It is with broken hearts that we share the news that our beloved board member, Heather Dawn Rinard, has succumbed to her brave battle with cancer. Heather leaves behind her loving husband Matt, son Gavin, and daughters Sami, Izzy and Charliedawn. Heather joined our HPE family with the birth of her daughter, Charliedawn in 2012, …
Today is International Bereaved Mothers Day
International Bereaved Mothers Day was established in 2010 and is recognized on the first Sunday in May. To all of the bereaved mothers in our HPE family, we love you.
Words
By: Kelli Aardal Goin Words she never got to say, However communicated in a big way.
Always Remembered
As we approach the 2018 Family Conference on Holoprosencephaly, we want to share with you how we will honor and remember those we love who have passed away with HPE. As you may know, at each of our past family conferences on HPE, we have had a memorial balloon release. The balloon releases are lovely and special for all of …
A lasting memorial
As we approach Holoprosencephaly Awareness Week on March 27-April 2, we wanted to find a special and lasting way to memorialize all of our precious children who have passed away with HPE. As you may know, at each of our Family Conferences on HPE we do a memorial balloon release, and each balloon carries a …
Deepest Sympathy
Chance Urschel obituary “On behalf of all HPE families past and present, Families for HoPE extends its deepest condolences, love and admiration to the family of Chance Urschel. Chance is the child who brought HoPE to the hopeless, and his inspiration touched all of our lives.”
God won’t give you…..
I know we have all heard the saying, “God won’t give you more than you can handle.” I have been told this many times by people over the last 12 years. Twelve years ago, at the age of 24, I gave birth to Quinton. I was scared to death when this 11lb, 2ft long bundle …
Where do they go…
Where do they go to, the people who leave? Are they around us, in the cool evening breeze? Do they still hear us, and watch us each day? I’d like you to think of them with us that way. Where do they go, when no longer here? I think they stay with us soothing our …
Grieving the loss of Kaziah Gracie
Trust in the Lord with all your heart, and do not lean on your own understanding. In all your ways acknowledge him, and he will make straight your paths. Proverbs 3:5-6 And our journey begins…..One of an unknown path, One of which WE chose not to ignore or terminate on our own, One of which …