Tag: family
Today, we are celebrating our HPE community and what that community means to us. Please share how Families for HoPE and other HPE families or children with HPE have influenced your journey of HoPE.
She is not broken She does not need fixing
By Heather Rinard The blades of the grass softly whispered their song in my ear, as I laid sprawled out on the checkered cloth, enjoying our teddy bear picnic. Momma made our childhood magical. From tea parties in the garden, family night games of drawing in the dark and Red hots in our hot cocoa …
Guest Author: Melissa, Isaiah’s mom Our journey started on January 11, 2016 when we found out we we were pregnant with Isaiah. When I was 18 weeks, my primary OBGYN noticed something wrong with Isaiah’s head. He wasn’t sure what was going on, so he sent us to a maternal fetal medicine specialist. This doctor …
Category: Embrace the Journey, Guest Authors Tags: #familiesforhope, #holoprosencephaly #hope, #sharingHoPE, awareness, Carter Centers, diagnosis, disability, Embrace the Journey, family, holoprosencephaly, HoPE, HPE, prenatal, special needs
Register for the 2018 Family Conference on Holoprosencephaly
Thumbprints on our hearts
Irvin Family Story I am Todd Irvin, and this is the story on our family. My wife Kelly and I were married on November 5th, 2005, 8 months after I was back from a military deployment to Iraq. Shortly after we were married, we were wanting to start a family. We tried for about 3-3 …
Trust in the Lord with all your heart, and do not lean on your own understanding. In all your ways acknowledge him, and he will make straight your paths. Proverbs 3:5-6 And our journey begins…..One of an unknown path, One of which WE chose not to ignore or terminate on our own, One of which …
This is a great blog written by a dad about one of our HPE families in Florida. http://navigatinglifesdetours.com/2014/08/30/the-j-p-story-uncertainty-before-birth/
Category: Child of HoPE, Inspiration, Perspectives Tags: abortion, birthday, children with special needs, disabilities, family, florida hospital for children, holoprosencephaly, special needs children, the j.p. story
Flackback Friday – April 2006 HPE Family Weekend and Conference Indianapolis, Indiana, USA April 21-23, 2006 Co-sponsored by Families for HoPE, Inc. and the Carter Centers at Kennedy Krieger Institute The Highlights The HPE Family Weekend & Conference, co-sponsored by Families for HoPE and the Carter Center at Kennedy Krieger Institute, was truly a weekend …
Tag: family
We are Family
Posted: March 30, 2023 by Leslie, Sammy's mom
Today, we are celebrating our HPE community and what that community means to us. Please share how Families for HoPE and other HPE families or children with HPE have influenced your journey of HoPE.
Category: Holoprosencephaly Awareness Week Tags: awareness, family, holoprosencephaly, HPE, we are family
Not Broken
Posted: July 3, 2019 by Leslie, Sammy's mom
She is not broken She does not need fixing
Category: Inspiration Tags: #familiesforhope, #sharingHoPE, diagnosis, disability, Embrace the Journey, family, holoprosencephaly, HoPE, HPE
My Amazing life, at least it is to me!
Posted: March 25, 2019 by Leslie, Sammy's mom
By Heather Rinard The blades of the grass softly whispered their song in my ear, as I laid sprawled out on the checkered cloth, enjoying our teddy bear picnic. Momma made our childhood magical. From tea parties in the garden, family night games of drawing in the dark and Red hots in our hot cocoa …
Category: Embrace the Journey, Perspectives Tags: #familiesforhope, #gotHoPE, #holoprosencephaly #hope, #sharingHoPE, disability, family, holoprosencephaly awareness week, siblings, special needs
Never Lose HoPE
Posted: July 30, 2018 by Leslie, Sammy's mom
Guest Author: Melissa, Isaiah’s mom Our journey started on January 11, 2016 when we found out we we were pregnant with Isaiah. When I was 18 weeks, my primary OBGYN noticed something wrong with Isaiah’s head. He wasn’t sure what was going on, so he sent us to a maternal fetal medicine specialist. This doctor …
Category: Embrace the Journey, Guest Authors Tags: #familiesforhope, #holoprosencephaly #hope, #sharingHoPE, awareness, Carter Centers, diagnosis, disability, Embrace the Journey, family, holoprosencephaly, HoPE, HPE, prenatal, special needs
Registration is open!
Posted: June 15, 2017 by Leslie, Sammy's mom
Register for the 2018 Family Conference on Holoprosencephaly
Category: HPE Conference Tags: 2018, conference, family, registration
Journey Reminder
Posted: March 2, 2017 by Leslie, Sammy's mom
Thumbprints on our hearts
Category: Embrace the Journey, Guest Authors Tags: conference, family, HPE, slider, thumbprint
Irvin Family Story
Posted: October 16, 2015 by Leslie, Sammy's mom
Irvin Family Story I am Todd Irvin, and this is the story on our family. My wife Kelly and I were married on November 5th, 2005, 8 months after I was back from a military deployment to Iraq. Shortly after we were married, we were wanting to start a family. We tried for about 3-3 …
Category: Guest Authors Tags: adoption, children, courage, disablity, family, fertilization, HoPE
Grieving the loss of Kaziah Gracie
Posted: September 19, 2015 by Leslie, Sammy's mom
Trust in the Lord with all your heart, and do not lean on your own understanding. In all your ways acknowledge him, and he will make straight your paths. Proverbs 3:5-6 And our journey begins…..One of an unknown path, One of which WE chose not to ignore or terminate on our own, One of which …
Category: Grief, Guest Authors Tags: coping, family, grief, HoPE, joy, kazaih, love, sadness
The J.P. Story
Posted: September 10, 2014 by Leslie, Sammy's mom
This is a great blog written by a dad about one of our HPE families in Florida. http://navigatinglifesdetours.com/2014/08/30/the-j-p-story-uncertainty-before-birth/
Category: Child of HoPE, Inspiration, Perspectives Tags: abortion, birthday, children with special needs, disabilities, family, florida hospital for children, holoprosencephaly, special needs children, the j.p. story
2006 HPE Family Conference
Posted: March 15, 2006 by Leslie, Sammy's mom
Flackback Friday – April 2006 HPE Family Weekend and Conference Indianapolis, Indiana, USA April 21-23, 2006 Co-sponsored by Families for HoPE, Inc. and the Carter Centers at Kennedy Krieger Institute The Highlights The HPE Family Weekend & Conference, co-sponsored by Families for HoPE and the Carter Center at Kennedy Krieger Institute, was truly a weekend …
Category: Holidays, HPE Conference Tags: conference, family, holoprosencephaly, Indianapolis, racing, siblings