Families for HoPE, Inc.
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Category: General
Addresses
With our recent logo change, we have revamped some of our written materials. This week, we prepared a mailing to over 800 HPE families in the U.S. and internationally. If you have or had a child with HPE, and you…
Read MoreWhat equipment do I really need at home?
Description: Bring pictures/ dimensions (length and width of floor space it takes up) of equipment that you already have. Bring in your wish list of equipment (type/brand would be helpful but not necessary). Bring basic dimensions of your living…
Read MorePeople First!
While you are reading HoPE, you may notice I say things like, “The child with HPE” or “The adult with HPE.” This may sound kind of wordy and repetitive, but there is a reason for it! You won’t hear me…
Read MoreIn the works…
Thanks for stopping by HoPE! Don’t forget to scroll down the page, to read HoPE’s first entries! Here’s a sneak peek at what you can expect to see on HoPE, in the near future… ~Child of HoPE: We will be regularly…
Read MoreWhy HoPE?
You may be wondering to yourself, why does the HPE community use the term, HoPE?? If you look at the ‘What is HPE’ page, you will see the statistics and prognosis for HPE are somewhat grim. The HPE community has adopted the…
Read MoreWhat is HPE?
HPE is briefly discussed in our ‘About’ section, but if you are new to this term, you may find yourself wanting to know more! Well, look no further, because we have an explanation for you! Ho•lo•pros•en•ceph•a•ly \ho-lo-PROS-en-sef-a-le\ is a congenital…
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