HPE and other wacky goodness

By Julie Oldendick, Lula’s mom and Guest Author

It’s tough to begin. I’m a private person, but my oldest daughter Lula changed that. She would be almost 14 now. I have great memories and wonderful pictures to remind me of a different life I used to have with many exciting stories of not-so-small events that came easily for other ‘typical’ kids but not for Lula. At the same time, I recall the disagreements with doctors, the home nurses not showing up, and the numerous challenges that go with raising a daughter with special needs.

 Lula had a beautiful smile, infectious laugh, and a loud, cranky scream at times. She wasn’t perfect, I mean, she was my feisty kid after all. Butterflies loved her, and she loved them. She had an amazing room with fabric butterflies fluttering from the ceiling. Many nights, we snuggled in her big-girl bed and fell asleep together to the hum of different machines. She had three younger siblings that all learned to walk by pulling themselves up on her wheelchair and taking her for a slow, yet exciting ride. It was a “normal insane” environment for us. I was so proud of my family.

 Two days before Christmas when she was 8 ½ years old, she passed away. It came suddenly without warning, and we still don’t know why. We have all the pain of death and the joy of her life at the same time. It’s been challenging to cope, but I must ask myself, “Why wouldn’t this happen to us? What makes us so special to avoid and escape the ups and downs of a love cherished and lost?” And also, ”What can I do to honor Lula and share a message of hope?”

One of my gifts is knitting wacky goodness. I enjoy creating quirky critters and goofy yarnbombs with vibrant colors and positive messages. I learned to knit when Lula was a wee baby, and I sat through endless medical appointments that included more than 2 hours just in the waiting room. Instead of wringing the staff’s neck for making us wait, I used my power for good by clicking my sticks and making baby hats, blankets, etc. Eventually, I found my niche and enjoy making a variety of wackadoodle plushies and yarnbombs. (The plushies are sold locally and include a brief story about Lula. The yarnbombs are knitted pieces that are attached to street signs and spread a message of happiness.)

 I always include a tag with my yarnbombing that explains that it’s a random act of kindness to make you smile. Lula’s name is on it loud and proud! I’ve had lots of people stop and ask what it is and that gives us a chance to chat about life and things in general. I have learned that there are so many of us who are connected by grief, and we can support one another just by listening and being kind. My heart still hurts, but it’s not filled with anger or depression; now, it’s filled with hope and creativity, and I look forward to finding new ways of paying it forward. God is using my past troubles and hardships to make me stronger for today. Those hardships which helped form my character, now reveal it. I can share a message of hope effectively because I’ve suffered and hurt. I sought out others who faced similar hurts, and likewise, others trust my comfort because I’ve known pain too. I want my life to reflect the message of hope that I have.

I teach junior knitting classes and use that time to connect with kids about being a positive influence. You can’t worry about what you can’t control, and you can’t really control much so… But we aren’t always serious. Lots of times, we’re laughing about silly topics while our hands are busy knitting and creating something personal. It’s a great way to share with them that life doesn’t have to be perfect to be beautiful.

 I always take pictures of my classes and yarnbombs and post them on social media with a positive quote. I enjoy the many new ‘virtual friends’ around the world that I now have too. There’s a lot of us using craft-therapy to spread a positive message.

I still have so many questions and so many prayers that I think went unanswered, but in reality, I think God answered them just the way it was meant to be.

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7 Comments on “HPE and other wacky goodness

  1. Actually, you can worry about what you can’t control, and too many people do. But it sounds as if you have learned that worry is only productive if it causes you to do something about the situation; otherwise let the worry go.

    Thanks for sharing Lula with us. She was a special girl who had a very special place in and effect on your family and will forever.

    Susan, mom of Beth, 27, septopreoptic holoprosencephaly

    • Thanks Susan, You definitely can worry about everything. I still have my worries but I try to lift them up and concentrate better on what is in front of me at the moment. Thank you for reading my story. I’m sure with having a 27 year old daughter you have your share of amazing and wild stories too!

  2. Hello, my name is Julie, 29 from Scotland. Your daughter Lula is absolutely gorgeous, God rest her wee soul. My son, Jordan, 15 months old has alobar holoprosencephaly. He was diagnosed at 24 weeks into my pregnancy via and MRI scan. He has many hurdles to face including seizures, tummy problems, feeding difficulties, respiratory issues etc but he is a happy, loving little boy who myself and family/friends are in complete awe of. His fight to survive in this world is truly amazing and like little Lula they may be one person to the world but they are the world to us.

    Your knitting looks brilliant, very colourful and quirky! Something bright to honour your little angel.

    • Hi Julie, Wow you have your hands full! I remember those days fondly. They are definitely challenging but always trust your gut when the docs try to persuade you against your comfort level with Jordan. It’s not easy but worth the fight.

      Thanks for the compliments about my knitting. I’ve read that yarn bombing is more prevalent in your country and Australia… I’m always amazed at the beautiful artwork that remains intact in such busy places.

      Wishing you all the best,
      Julie

  3. I’ve been following you a while on Instagram now, Julie, and I know you yarnbomb for Lula, but I didn’t know the full story. It’s a great way to cope with grief. Lula was a beautiful girl and she was lucky to have a great mum / family like she had!

    • Thank you for the kind words. I also LOVE seeing the beautiful and fun things you create in Belgium. Isn’t it amazing how crafts and kindness can connect us half way around the world:)

    • Thanks Yarnbird! I follow you too. I appreciate you taking the time to reply. Sorry I didn’t see it sooner:)
      Wishing you all the best,
      Julie

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