In our journey with HPE, there are many people who make a difference . . . but there are some who are quiet, unsung heroes. . . those whom we can never thank enough, yet we owe them the world.
March 10-16 has been designated as Holoprosencephaly Awareness Week! Over the course of the next several days, we would ask that you look for opportunities to share the HoPE you’ve found in Holoprosencephaly. Use your favorite social media accounts to reach others, and encourage those others to share the HoPE with their social media contacts. …
Feel free to be creative and create your own sign or you can download and print a givingTuesday unselfie template here! Please send your #unselfie to info@FamiliesforHoPE.org, so that we can add your unselfie to our collage!
We are thankful for each of the infants, children, and adults with HPE who have touched our hearts in countless ways–those born and unborn, living or deceased. We are thankful for our HPE parents. We all remember the moment that the word “holoprosencephaly” became a part of our vocabulary, and we are grateful to have …
Tag: #sharingHoPE
Bobby’s HoPE
Posted: March 11, 2014 by Leslie, Sammy's mom
Category: Holoprosencephaly Awareness Week Tags: #holoprosencephaly #hope, #sharingHoPE, awareness, bobby, tom krause
Unsung Heroes
Posted: March 11, 2014 by Leslie, Sammy's mom
In our journey with HPE, there are many people who make a difference . . . but there are some who are quiet, unsung heroes. . . those whom we can never thank enough, yet we owe them the world.
Category: Holoprosencephaly Awareness Week Tags: #holoprosencephaly #hope, #sharingHoPE, heroes, super, super hero, thanks, unsung
March 10-16 is Holoprosencephaly Awareness Week!
Posted: March 10, 2014 by Leslie, Sammy's mom
March 10-16 has been designated as Holoprosencephaly Awareness Week! Over the course of the next several days, we would ask that you look for opportunities to share the HoPE you’ve found in Holoprosencephaly. Use your favorite social media accounts to reach others, and encourage those others to share the HoPE with their social media contacts. …
Category: Holoprosencephaly Awareness Week Tags: #sharingHoPE, awareness, holoprosencephaly, ripple, social media
#GivingTuesday . . . #SharingHoPE
Posted: December 4, 2013 by Leslie, Sammy's mom
Category: #GivingTuesday, Holidays, Inspiration Tags: #givingtuesday, #holoprosencephaly #hope, #sharingHoPE, #unselfie, get involved
We need your #unselfie!
Posted: December 1, 2013 by Leslie, Sammy's mom
Feel free to be creative and create your own sign or you can download and print a givingTuesday unselfie template here! Please send your #unselfie to info@FamiliesforHoPE.org, so that we can add your unselfie to our collage!
Category: #GivingTuesday, Holidays Tags: #givingtuesday, #holoprosencephaly #hope, #sharingHoPE, #unselfie
So very thankful . . .
Posted: November 28, 2013 by Leslie, Sammy's mom
We are thankful for each of the infants, children, and adults with HPE who have touched our hearts in countless ways–those born and unborn, living or deceased. We are thankful for our HPE parents. We all remember the moment that the word “holoprosencephaly” became a part of our vocabulary, and we are grateful to have …
Category: #GivingTuesday, Holidays, Inspiration, Perspectives Tags: #givingthanks, #givingtuesday, #holoprosencephaly #hope, #sharingHoPE, #thankful, #thanksgiving, help
#GivingTuesday The countdown is on!
Posted: November 27, 2013 by Leslie, Sammy's mom
Category: #GivingTuesday, Fundraising Tags: #givingtuesday, #sharingHoPE, holoprosencephaly