For Holoprosencephaly Awareness Week, we commissioned a custom silicone focal bead with the phrase “never lose hope”, and these beads can be used to decorate everyday items that can be worn or used as a conversation starter.
Category: Fundraising, Holoprosencephaly Awareness Week Tags: awareness, bangle, cup charm, fundraising, holoprosencephaly, ink pen, keychain, pen kit, purse, tumbler, wristlet
Families for HoPE, Inc. is honored and grateful to have two young people with HPE join the ranks of our organization’s Ambassadors for HoPE to help raise awareness of holoprosencephaly.
Calendar of Events as of June 1, 2024
We are happy to announce the second edition of our podcast series Families First. We hope that you enjoy tuning in today and every month, as we cover information and resources of importance to families touched by holoprosencephaly.
Coloring is a hot trend for adults, and gathering a group of individuals together to color is a unique way to raise awareness of HPE! If you are interested in using coloring as a way to raise awareness of HPE and raise funds for Families for HoPE, we can help you do so. If you …
Category: Fundraising, Holoprosencephaly Awareness Week Tags: awareness, balloons, coloring, community, event, fundraising, HoPE, HPE, pencils, wristbands
Hi my name is Molly Johnson, and I want to tell everyone a story about how my family, husband Jason, daughter Marissa and my mom Pat, all made it to the 2010 Conference on Holoprosencephaly in Maryland. We live in Washington state, and we had never met or talked with any family who has a …
Maybe you haven’t heard of Nolan…but that’s all about to change! When Janelle Emory learned that her unborn nephew, Nolan, would be born with Holoprosencephaly, she knew that she wanted to do something special in his honor. Inspired by Nolan and his journey of HoPE, Janelle has started a fundraising campaign called “Changing Lives With …
Tag: fundraising
Never Lose HoPE Campaign
Posted: March 24, 2025 by Leslie, Sammy's mom
For Holoprosencephaly Awareness Week, we commissioned a custom silicone focal bead with the phrase “never lose hope”, and these beads can be used to decorate everyday items that can be worn or used as a conversation starter.
Category: Fundraising, Holoprosencephaly Awareness Week Tags: awareness, bangle, cup charm, fundraising, holoprosencephaly, ink pen, keychain, pen kit, purse, tumbler, wristlet
Two Vibrant, Young People with HPE Join Us as Ambassadors for HoPE
Posted: June 13, 2024 by lyndot71
Families for HoPE, Inc. is honored and grateful to have two young people with HPE join the ranks of our organization’s Ambassadors for HoPE to help raise awareness of holoprosencephaly.
Category: Ambassadors for HoPE, Anchors of HoPE, Child of HoPE, Fundraising Tags: #Ambassador for HoPE #familiesforhope #HPE, #familiesforhope, #holoprosencephaly #hope, awareness, fundraising
Calendar of Events
Posted: June 8, 2024 by Leslie, Sammy's mom
Calendar of Events as of June 1, 2024
Category: Fundraising, HPE Conference Tags: awareness, calendar, events, fundraising
Families First Podcast Episode 2
Posted: October 2, 2023 by Leslie, Sammy's mom
We are happy to announce the second edition of our podcast series Families First. We hope that you enjoy tuning in today and every month, as we cover information and resources of importance to families touched by holoprosencephaly.
Category: Fundraising, Podcast Tags: families, first, fundraising, golf outing, podcast, softball, tournament
Join our Fundraising Committee
Posted: May 27, 2023 by Leslie, Sammy's mom
Category: Fundraising Tags: #holoprosencephaly #hope, fundraising, get involved
Coloring
Posted: March 26, 2017 by Leslie, Sammy's mom
Coloring is a hot trend for adults, and gathering a group of individuals together to color is a unique way to raise awareness of HPE! If you are interested in using coloring as a way to raise awareness of HPE and raise funds for Families for HoPE, we can help you do so. If you …
Category: Fundraising, Holoprosencephaly Awareness Week Tags: awareness, balloons, coloring, community, event, fundraising, HoPE, HPE, pencils, wristbands
If there is a will, there is a way
Posted: October 15, 2011 by Leslie, Sammy's mom
Hi my name is Molly Johnson, and I want to tell everyone a story about how my family, husband Jason, daughter Marissa and my mom Pat, all made it to the 2010 Conference on Holoprosencephaly in Maryland. We live in Washington state, and we had never met or talked with any family who has a …
Category: Fundraising, Guest Authors, HPE Conference Tags: conference, fundraising, Marissa, Molly
Changing Lives with HoPE
Posted: May 25, 2011 by Leslie, Sammy's mom
Maybe you haven’t heard of Nolan…but that’s all about to change! When Janelle Emory learned that her unborn nephew, Nolan, would be born with Holoprosencephaly, she knew that she wanted to do something special in his honor. Inspired by Nolan and his journey of HoPE, Janelle has started a fundraising campaign called “Changing Lives With …
Category: Fundraising, Inspiration Tags: change, fundraising, HoPE, Janelle, marathon, Nolan