At Families for HoPE, we have nearly 1,000 HPE families in our database, and as we review each record in our database, we recognize that every child and family brings great JOY into our organization, our lives, and our world! You’re important to us, and we want to stay in touch with you.
Posted: September 15, 2019 by Leslie, Sammy's mom
Database Project
At Families for HoPE, we have nearly 1,000 HPE families in our database, and as we review each record in our database, we recognize that every child and family brings great JOY into our organization, our lives, and our world! You’re important to us, and we want to stay in touch with you.
Posted: June 23, 2019 by CharlieDawns momma
HoPE Walk ‘N’ Roll
First Annual HoPE Walk ‘N’ Roll festival Families for HoPE, Inc. is a 501(c)(3) nonprofit organization formed to address the needs of families and children diagnosed with holoprosencephaly (HPE) and related brain malformations. Deeply committed to raising awareness of holoprosencephaly, a group of HPE families in Arizona are joining together to host an awareness event …
Posted: March 29, 2019 by CharlieDawns momma
Words
By: Kelli Aardal Goin Words she never got to say, However communicated in a big way.
Posted: March 26, 2019 by CharlieDawns momma
What HoPE means to us
What is it really…this HOPE? And why is it so important? Hope is something we can feel, but hope is also an intentional choice. Definition; hope /hōp/ a feeling of expectation and desire for a certain thing to happen.”he looked through her belongings in the hope of coming across some information” synonyms: aspiration, desire, wish, expectation, ambition, …
Posted: March 25, 2019 by CharlieDawns momma
My Amazing life, at least it is to me!
By Heather Rinard The blades of the grass softly whispered their song in my ear, as I laid sprawled out on the checkered cloth, enjoying our teddy bear picnic. Momma made our childhood magical. From tea parties in the garden, family night games of drawing in the dark and Red hots in our hot cocoa …
Posted: March 15, 2019 by CharlieDawns momma
Fun on St Patty’s Day
Every March 17, St. Patrick’s Day is celebrated with parades, parties, and a lot of green. This date marks the death of Saint Patrick, the Patron Saint of Ireland. … Today, the holiday has evolved to become a secular celebration of Irish culture. Green garb, leprechauns, pinching, drinking, partying, parades, more drinking. With all this celebrating how can we include our …
Posted: March 1, 2019 by CharlieDawns momma
The Benefits of Inclusion
Children with Special Needs •affords a sense of belonging • to the diverse human family • provides a diverse stimulating environment in which to grow and learn • evolves in feelings of being a member of a diverse community • enables development of • friendships • provides opportunities to • develop neighborhood friends • enhances …
Posted: February 28, 2019 by CharlieDawns momma
Rare Disease Day
What is holoprosencephaly? Holoprosencephaly is an abnormality of brain development in which the brain doesn’t properly divide into the right and left hemispheres. The condition can also affect development of the head and face. In general, the severity of any facial defects corresponds to the severity of the brain defect. The most severely affected people have one …
Posted: February 25, 2019 by CharlieDawns momma
Helpful tips with an IEP
An IEP is the individualized education plan, a document written for a child with a disability that identifies needs, sets goals and lists services to insure optimal educational and vocational outcomes. Often the IEP process can be intimidating and overwhelming to parents. The following will help parents become engaged participants in the development and implementation …
Posted: January 25, 2019 by CharlieDawns momma
Person Centered Planning
What is person centered planning? A person centered plan can help those involved with the focus person see the total person, recognize his or her desires and interests, and discover completely new ways of thinking about the future of the person.” — Beth Mount & Kay Zwernik, 1988 Person Centered Planning is an ongoing problem-solving …