Category: General


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What equipment do I really need at home? 

Description: Bring pictures/ dimensions (length and width of floor space it takes up) of equipment that you already have. Bring in your wish list of equipment (type/brand would be helpful but not necessary).    Bring basic dimensions of your living…

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April 16 – Racing for HoPE 2016

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Meet HoPEY!

Our green and speckled friend has been named

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People First!

While you are reading HoPE, you may notice I say things like, “The child with HPE” or “The adult with HPE.” This may sound kind of wordy and repetitive, but there is a reason for it! You won’t hear me…

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In the works…

Thanks for stopping by HoPE!  Don’t forget to scroll down the page, to read HoPE’s first entries! Here’s a sneak peek at what you can expect to see on HoPE, in the near future… ~Child of HoPE: We will be regularly…

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Why HoPE?

You may be wondering to yourself, why does the HPE community use the term, HoPE?? If you look at the ‘What is HPE’  page, you will see the statistics and prognosis for HPE are somewhat grim. The HPE community has adopted the…

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What is HPE?

HPE is briefly discussed in our ‘About’ section, but if you are new to this term, you may find yourself wanting to know more! Well, look no further, because we have an explanation for you! Ho•lo•pros•en•ceph•a•ly \ho-lo-PROS-en-sef-a-le\ is a congenital…

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Welcome!

Welcome to HoPE, a blog about sharing the HoPE in Holoprosencephaly! On this blog, you will find entries and stories related to this rare brain condition, also known as HPE.  We plan on bringing you a broad range of entries from informative pieces…

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