, also known as HPE.  We plan on bringing you a broad range of entries from informative pieces…

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