At Families for HoPE, we have nearly 1,000 HPE families in our database, and as we review each record in our database, we recognize that every child and family brings great JOY into our organization, our lives, and our world! You’re important to us, and we want to stay in touch with you.
Posted: June 16, 2021 by Leslie, Sammy's mom
Seeking an Executive Director
We are looking for an Executive Director for Families for HoPE! Executive Director Job Description Summary: Families for HoPE (FFH) is a nonprofit organization seeking to address the needs of families and children diagnosed with holoprosencephaly and related brain malformations. The primary programs of FFH include bi-annual conferences, social media support groups, accurate medical information distribution, …
Posted: September 15, 2019 by Leslie, Sammy's mom
Database Project
At Families for HoPE, we have nearly 1,000 HPE families in our database, and as we review each record in our database, we recognize that every child and family brings great JOY into our organization, our lives, and our world! You’re important to us, and we want to stay in touch with you.
Posted: October 30, 2018 by CharlieDawns momma
Halloween Costume contest
Families for HoPE annual Halloween costume contest has begun! Get in your entries! 1st prize $150 2nd prize $100 3rd prize $50 https://www.gogophotocontest.com/familiesforhope
Posted: May 5, 2018 by Leslie, Sammy's mom
Addresses
With our recent logo change, we have revamped some of our written materials. This week, we prepared a mailing to over 800 HPE families in the U.S. and internationally. If you have or had a child with HPE, and you do not receive an envelope in the mail from us within the next week, it …
Posted: March 26, 2018 by Leslie, Sammy's mom
The Future
New and exciting things are happening
Posted: May 18, 2016 by CharlieDawns momma
What equipment do I really need at home?
Description: Bring pictures/ dimensions (length and width of floor space it takes up) of equipment that you already have. Bring in your wish list of equipment (type/brand would be helpful but not necessary). Bring basic dimensions of your living room, bathroom, child’s bedroom as well as the width of the doorways (opening available vs …
Posted: November 26, 2015 by Leslie, Sammy's mom
Meet HoPEY!
Our green and speckled friend has been named
Posted: September 30, 2010 by CharlieDawns momma
In the works…
Thanks for stopping by HoPE! Don’t forget to scroll down the page, to read HoPE’s first entries! Here’s a sneak peek at what you can expect to see on HoPE, in the near future… ~Child of HoPE: We will be regularly featuring a child/adult with HPE! The purpose of this entry is to give more insight into …