Please enjoy this YouTube video created by Rob Myers, Gabby’s dad, on #GivingTuesday. Thank you so much to Rob, Heidi, and Gabby for your commitment, support, and inspiration.
Reality of HoPE
I shared this on my Facebook page today, and several have asked me to share it… I know that it can be uncomfortable to be my Facebook friend especially when I share updates on children who are sick or dying. My deepest desire is that no parent would face a life-threatening diagnosis for his/her child …
With Sympathy – Nancy Bleggi
With great sadness, we share the news of the passing of Nancy Bleggi, following a struggle with cancer. Nancy remains one of our beloved HPE moms and has been a source of encouragement and education for countless HPE families over three decades. Nancy and her husband, Scott entered our HPE community following the birth of …
With sincere sympathy…
When one hurts, we all hurt. It is with heavy hearts that we grieve with the Brown and Mitchell families, as we all try to come to grips with the death of Rachel Brown Mitchell. Rachel joined our HPE family only a year or so ago when her daughter, Jane, was diagnosed with HPE. While …
For grieving dads…
It must be very difficult to be a man in grief since “men don’t cry” and “men are strong” no tears can bring relief. It must be very difficult to stand up to the test and field the calls and visitors so she can gets some rest They always ask if she’s alright and what …
When one hurts, we all hurt
Our thoughts and prayers are with Families for HoPE board member, Kelli Aardal, on the death of her husband, Josh. Please keep Kelli and her children–Jade, Abbey, and Kellin–in your prayers.
My Journey
by Renee Hansen, Dakota’s mom Dakota Jade was born September 29, 1994. We did not know of her HPE when she was born. Days after she was born, we were told she had Semi Lobar Holoprosencephaly and if she did live, she would NOT have a life worth living. The doctors were WRONG. I made …
Jessie’s sister finds HoPE again
Please check out this new blog from Jenny, one of our HPE siblings. This blog is where Jenny writes letters to her brother, Andy, who passed away following an accident in 2008. Jenny and Andy had a sister named Jessie who died in 1988 with HPE. In this particular entry, Jenny tells Andy about meeting …