Written by Josh Timmerman Growing up, I dreamed of being a race car driver, and when that dream became a reality for me, I knew that I wanted to make a difference and be known as a man and driver who stands for something. In 2006, I met a little boy named Sammy Harley who …
Before Families for HoPE was formed in 2006, there’s a character/animal that has served as our unofficial mascot in the HPE community, and that mascot is the frog. It all started following the passing of Harrison Stauft, forever known as the little boy who loved frogs–specifically, five green and speckled frogs. This was a song …
Ever have those days when you feel as if you have raced into the parking lot on two wheels because you’re running late for a doctor appointment? The Families for HoPE logo on the front quarter panel is a blur; how fast do you imagine he was driving?
The 1st Annual Holoprosencephaly Awareness Week kicks off tomorrow! We want to hear what you and your family and friends are doing to help raise awareness and educate others about this condition that has made such an impact on our lives. Professional race car driver Kyle Gimple is doing his part to raise awareness today! …
In our HPE world, we know a thing or two about underdogs. From the moment we first heard the word “holoprosencephaly”, we received a front-row seat in the drama of underdogs. Who hasn’t heard the phrase “incompatible with life”, yet looks around our HPE community world and sees the smiling faces of 20 and 30-year …
It seems we have a sports theme going these days! First, congratulations to Laura Phillips for correctly naming the person in the “got HoPE?” contest. Laura is the mom to little Kaziah who has semi-lobar HPE. Laura will be receiving some logo items from Families for HoPE for her winning answer! The person in the photo …