Category: Grief


Always Remembered

As we approach the 2018 Family Conference on Holoprosencephaly, we want to share with you how we will honor and remember those we love who have passed away with HPE. As you may know, at each of our past family conferences on HPE,…

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A lasting memorial

As we approach Holoprosencephaly Awareness Week on March 27-April 2, we wanted to find a special and lasting way to memorialize all of our precious children who have passed away with HPE. As you may know, at each of our…

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HPE and other wacky goodness

HPE Awareness Week 2016

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Deepest Sympathy 

Chance Urschel obituary “On behalf of all HPE families past and present, Families for HoPE extends its deepest condolences, love and admiration to the family of Chance Urschel. Chance is the child who brought HoPE to the hopeless, and his…

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God won’t give you…..

I know we have all heard the saying, “God won’t give you more than you can handle.” I have been told this many times by people over the last 12 years.  Twelve years ago, at the age of 24, I…

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Where do they go…

Where do they go to, the people who leave? Are they around us, in the cool evening breeze? Do they still hear us, and watch us each day? I’d like you to think of them with us that way. Where…

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Grieving the loss of Kaziah Gracie

Trust in the Lord with all your heart, and do not lean on your own understanding. In all your ways acknowledge him, and he will make straight your paths. Proverbs 3:5-6 And our journey begins…..One of an unknown path, One…

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HoPE and the One Percenters

Please enjoy this YouTube video created by Rob Myers, Gabby’s dad, on #GivingTuesday. Thank you so much to Rob, Heidi, and Gabby for your commitment, support, and inspiration.  

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Reality of HoPE

I shared this on my Facebook page today, and several have asked me to share it… I know that it can be uncomfortable to be my Facebook friend especially when I share updates on children who are sick or dying….

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With Sympathy – Nancy Bleggi

With great sadness, we share the news of the passing of Nancy Bleggi, following a struggle with cancer. Nancy remains one of our beloved HPE moms and has been a source of encouragement and education for countless HPE families over…

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With sincere sympathy…

When one hurts, we all hurt. It is with heavy hearts that we grieve with the Brown and Mitchell families, as we all try to come to grips with the death of Rachel Brown Mitchell. Rachel joined our HPE family…

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For grieving dads…

It must be very difficult to be a man in grief since “men don’t cry” and “men are strong” no tears can bring relief. It must be very difficult to stand up to the test and field the calls and…

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When one hurts, we all hurt

Our thoughts and prayers are with Families for HoPE board member, Kelli Aardal, on the death of her husband, Josh. Please keep Kelli and her children–Jade, Abbey, and Kellin–in your prayers.

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