Posted: March 14, 2014 by Leslie, Sammy's mom
(Submitted by Pat Wright) HPE is not a rare disorder in our immediate family, 50% of the children have HPE, and it has not prematurely taken the lives of the affected children, as one is 32-years old and the other is 23-years old. It has however taken us down a road of understanding and certainly …
Category: Guest Authors, Holoprosencephaly Awareness Week Tags: #sharingHoPE, awareness, holoprosencephaly, HPE, wright
Posted: March 12, 2014 by Leslie, Sammy's mom
Maddox’s parents–Philip and Hailey Brewer–have shared Maddox’s story in honor of Holoprosencephaly Awareness Week. Check it out by clicking on the photo below . . .
Category: Holoprosencephaly Awareness Week Tags: #holoprosencephaly #hope, #sharingHoPE, awareness, brewer, maddox, philip, riley hospital
Posted: March 11, 2014 by Leslie, Sammy's mom
Category: Holoprosencephaly Awareness Week Tags: #holoprosencephaly #hope, #sharingHoPE, awareness, bobby, tom krause
Posted: March 11, 2014 by Leslie, Sammy's mom
In our journey with HPE, there are many people who make a difference . . . but there are some who are quiet, unsung heroes. . . those whom we can never thank enough, yet we owe them the world.
Category: Holoprosencephaly Awareness Week Tags: #holoprosencephaly #hope, #sharingHoPE, heroes, super, super hero, thanks, unsung
Posted: March 10, 2014 by Leslie, Sammy's mom
March 10-16 has been designated as Holoprosencephaly Awareness Week! Over the course of the next several days, we would ask that you look for opportunities to share the HoPE you’ve found in Holoprosencephaly. Use your favorite social media accounts to reach others, and encourage those others to share the HoPE with their social media contacts. …
Category: Holoprosencephaly Awareness Week Tags: #sharingHoPE, awareness, holoprosencephaly, ripple, social media
Posted: December 4, 2013 by Leslie, Sammy's mom
Category: #GivingTuesday, Holidays, Inspiration Tags: #givingtuesday, #holoprosencephaly #hope, #sharingHoPE, #unselfie, get involved
Posted: December 1, 2013 by Leslie, Sammy's mom
Feel free to be creative and create your own sign or you can download and print a givingTuesday unselfie template here! Please send your #unselfie to info@FamiliesforHoPE.org, so that we can add your unselfie to our collage!
Category: #GivingTuesday, Holidays Tags: #givingtuesday, #holoprosencephaly #hope, #sharingHoPE, #unselfie
Posted: November 28, 2013 by Leslie, Sammy's mom
We are thankful for each of the infants, children, and adults with HPE who have touched our hearts in countless ways–those born and unborn, living or deceased. We are thankful for our HPE parents. We all remember the moment that the word “holoprosencephaly” became a part of our vocabulary, and we are grateful to have …
Category: #GivingTuesday, Holidays, Inspiration, Perspectives Tags: #givingthanks, #givingtuesday, #holoprosencephaly #hope, #sharingHoPE, #thankful, #thanksgiving, help
Posted: November 27, 2013 by Leslie, Sammy's mom
Category: #GivingTuesday, Fundraising Tags: #givingtuesday, #sharingHoPE, holoprosencephaly