Posted on March 14, 2013 by Leslie, Sammy's mom
This playlist features children with HPE. Sit back, relax, and prepare to smile as you see these beautiful miracles–Eva, Madelyn, Sammy, Marissa, Maeve, Cameron. Do you have a video you’d like to share with us, please comment below and include your link.
Posted on October 15, 2011 by Leslie, Sammy's mom
Hi my name is Molly Johnson, and I want to tell everyone a story about how my family, husband Jason, daughter Marissa and my mom Pat, all made it to the 2010 Conference on Holoprosencephaly in Maryland. We live in Washington state, and we had never met or talked with any family who has a …