Tag: #sharingHoPE
Guest Author: Melissa, Isaiah’s mom Our journey started on January 11, 2016 when we found out we we were pregnant with Isaiah. When I was 18 weeks, my primary OBGYN noticed something wrong with Isaiah’s head. He wasn’t sure what was going on, so he sent us to a maternal fetal medicine specialist. This doctor …
Category: Embrace the Journey, Guest Authors Tags: #familiesforhope, #holoprosencephaly #hope, #sharingHoPE, awareness, Carter Centers, diagnosis, disability, Embrace the Journey, family, holoprosencephaly, HoPE, HPE, prenatal, special needs
A mother and her son’s journey with Treacher Collins Syndrome and HPE
Category: Embrace the Journey, Guest Authors Tags: #familiesforhope, #gotHoPE, #sharingHoPE, awareness, conference, diagnosis, happy, holoprosencephaly, HoPE, prenatal, treacher collins
Please enjoy this YouTube video created by Rob Myers, Gabby’s dad, on #GivingTuesday. Thank you so much to Rob, Heidi, and Gabby for your commitment, support, and inspiration.
Thank you to Barb Brown for your $15 donation to Families for HoPE on #GivingTuesday! Thank you to Jane Merdic for your $15 donation on #GivingTuesday to Families for HoPE. So pleased and grateful to Mary Gamache for your $100 donation to Families for HoPE on this #GivingTuesday! Thank you so much to Betsy Jochner …
Feel free to be creative and create your own sign or you can download and print a givingTuesday unselfie template here! Please send your #unselfie to info@FamiliesforHoPE.org, so that we can add your unselfie to our page!
(Written by Michelle Alexander) 13 years ago, I laid bleeding to death. I had just seen my only baby girl for the first time without the fuzziness of an ultrasound. She was beautiful. For 7 hours, I laid in recovery while my body threaten to give up. Thinking of the only real picture I had …
(Submitted by Pat Wright) HPE is not a rare disorder in our immediate family, 50% of the children have HPE, and it has not prematurely taken the lives of the affected children, as one is 32-years old and the other is 23-years old. It has however taken us down a road of understanding and certainly …
Maddox’s parents–Philip and Hailey Brewer–have shared Maddox’s story in honor of Holoprosencephaly Awareness Week. Check it out by clicking on the photo below . . .
Tag: #sharingHoPE
Never Lose HoPE
Posted: July 30, 2018 by Leslie, Sammy's mom
Guest Author: Melissa, Isaiah’s mom Our journey started on January 11, 2016 when we found out we we were pregnant with Isaiah. When I was 18 weeks, my primary OBGYN noticed something wrong with Isaiah’s head. He wasn’t sure what was going on, so he sent us to a maternal fetal medicine specialist. This doctor …
Category: Embrace the Journey, Guest Authors Tags: #familiesforhope, #holoprosencephaly #hope, #sharingHoPE, awareness, Carter Centers, diagnosis, disability, Embrace the Journey, family, holoprosencephaly, HoPE, HPE, prenatal, special needs
Having HoPE will give you courage
Posted: March 7, 2018 by Leslie, Sammy's mom
A mother and her son’s journey with Treacher Collins Syndrome and HPE
Category: Embrace the Journey, Guest Authors Tags: #familiesforhope, #gotHoPE, #sharingHoPE, awareness, conference, diagnosis, happy, holoprosencephaly, HoPE, prenatal, treacher collins
HoPE and the One Percenters
Posted: December 3, 2014 by Leslie, Sammy's mom
Please enjoy this YouTube video created by Rob Myers, Gabby’s dad, on #GivingTuesday. Thank you so much to Rob, Heidi, and Gabby for your commitment, support, and inspiration.
Category: #GivingTuesday, Grief, Inspiration Tags: #familiesforhope, #givingtuesday, #gotHoPE, #sharingHoPE, gabby, holoprosencephaly, one percent, video
Thank you, thank you, thank you!
Posted: December 2, 2014 by Leslie, Sammy's mom
Thank you to Barb Brown for your $15 donation to Families for HoPE on #GivingTuesday! Thank you to Jane Merdic for your $15 donation on #GivingTuesday to Families for HoPE. So pleased and grateful to Mary Gamache for your $100 donation to Families for HoPE on this #GivingTuesday! Thank you so much to Betsy Jochner …
Category: #GivingTuesday, Fundraising Tags: #givingtuesday, #sharingHoPE, holoprosencephaly, HoPE, HPE, thanks
We need your #unselfie for #GivingTuesday!
Posted: December 2, 2014 by Leslie, Sammy's mom
Feel free to be creative and create your own sign or you can download and print a givingTuesday unselfie template here! Please send your #unselfie to info@FamiliesforHoPE.org, so that we can add your unselfie to our page!
Category: #GivingTuesday, Holidays Tags: #holoprosencephaly #hope, #sharingHoPE, #unselfie, givingtuesday
Faces of HoPE
Posted: March 16, 2014 by Leslie, Sammy's mom
Category: Holoprosencephaly Awareness Week Tags: #sharingHoPE, awareness, holoprosencephaly, HoPE
Meet Abigail
Posted: March 14, 2014 by Leslie, Sammy's mom
(Written by Michelle Alexander) 13 years ago, I laid bleeding to death. I had just seen my only baby girl for the first time without the fuzziness of an ultrasound. She was beautiful. For 7 hours, I laid in recovery while my body threaten to give up. Thinking of the only real picture I had …
Category: Guest Authors, Holoprosencephaly Awareness Week Tags: #sharingHoPE, abigail, awareness, holoprosencephaly, HoPE
Meet Mary and Robert
Posted: March 14, 2014 by Leslie, Sammy's mom
(Submitted by Pat Wright) HPE is not a rare disorder in our immediate family, 50% of the children have HPE, and it has not prematurely taken the lives of the affected children, as one is 32-years old and the other is 23-years old. It has however taken us down a road of understanding and certainly …
Category: Guest Authors, Holoprosencephaly Awareness Week Tags: #sharingHoPE, awareness, holoprosencephaly, HPE, wright
Meet Maddox
Posted: March 12, 2014 by Leslie, Sammy's mom
Maddox’s parents–Philip and Hailey Brewer–have shared Maddox’s story in honor of Holoprosencephaly Awareness Week. Check it out by clicking on the photo below . . .
Category: Holoprosencephaly Awareness Week Tags: #holoprosencephaly #hope, #sharingHoPE, awareness, brewer, maddox, philip, riley hospital
Bobby’s HoPE
Posted: March 11, 2014 by Leslie, Sammy's mom
Category: Holoprosencephaly Awareness Week Tags: #holoprosencephaly #hope, #sharingHoPE, awareness, bobby, tom krause